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Book part
Publication date: 25 November 2003

Joseph A Kotarba, Brenda Haile, Peggy Landrum and Debra Trimble

The purpose of this paper is to contribute to the understanding of women’s experiences of living with and surviving HIV/AIDS. We argue that strong conceptualization of this…

Abstract

The purpose of this paper is to contribute to the understanding of women’s experiences of living with and surviving HIV/AIDS. We argue that strong conceptualization of this experience will lead to more efficient health care delivery for this growing population, within the general framework of managed care. Our analytical strategy is to integrate the nursing concept of inner strength with ideas from the sociological concept of the existential self. There are numerous definitions of the increasingly popular concept of inner strength in the health care literature, largely developed through the experiences of women living with breast cancer. In general, this concept is useful because it focuses research attention on patients’ experiences and perceptions of illness. Nevertheless, current definitions can be critiqued for their tendency: (1) view inner strength as a thing-like phenomenon, as if it were like a disease, to be measured, treated and supplemented; (2) describe inner strength in overly metaphoric and romanticized terms that do not reflect the everyday life of living with a serious illness; and (3) assume that inner strength is equivalent to doing well. We argue that this concept can be of greater scholarly and clinical use if it is defined as follows: Inner strength refers to the different ways women with serious illnesses experience and, subsequently, talk about the deepest, existential resources available to and used by them to manage severe threats to body and self. We developed this concept through a series of 19 biographical and conversational interviews with women living with HIV/AIDS. Our interviews found that these women describe their experiences in terms of three types of narratives or stories. Faith stories recount the ways reliance upon a higher power (spiritual or religious) provides a sense of inner strength. Character stories recount the ways women experience inner strength as a resource available to them before as well as during their illness. Uncertainty stories recount the ways women perceive their inner strength as problematic. We conclude with specific suggestions for the application of our revised concept of Inner strength to the role of nursing in the delivery of managed care to women living with HIV/AIDS.

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Reorganizing Health Care Delivery Systems: Problems of Managed
Type: Book
ISBN: 978-1-84950-247-4

Book part
Publication date: 21 December 2010

Corinne Kirchner

A forward thrust drives the theoretical narrative of disability-in-society, as told by scholars of recent decades. Consider these titles (with emphases added): From Stigma to

Abstract

A forward thrust drives the theoretical narrative of disability-in-society, as told by scholars of recent decades. Consider these titles (with emphases added): From Stigma to Identity Politics: Political Activism among the Physically Disabled and Former Mental Patients by Anspach (1979); From Good Will to Civil Rights by Scotch (1984); Moving Disability Beyond Stigma a collection edited by Asch and Fine (1988); The Disability Rights Movement: From Charity to Confrontation by Fleischer and Zames (2001). Each title is like a revved-up engine. Together, they convey a message of forward movement in the status of people with disabilities. The road they all travel starts from a negative starting point and ends at a clear and a more desirable, if not yet perfect, destination. The starting point is the subordinated and powerless status of persons with disabilities – a status based on stigma wrapped in pity. The destination: empowerment. These analyses focus on the United States; their authors, while not all sociologists, are close enough for our purpose. The road they all cover starts (chronologically speaking) around the 1940s, and extends – in the case of the earliest – up to the late 1970s; two others cover up to the mid- and late 1980s; and the last one, to the current century.

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Disability as a Fluid State
Type: Book
ISBN: 978-0-85724-377-5

Abstract

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Stories and Lessons from the World's Leading Opera, Orchestra Librarians, and Music Archivists, Volume 2: Europe and Asia
Type: Book
ISBN: 978-1-80262-659-9

Book part
Publication date: 9 October 2012

Kerwin Kaye

Purpose – This chapter critically examines efforts to destigmatize addiction through the creation of a diagnostic category and medicalization. It further critiques “realist”…

Abstract

Purpose – This chapter critically examines efforts to destigmatize addiction through the creation of a diagnostic category and medicalization. It further critiques “realist” accounts of neuro-scientific knowledge, proposing instead a “biocultural” framework that enables a more multifaceted understanding of drug problems that leads back to questions of biopolitics.

Methodology/approach – After showing that medicalization is not always associated with destigmatization, this chapter reviews evidence suggesting that the social class of drug users is central to questions of stigma. A literature review concerning social constructionist approaches to bodies is then offered, culminating in an exploration of “biocultural” frames and their implications for psychiatric knowledge.

