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Article
Publication date: 6 September 2022

Glenda Cook, Annette Hand, Jill Wales and Alexandra Kirton

Mobile technology and applications offer a new approach to personalised care for older people. Hear Me Now (HMN), developed by Maldaba Ltd, is an application for smartphones and…

Abstract

Purpose

Mobile technology and applications offer a new approach to personalised care for older people. Hear Me Now (HMN), developed by Maldaba Ltd, is an application for smartphones and tablets. Although originally conceived and co-produced by individuals with learning disabilities and their supporters, anecdotal evidence from specialist practitioners indicated that older people with chronic health conditions and frailty might also benefit from use of the HMN app. This feasibility study sought to explore whether older people could use the HMN app and examine their usage. The aim of this feasibility study was to explore whether older people could use HMN and to examine their usage of this application.

Design/methodology/approach

A purposive sample of six individuals (M = 4; F = 2) aged between 65 and 90 years was recruited for the study. Following training, the participants used HMN at home for different purposes over three months. Concurrently, the participants took part in an online interview every three weeks (N = 5 interviews). They also completed the Task Load Index (NASA-TLX) questionnaire during Weeks 1 and 12 and the system usability scale during Week 12 to assess usability of HMN.

Findings

The participants used the HMN app for a range of purposes and indicated that their confidence and skills increased when using HMN. Though the participants reported diverse experiences of using HMN for different purposes, it was clear the majority considered this app helpful in managing daily life and their health conditions; however, they also experienced barriers in its use such as dexterity and visual problems.

Research limitations/implications

This is a small feasibility study that was restricted to older people using the HMN app. Though valuable insights were obtained from the participants, the evidence that older people could use HMN to support their personal activities and to self-manage health conditions remains anecdotal. Further research is therefore warranted following adaptation of HMN for use by older people.

Originality/value

This study indicates that patient self-management apps such as HMN have the potential to enable older adults with long-term health conditions to play an active role in managing their condition.

Details

Working with Older People, vol. 27 no. 2
Type: Research Article
ISSN: 1366-3666

Keywords

Article
Publication date: 14 March 2023

Jill Wales, Glenda Cook and Cathy Bailey

This paper aims to explore the perceptions and experiences of a group of extra care tenants, who, as novice internet users, began to maintain their social relationships online…

Abstract

Purpose

This paper aims to explore the perceptions and experiences of a group of extra care tenants, who, as novice internet users, began to maintain their social relationships online. Housing transitions in later life may jeopardise existing social relationships, leading to loneliness and social isolation. More recently, Covid-19 restrictions have limited familial face-to-face contact and wider social interactions. Thus, extra care tenants, who are not already online, may benefit from acquiring internet skills. This paper aims to enhance understanding of the participants’ transition from novices to experienced internet users and the impact on their social relationships and sense of self.

Design/methodology/approach

A longitudinal, hermeneutic phenomenological study was conducted over eight months in two extra care housing schemes in north east England. Ten participants (56–98 years) with age-related physical, sensory and cognitive losses were recruited to the study. A series of semi-structured interviews and participant diaries captured the participants’ experience as they developed internet skills and communicated online.

Findings

All participants, including a blind individual, learnt to communicate online. Personalised adaptive strategies, peer support, training and management involvement facilitated internet uptake. Participants felt their social relationships were supported, and they regained biographical continuity, through being and feeling they belonged in the modern digital world.

Originality/value

The online experiences of extra care tenants are rarely voiced. Their perceptions may assist others to engage online, maintaining social connections, which could otherwise be lost.

Details

Housing, Care and Support, vol. 26 no. 1
Type: Research Article
ISSN: 1460-8790

Keywords

Article
Publication date: 8 January 2018

Charlotte Laura Clarke, Mike Titterton, Jane Wilcockson, Jane Reed, Wendy Moyle, Barbara Klein, Sandra Marais and Glenda Cook

The purpose of this paper is to explore the experience of older people and their sense of developing wellbeing, including consideration of the strategies they employ to respond to…

Abstract

Purpose

The purpose of this paper is to explore the experience of older people and their sense of developing wellbeing, including consideration of the strategies they employ to respond to perceived risk.

Design/methodology/approach

An Appreciative Inquiry study was used, which collected data with 58 participants in focus group and individual interviews. Interviews focussed on ways in which older people in South Africa, Australia, Germany and the UK understand and seek to maintain wellbeing.

Findings

The changing time horizons of older people lead to perceptions of risk and concerns that embrace societal as well as individual concerns. Often, this leads to a sense of societal responsibility and desire for social change, which is frustrated by a perceived exclusion from participation in society.

Social implications

In mental health practice and education, it is imperative to embrace the shift from ageist concerns (with later life viewed as risky and tragic in itself) towards a greater sensitivity for older people’s resilience, the strategies they deploy to maintain this, and their desire for more control and respect for their potential to contribute to society.

Originality/value

Variation in time horizons leads to changes in temporal accounting, which may be under-utilised by society. Consequently, societies may not recognise and support the resilience of older people to the detriment of older people as individuals and to the wider society.

