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Article
Publication date: 1 September 2007

Ron Gray and Raja Mukherjee

Foetal alcohol spectrum disorders describes a group of disorders caused by the consumption of prenatal alcohol. The range of outcomes and the clinical management of these disorders

Abstract

Foetal alcohol spectrum disorders describes a group of disorders caused by the consumption of prenatal alcohol. The range of outcomes and the clinical management of these disorders vary in both the complexity of their presentations, associated disorders and management outcomes. This article seeks to review the literature around some of the more difficult areas associated with the condition and present some insights into possible ways of managing the psychiatric and neurodevelopmental disorders seen in the context of the UK system and the NHS.

Article
Publication date: 24 January 2011

Raja Mukherjee, Michael Layton, Evan Yacoub and Jeremy Turk

Associations between fetal alcohol syndrome (FAS) and other conditions have been reported, but the links between FAS and autistic spectrum disorders (ASD) remain unclear. This…

Abstract

Associations between fetal alcohol syndrome (FAS) and other conditions have been reported, but the links between FAS and autistic spectrum disorders (ASD) remain unclear. This study explored the relationship between FAS and ASD in individuals attending a specialist diagnostic clinic. Consecutive referrals over 24 months to a specialist neurodevelopmental clinic were evaluated using gold standard methods for FAS diagnosis and ASD. The first 18‐month cohort who met criteria for ASD were compared with controls attending the same clinic but who had not experienced prenatal alcohol exposure (nested data). Data for the whole group were also collected. Twenty‐one fetal alcohol spectrum disorder (FASD) individuals were assessed and 16 (72%) met ICD‐10 criteria for childhood autism. Further significant differences between the prenatally exposed and non‐exposed group with ASD were found in the nested study. The research shows an association between heavy prenatal alcohol exposure and ASD. As this is a small sample in a specialist clinic, the study suggests that a larger, more population‐based study of those exposed to heavy prenatal alcohol is warranted.

Article
Publication date: 8 September 2014

Ernest Gralton

There needs to be an increased recognition of fetal alcohol spectrum disorder (FASD) in services that deal with young people with disruptive and offending behavior, not just those…

Abstract

Purpose

There needs to be an increased recognition of fetal alcohol spectrum disorder (FASD) in services that deal with young people with disruptive and offending behavior, not just those services that deal with adolescents with a recognized intellectual disability. The paper aims to discuss these issues.

Design/methodology/approach

This is a general review of the current available evidence on FASD and how it is likely to predispose affected young people to have contact with secure mental health services and the criminal justice system.

Findings

FASD is likely to have become a more common cause of intellectual disability and behavioral disturbance but the history of significant alcohol exposure in utero if often missed. There is evidence that the hyperactivity is less responsive to psychotropic medication and may represent a different condition to conventional ADHD. However the majority of those affected are in the low normal IQ range.

Research limitations/implications

There is so far very limited research in what is likely to be a relatively common disorder with significant costs to criminal justice, mental healthcare and social services. Epidemiological information from the UK is lacking and urgently needed.

Practical implications

Professionals who work with mentally disordered young people need to be more aware of FASD and its potential contribution to the problems and disabilities in their population.

Social implications

Social workers, foster carers and adoptive parents need to be more aware of FASD and how it can contribute to the breakdown of social care.

Originality/value

There is currently no other review of FASD and the implications for criminal justice, secure mental health and social care for young people.

Details

Journal of Intellectual Disabilities and Offending Behaviour, vol. 5 no. 3
Type: Research Article
ISSN: 2050-8824

Keywords

Book part
Publication date: 9 October 2012

Deborah A. Potter

Purpose – Using Foucault's concepts of biopolitics and governmentality along with sociological constructions of risk, this chapter asks, “What definitions and procedures have…

Abstract

Purpose – Using Foucault's concepts of biopolitics and governmentality along with sociological constructions of risk, this chapter asks, “What definitions and procedures have states used in their legislation about FAS to justify state intervention? What are the social and policy implications?”

Methodology/approach – Qualitative content analysis of state legislation enacted into law.

Findings – Against a backdrop of child abuse which justifies intervention, states use different techniques of biopolitics to secure governance over pregnant women and their developing fetuses, including (a) a social history of prenatal alcohol consumption; (b) a diagnosis of FAS in the child; and/or (c) a visible or measurable physiological characteristic of the newborn/child associated with FAS.

