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Article
Publication date: 29 August 2019

Aoife Mahon, Elizabeth Tilley, Gurch Randhawa, Yannis Pappas and Jitka Vseteckova

Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the…

Abstract

Purpose

Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the literature on the physical, social and psychological needs of ageing carers of individuals with intellectual disability(ies) in the UK.

Design/methodology/approach

A scoping review framework was used to identify literature from eleven databases, the grey literature and the references lists of relevant studies. Only primary research studies that discussed the needs of non-professional carers, aged 65+ years old, of individuals with intellectual disability(ies) in the UK were included. No date restrictions were applied. Thematic analysis was used to narratively synthesise findings.

Findings

Six studies were included. Five key themes were identified: Living with fear, lack of information, rebuilding trust, proactive professional involvement and being ignored. Housing and support information is not communicated well to carers. Professionals require more training on carer needs and trust must be rebuilt between carers and professionals. Proactive approaches would help identify carer needs, reduce marginalisation, help carers feel heard and reduce the risk of care crisis. Greater recognition of mutual caring relationships is needed.

Originality/value

This review highlighted the needs of older caregivers for individuals with intellectual disability(ies) as well as the need for more high-quality research in this field. The information presented in this review may be considered by primary care providers and funding bodies when planning future support for this growing population of carers.

Details

Quality in Ageing and Older Adults, vol. 20 no. 4
Type: Research Article
ISSN: 1471-7794

Keywords

Article
Publication date: 17 September 2009

Jo Neale, Marcia Worrell and Gurch Randhawa

Recent research has suggested that there is limited information about mental health help‐seeking among young African—Caribbean and South Asian communities. This study explores the…

Abstract

Recent research has suggested that there is limited information about mental health help‐seeking among young African—Caribbean and South Asian communities. This study explores the mental health support needs and perceptions of the Samaritans among young African—Caribbean and South Asian people living in Luton. Five single‐sex focus groups were conducted among the three main South Asian groups and African—Caribbeans in Luton. This paper describes the challenges faced by service providers and potential users from minority ethnic groups in respectively providing and accessing mental health services. Finally, the paper makes some recommendations for developing culturally competent and more visible service provision.

Details

Journal of Public Mental Health, vol. 8 no. 2
Type: Research Article
ISSN: 1746-5729

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