Details

The Journal of Mental Health Training, Education and Practice, vol. 13 no. 1
Type: Research Article
ISSN: 1755-6228

Keywords

Article
Publication date: 30 March 2020

Juliana Thompson, Sue Tiplady and Glenda Cook

“Experts by experience' (EBE) involvement in professional health-care education programmes contributes to developing students” caring skills by supporting students’ understanding…

Abstract

Purpose

“Experts by experience' (EBE) involvement in professional health-care education programmes contributes to developing students” caring skills by supporting students’ understanding of the lived experience and reality of service-users’ situations. Also, involvement in health-care education is a beneficial experience for EBEs themselves. This study aims to explore specifically older people’s experiences and perceptions of their involvement of EBE in gerontological education to generate insight into their understanding of this experience.

Design/methodology/approach

In this qualitative study, EBEs contributing to delivery of health-care professional education programmes at a UK university took part in focus groups (n = 14) to discuss their views and experiences of involvement in EBE teaching. Data were analysed using open coding.

Findings

Four themes emerged from the data, suggesting that older EBEs’ involvement in education may be beneficial for their well-being. The four themes were “contributing to improved care”, “having a purpose”, “being included” and “feeling appreciated”.

Practical implications

Findings support the requirement for nurse educators to develop EBE programmes that involve older people as not only a teaching strategy for students but also a method of promoting the health and well-being of the older EBEs.

Originality/value

There is limited research regarding specifically older EBEs’ experiences of involvement in gerontological education. This is an important area of study because involvement in education may constitute a means of engaging in social, community and voluntary activities for older people, which recent UK health policies advocate as methods of promoting and facilitating healthy ageing.

Details

Working with Older People, vol. 24 no. 2
Type: Research Article
ISSN: 1366-3666

Keywords

Article
Publication date: 11 November 2021

Juliana Thompson, Glenda Cook, Claire Masterman, Mark Parkinson and Lesley Bainbridge

Different pathways of frailty care to prevent or delay progression of frailty and enable people to live well with frailty are emerging in primary and community care in the UK. The…

Abstract

Purpose

Different pathways of frailty care to prevent or delay progression of frailty and enable people to live well with frailty are emerging in primary and community care in the UK. The purpose of the study is to understand effective frailty care pathways and their components to inform future service development and pathway evaluation in primary- and community-care services.

Design/methodology/approach

A rapid evidence review was conducted: 11 research publications met the inclusion criteria and were analysed using narrative thematic synthesis.

Findings

There is strong evidence that resistance-based exercise, self-management support, community geriatric services and hospital at home (HAH) improve patient health and function. In general, evaluation and comparison of frailty care pathways, components and pathway operations is challenging due to weaknesses, inconsistencies and differences in evaluation, but it is essential to include consideration of process, determinant and implementation of pathways in evaluations.

Originality/value

To achieve meaningful evaluations and facilitate comparisons of frailty pathways, a standardised evaluation toolkit that incorporates evaluation of how pathways are operated is required for evaluating the impact of frailty pathways of care.

Details

International Journal of Health Governance, vol. 27 no. 1
Type: Research Article
ISSN: 2059-4631

Keywords

Article
Publication date: 27 March 2007

Margaret Cook, Glenda Cook, Philip Hodgson, Jan Reed, Charlotte Clarke and Pamela Inglis

The purpose of this paper is to examine the impact that research governance processes in the National Health Service (NHS) are having on the conduct of research that involves a…

758

Abstract

Purpose

The purpose of this paper is to examine the impact that research governance processes in the National Health Service (NHS) are having on the conduct of research that involves a national survey and to point to ways that existing processes may develop to facilitate such research.

Design/methodology/approach

The paper describes the experiences of a research team of seeking approval in 357 NHS organisations to carry out a national postal survey to investigate specialist services and specialist staffing for older people in England in the wake of recent policy developments. Through reflection on this experience, the team propose approaches for the development of existing research governance processes. The national survey was the first stage of the study, which was followed by a detailed investigation of the development of specialist service provision for older people in six case study sites across England. The national survey aimed to map specialist service provision for older people by identifying the range of service models, agency and professional involvements, and nature of the case load in statutory services (health and social care), independent and voluntary sector organisations.

Findings

Of the 357 NHS organisations approached for approval to carry out the survey within the organisation, this was achieved only in 247 organisations over 12 months. Many organisations were facilitative of the process; however, protracted and extensive approval processes in others led to long delays and redesigning of the research that was commissioned by the Department of Health.

Originality/value

The paper is of value in that it highlights processes and practices that hinder research and builds on those that work well.