Social implications – This chapter extends the analysis of alcohol consumption by pregnant women to a policy level and examines central questions about the government's role in the biopolitical framing of prenatal alcohol use and the differential assignment of risk and responsibility.

Originality/value of chapter – This chapter contributes to work on maternal–fetal conflict, risk, and governmentality in women's reproductive health.

Details

Critical Perspectives on Addiction
Type: Book
ISBN: 978-1-78052-930-1

Keywords

Article
Publication date: 17 March 2023

William C. Curran and Matt C. Danbrook

Child welfare services (CWSs) globally continue to absorb high rates of children living with or suspected of fetal alcohol spectrum disorder (FASD). Such high prevalence rates…

Abstract

Purpose

Child welfare services (CWSs) globally continue to absorb high rates of children living with or suspected of fetal alcohol spectrum disorder (FASD). Such high prevalence rates render CWS with major ethical and moral dilemmas of meeting complex needs. Currently, many jurisdictions are challenged by diagnostic capacity and cost implications of formal FASD diagnosis. This paper aims to recommend a screening protocol to address management gap between FASD initial presentation and formal diagnosis.

Design/methodology/approach

This is a follow-up paper from a grounded-theory study of a sample (N = 18) of child welfare social workers (CWSWs), allied health professionals and foster parents. A stepwise protocol was developed through systematical interpretation of the final data.

Findings

The application of a five-step screening protocol would greatly support CWSW in meeting the needs of children with suspected FASD. This CWSWs-led assessment model incorporates a clinical evaluation to exclude neurodevelopmental conditions caused by known genetic disorders, followed by behavioral and neurocognitive psychosocial assessments.

Research limitations/implications

This study had several limitations. Firstly, as a specific social work-based sample, it is not necessarily representative of the wider population of social workers globally due to different cultural responses to FASD in CWSs. The transferability of findings will have to be considered due to cultural variations concerning FASD.

Practical implications

By offering a management and nonlabeling approach, this five-step screening protocol offers a delineated pathway for CWSW and addresses the major professional frustrations while seeking to plan safe care for a child suspected of having FASD.

Social implications

The research offers a pragmatic low-cost to society to alleviate the mounting social and monetary implications of FASD. A large percentage of children impacted by prenatal alcohol exposure do not qualify under formal clinical diagnostic guidelines. Leaving these children without intervention is problematic. The recommendation of this study addresses this critical gap in services. The primary aim is to alleviate the burden on this cohort of vulnerable children by offering nonlabeling neurodevelopmental screening.

Originality/value

The direct implications of FASD and how it impacts CWS are well documented. However, few studies focus on the critical interface of FASD and the role of CWSW responsible for planning their safe care. This paper offers a novel pragmatic and functional multistep protocol to aid CWSW in this complex area of practice.

Article
Publication date: 6 January 2023

William Christopher Curran and Matthew C. Danbrook

In the early 1970s, clinical evidence emerged documenting causal links between prenatal alcohol exposure (PAE) and children’s behaviors as observed by child welfare social workers…

Abstract

Purpose

In the early 1970s, clinical evidence emerged documenting causal links between prenatal alcohol exposure (PAE) and children’s behaviors as observed by child welfare social workers (CWSWs). Unfortunately, fetal alcohol spectrum disorders (FASD) remain on the margins of public health priorities. The purpose of this study was to elicit the views of child welfare social workers when responding to case of or suspected FASD.

Design/methodology/approach

A sample (N = 18) of CWSWs, allied health professionals and foster parents were interviewed.

Findings

Findings indicate that social workers struggle with their statutory duty to plan safe care for children with or suspected of having FASD. Emergent themes include struggling with advocacy, professional devaluation and lack of procedural guidance.

Practical implications

Social workers need a clear pathway and FASD knowledge to guide their interventions and enhance their capacity to advocate for affected children.

Originality/value

An abundance of research documents the direct effect of PAE on physical, cognitive and behavioral outcomes. However, few studies focus on the critical interface of children with an FASD entering public care and the social workers responsible for planning their safe care. This study sought to document social workers’ response to this vulnerable cohort of children.