Findings – The material world can only be grasped through a cultural frame, an understanding that challenges “realist” accounts of knowledge. While making reference to brain functioning, psychiatric “disorders” in fact identify violations of interpersonal or psychic norms. These violations cannot be linked in a linear way to patterns of brain activity, even at a theoretical level.

Social implications – This chapter points toward a way of analyzing psychiatric disorders that allows for and highlights their political effects. Without ruling out medical interventions, it suggests that clinical and social understandings are an essential component of psychiatric understanding.

Originality/value of chapter – While “biocultural” approaches have been proposed by other social theorists, this chapter applies the frame in new ways to the psychiatric endeavor. In the face of increasing medicalization within the field of psychiatry, this chapter makes a strong theoretical case concerning the value of clinical and social knowledge concerning psychiatric disorders.

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Critical Perspectives on Addiction
Type: Book
ISBN: 978-1-78052-930-1

Keywords

Open Access
Book part
Publication date: 29 November 2023

Abstract

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The Emerald Handbook of Research Management and Administration Around the World
Type: Book
ISBN: 978-1-80382-701-8

Content available
Book part
Publication date: 26 November 2020

Abstract

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Health and Illness in the Neoliberal Era in Europe
Type: Book
ISBN: 978-1-83909-119-3

Book part
Publication date: 17 June 2019

Gareth Huw Davies, Sian Roderick, Michael D. Williams and Roderick Thomas

The Technium initiative started in 2001 with an initial Business and Innovation Centre established in the Swansea docklands area. Early success of this first Technium building led…

Abstract

The Technium initiative started in 2001 with an initial Business and Innovation Centre established in the Swansea docklands area. Early success of this first Technium building led to the concept being rapidly proliferated into a pan-Wales network of primarily sector-focussed centres. Although the Welsh Government withdrew its support for the Technium network initiative in 2010, the individual centres continued under a range of ownerships and the historic initiative of continued interest, particularly with respect to regional policy.

A vibrant policy and practice debate subsequently emerged together with strident media comment. Lack of coherence between Technium Centres and weaknesses in monitoring systems meant this debate has been poorly informed. This case study helps address the evidence deficit within this debate by revisiting the initial Technium Swansea initiative and its subsequent development.

The case study provides an insight into what can realistically be expected of such initiatives in the short, medium and long terms, with realistic time-horizons for ‘success’ and the role of learning for knowledge-based development in similar initiatives and regions.

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Creating Entrepreneurial Space: Talking Through Multi-Voices, Reflections on Emerging Debates
Type: Book
ISBN: 978-1-78769-577-1

Keywords

Content available
Book part
Publication date: 17 June 2019

Abstract

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Creating Entrepreneurial Space: Talking Through Multi-Voices, Reflections on Emerging Debates
Type: Book
ISBN: 978-1-78769-577-1

Book part
Publication date: 2 February 2023

Frederick J. Brigham, Christopher Claude, John William McKenna and Larissa Lemp

In this chapter, we examine the current research on how technology is applied to benefit students with emotional and/or behavioral disorders (EBD). First, we describe the…

Abstract

In this chapter, we examine the current research on how technology is applied to benefit students with emotional and/or behavioral disorders (EBD). First, we describe the iterative yet unpredictable nature of technological innovation to suggest that incremental successes are qualified by the creation of often unforeseen consequences. We then identify commonly used nonelectronic technologies in education to emphasize that the hoped-for advances in electronic technology have failed to deliver on their decades-old promise of educational revolution. We continue with our review of the literature on empirical studies examining how technology is used to support students with EBD. These findings indicate that the research design primarily employed in this field is single-subject. Examples of specific findings include web-based graphic organizers for student writing, virtual self-modeling for targeting student behaviors, and virtual coaching for teachers of students with EBD. We conclude by reviewing how leaders in the field of special education predict the field will change in the future. Overall, with an increased emphasis on research accessibility and practitioner-validated knowledge, and advances in neuroscience and artificial technologies, practitioners may hold a more central role to the creation and dissemination of knowledge.

Abstract

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Man-Eating Monsters
Type: Book
ISBN: 978-1-78769-528-3

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