Details

Journal of Health Organization and Management, vol. 21 no. 1
Type: Research Article
ISSN: 1477-7266

Keywords

Article
Publication date: 1 September 2003

Jan Reed, Barbara Klein, Glenda Cook and David Stanley

This paper reports on data from two linked studies in the UK and Germany which evaluated the potential of a quality management system, Qual A Sess, to play a role in…

1089

Abstract

This paper reports on data from two linked studies in the UK and Germany which evaluated the potential of a quality management system, Qual A Sess, to play a role in self‐regulation in care homes for older people in the context of calls for EU‐wide harmonization of standards. Qual A Sess was developed by German and UK organisations to assess the quality of care in care homes and mechanisms to improve the quality of care through the development of action plans involving residents, families and staff in the process. This paper compares the outcomes of Qual A Sess in care homes in both countries, by focusing on the data available about the action plans generated by the Qual A Sess process, and suggests that standardization of quality indicators may be inappropriate in the context of local differences.

Details

International Journal of Health Care Quality Assurance, vol. 16 no. 5
Type: Research Article
ISSN: 0952-6862

Keywords

Article
Publication date: 21 December 2015

Cathy Bailey, Glenda Cook, Linda Herman, Christine McMillan, Jo Rose, Roy Marston, Eleanor Binks and Emma Barron

The purpose of this paper is to report on a small telehealth pilot in local authority sheltered housing in NE England. This explored the training and capacity building needed to…

Abstract

Purpose

The purpose of this paper is to report on a small telehealth pilot in local authority sheltered housing in NE England. This explored the training and capacity building needed to develop a workforce/older person, telehealth partnership and service that is integrated within existing health, social care and housing services.

Design/methodology/approach

A qualitative case study approach on the implementation and deployment of a pilot telehealth service, supporting sheltered housing tenants with Chronic obstructive pulmonary disease (n=4).

Findings

Telehealth training and capacity building, needs to develop from within the workforce/older person partnership, if a usable and acceptable telehealth service is to be developed and integrated within existing health, care and housing services. To be adaptable to changing circumstances and individual need, flexible monitoring is also required.

Practical implications

Service users and workforces, need to work together to provide flexible telehealth monitoring, that in the longer term, may improve service user, quality of life.

Originality/value

The pilot explored a workforce/older person partnership to consider how to add and implement telehealth services, into existing health and housing services.

Details

Housing, Care and Support, vol. 18 no. 3/4
Type: Research Article
ISSN: 1460-8790

Keywords

Article
Publication date: 15 July 2014

Sue Childs, Julie McLeod, Elizabeth Lomas and Glenda Cook

This paper aims to explore the issues, the role of research data management (RDM) as a mechanism for implementing open research data and the role and opportunities for records…

3283

Abstract

Purpose

This paper aims to explore the issues, the role of research data management (RDM) as a mechanism for implementing open research data and the role and opportunities for records managers. The open data agenda is premised on making as much data as possible open and available. However, in the context of open research data there are methodological, ethical and practical issues with this premise.

Design/methodology/approach

Two collaborative research projects focusing on qualitative health data were conducted. “DATUM for Health” designed and delivered a tailored RDM skills training programme for postgraduate research students in health studies. “DATUM in Action” was an action research project between researchers from information sciences, health, mathematics and computing, looking at planning and implementing RDM.

Findings

Three key issues emerged about what research data is appropriate to make open/accessible for sharing and reuse: re-using qualitative data conflicts with some of the epistemological and methodological principles of qualitative research; there are ethical concerns about making data obtained from human participants open, which are not completely addressed by consent and anonymisation; many research projects are small scale and the costs of preparing and curating data for open access can outweigh its value. In exploring these issues, the authors advocate the need for effective appraisal skills and researcher-focused RDM with records managers playing a useful role.

Research limitations/implications

The findings come from two small-scale qualitative projects in health studies. Further exploration of these issues is required.

Practical implications

Records managers have new crucial opportunities in the open data and RDM contexts, bringing their expertise and experience in managing a wider range of data and information. They can help realise the benefits of multiple perspectives (researcher, data manager, records manager and archivist) on open research data.

Social implications

Researcher-focused RDM offers a mechanism for implementing open research data.

Originality/value

It raises complex issues around open research data not found in the records management literature, highlights the need for researcher-focussed RDM and research data appraisal skills and a not yet fully recognised role for records managers.

Details

Records Management Journal, vol. 24 no. 2
Type: Research Article
ISSN: 0956-5698

Keywords

Article
Publication date: 1 December 2006

Jan Reed and David Stanley

This paper reports on a seminar organised as part of an ESRC‐funded series on older people and care homes that focused on the period of transition into a care home and the…

Abstract

This paper reports on a seminar organised as part of an ESRC‐funded series on older people and care homes that focused on the period of transition into a care home and the experiences of older people immediately before and after they made the move. The papers presented suggested that there were ways in which older people could exercise choice and control over the process, but that problems existed, ranging from the ways in which assessment and referral systems were crisis or service led, to how people were supported after their move. This paper outlines these arguments, and concludes that such processes need to be addressed if the quality of care at this difficult period is to be improved.

Details

Quality in Ageing and Older Adults, vol. 7 no. 4
Type: Research Article
ISSN: 1471-7794

Keywords

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