Details

Advances in Dual Diagnosis, vol. 16 no. 2
Type: Research Article
ISSN: 1757-0972

Keywords

Article
Publication date: 10 December 2018

Dorothy Badry, Kelly D. Coons-Harding, Jocelynn Cook and Alan Bocking

The purpose of this paper is to present a profile of the Canada fetal alcohol spectrum disorder (CanFASD) research network which is descriptive in nature and profiles the work of…

Abstract

Purpose

The purpose of this paper is to present a profile of the Canada fetal alcohol spectrum disorder (CanFASD) research network which is descriptive in nature and profiles the work of the network and its national activities. CanFASD is a unique Canadian, non-governmental organization whose aim is to engage cross-disciplinary research and knowledge translation for stakeholders and partners including communities, policy makers and governments.

Design/methodology/approach

A case study approach was undertaken to describe the network whose main focus and purpose is specifically research related to FASD.

Findings

The creation of CanFASD has contributed to a strong network of researchers on key topic areas including diagnosis, prevention, intervention, justice and child welfare, with a focus on evidence-based decision making, research and knowledge exchange. A key role of the network is to provide access to research and education on FASD nationally.

Research limitations/implications

A case study approach, while descriptive, does not provide the details of specific research projects.

Originality/value

CanFASD has had a key role in stimulating meaningful dialogue and research in the field of FASD. The need exists to collaboratively work on a national and international basis in response to the distinct challenges posed by FASD for individuals, families and society.

Details

Advances in Dual Diagnosis, vol. 12 no. 1/2
Type: Research Article
ISSN: 1757-0972

Keywords

Article
Publication date: 1 December 2005

Alexandra Constantinou

Foetal alcohol spectrum disorders is the term for the range of complications that can arise when alcohol and pregnancy mix. As Alexandra Constantinou reports, women are receiving…

Abstract

Foetal alcohol spectrum disorders is the term for the range of complications that can arise when alcohol and pregnancy mix. As Alexandra Constantinou reports, women are receiving different messages about what is safe to consume, and what isn't.

Details

Drugs and Alcohol Today, vol. 5 no. 4
Type: Research Article
ISSN: 1745-9265

Article
Publication date: 11 January 2019

Robyn Thomas and Raja Mukherjee

Fetal alcohol spectrum disorder (FASD) is an umbrella term for a range of conditions that may occur in an individual whose mother drank alcohol during pregnancy. There has been…

1337

Abstract

Purpose

Fetal alcohol spectrum disorder (FASD) is an umbrella term for a range of conditions that may occur in an individual whose mother drank alcohol during pregnancy. There has been little research into the experience of birth mothers of children with FASD and no published work of this kind in the UK. This is in contrast to a number of studies that have been conducted on foster/adoptive parents. In light of the recent publication in the UK of a mixed methods study on adoptive carers, it is timely to conduct research on birth mothers in the UK. The purpose of this paper is to explore the experiences of birth mothers following a diagnosis of FASD in their children.

Design/methodology/approach

An interpretive phenomenological analytical approach was used to generate themes from individual semi-structured interviews of five women who are birth mothers of children with FASD.

Findings

Four superordinate main themes and various subthemes were identified. To blame or not to blame captures the tension the mothers experience when considering the cause of their child’s condition. Life is a series of battles which describes the struggles the women experience on a crusade with a renewed sense of purpose that captures the process of transformation that occurs, which helps describe the internal and external factors that help the mothers cope.

Originality/value

FASD is often described in the literature as being completely preventable with the implication that it is the mother’s fault because they drank alcohol during pregnancy. However, a statement like this fails to portray the complexities of the phenomenon of women drinking during pregnancy. Life is difficult for the women for a number of different reasons, yet a sense of hope is present. The mothers have a renewed sense of purpose to do the best they can for their child and to raise awareness of FASD. Understanding their experiences can help service providers better meet the needs of parents and children affected by FASD.

Details

Advances in Dual Diagnosis, vol. 12 no. 1/2
Type: Research Article
ISSN: 1757-0972

Keywords

Abstract

Details

Journal of Criminal Psychology, vol. 9 no. 4
Type: Research Article
ISSN: 2009-3829

1 – 10 of 106