Human genomic research (HGR) demands very large pools of data to generate meaningful inference. Yet, the sharing of one’s genetic data for research is a voluntary act. The…
Human genomic research (HGR) demands very large pools of data to generate meaningful inference. Yet, the sharing of one’s genetic data for research is a voluntary act. The collection of data sufficient to fuel rapid advancement is contingent on individuals’ willingness to share. Privacy risks associated with sharing this unique and intensely personal data are significant. Genetic data are an unambiguous identifier. Public linkage of donor to their genetic data could reveal predisposition to diseases, behaviors, paternity, heredity, intelligence, etc. The purpose of this paper is to understand individuals’ willingness to volunteer their private information in this high-risk/high-reward context.
The authors collect survey data from 273 respondents and use structural equation modeling techniques to analyze responses.
The authors find statistical support for our theorization. They find that while heightened awareness of the benefits and risks of sharing correlates with increased privacy concerns, the net impact is an increase in intention to share.
The findings suggest that prescriptive awareness might be an effective tool with which policy-makers can gain the sufficient voluntary participation from individuals necessary to drive large-scale medical research.
This study contributes a theoretically and empirically informed model which demonstrates the impact of awareness and privacy concern on individuals’ willingness to share their genetic data for large-scale HGR. It helps inform a rising class of data sufficiency problems related to large-scale medical research.
In the knowledge management domain, the conversion of tacit knowledge to explicit knowledge is critical because it is a prerequisite to the knowledge amplification process…
In the knowledge management domain, the conversion of tacit knowledge to explicit knowledge is critical because it is a prerequisite to the knowledge amplification process wherein knowledge becomes part of an organization’s knowledge network. In this article, knowledge exchange protocols are examined as a vehicle for improving the tacit to explicit knowledge conversion process. In an experiment testing the use of knowledge exchange protocols, it is learned that while structure may significantly improve the tacit to explicit knowledge conversion process, it also may matter how the structure is employed in this process.
Project management factors affecting the implementation of IT projects have been widely studied; however, there is little empirical research investigating the…
Project management factors affecting the implementation of IT projects have been widely studied; however, there is little empirical research investigating the implementation of organizational data‐mining (ODM) projects. ODM is defined as leveraging data‐mining tools and technologies to enhance the decision‐making process by transforming data into valuable and actionable knowledge to gain a competitive advantage. Organizations of all sizes are developing and implementing ODM technologies. A cross‐sectional survey based on The Square Route Framework was conducted to determine the relationship among project factors affecting ODM implementations. Findings from 111 organizations indicate that a number of implementation factors have a significant influence on the successful implementation of ODM projects.
Family Justice Centers, or “one-stop shops” that enable domestic violence victims to access a range of services at one location, are becoming increasingly common. However…
Family Justice Centers, or “one-stop shops” that enable domestic violence victims to access a range of services at one location, are becoming increasingly common. However, there is a limited body of research examining the outcomes and planning processes of these Centers. The early phases of planning Centers are critical to their initial and ongoing success. The purpose of this paper is to discuss these issues.
In total, 15 stakeholders in a community in the early phases of planning a Center were interviewed.
Content analysis procedures were used to identify themes related to participants’ ideas about what the Family Justice Center should look like (e.g. services to include and perceived benefits and challenges for the Center), the steps required for planning it (e.g. identifying the purpose of the Center, getting key people involved, and building collaborations), and desired technologies.
This paper is the first known research effort to examine the early phases of development in constructing a Family Justice Center.