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This chapter qualitatively explored the impact of including parent liaisons (i.e., parents with lived experience caring for a child with complex needs, who support other caregivers in navigating child and family needs) in a case conferencing model for children with complex medical/social needs. Case conferences are used to address fragmented care, shared decision-making, and set patient-centered goals. Seventeen semi-structured interviews were conducted with clinicians and parent liaisons to assess the involvement of parent liaisons in case conferencing. Two main themes included benefits of parent liaison involvement (10 subthemes) and challenges to parent liaison involvement (5 subthemes). Clinicians reported that liaison participation and support of patients reduced stress for clinicians as well as family members. Challenges to liaison involvement included clinical team/parent liaison communication delays, which were further exacerbated by the COVID-19 pandemic. Parent liaison involvement in case conferences is perceived to be beneficial to children with complex needs, their families, and the clinical team. Integration of liaisons ensures the familial perspective is included in clinical goal setting.

This chapter is about the multiple forms of collaboration that are crucial to designing and implementing a school and community-based early childhood teacher preparation program. Maintaining quality in education and teacher education is a systemic, interdependence among individuals, institutions, and local, state, and national policy makers. We conclude that teacher education redesign is less about courses and pedagogies and more about systemic relationships, routines, and evaluations over time.

Each year, our university’s small community welcomes 200 refugees. Many refugee children’s schooling is interrupted due to long waits in refugee camps, so they need additional educational opportunities. Families from the refugee community and representatives from the Church World Services, a local refugee-resettlement agency, partnered with James Madison University to create a summer program that provides children from the refugee community with more support in English and reading. Creativity And Reading Education (CARE) is a summer program for Pre-K-3rd grade children in the refugee community that integrates creativity and English/literacy development by utilizing community-based field trips for real-world connections and applications. Pre-service teachers in this six-credit experience planned and facilitated morning meetings, integrated literacy/creativity activities, read aloud sessions, and vocabulary focused on field trips. We partnered with the schools and recruited 16 pre-service teachers, 30 children, and 10 parents to participate in the three-week program. This chapter explicates how CARE was conceptualized and implemented during its pilot year. We highlight our community partnerships, illuminate challenges and lessons learned, and explain next steps as the subsequent iteration of the CARE program that evolves to serve more students and families.

This chapter reviews the interaction between local authority services and Gypsy, Roma and Traveller (GRT) community with a primary focus on Elective Home Education (EHE). A small-scale case study is presented, based around semi-structured interviews with members of the GRT community and educational professionals in order to identify factors influencing the uptake of EHE within the GRT community. Analysis of the primary qualitative and secondary quantitative data suggests that Learning Mentors have had some impact upon the uptake of education and there appears to have been fewer referrals to the Children Missing Education (CME) team. However, the GRT community seems entrenched in its view of not accepting formal school education as appropriate for its teenage members, particularly young women. The GRT community is considered a patriarchal society, with women having culturally defined roles from an early age. The cultural value placed upon education often limits access to educational opportunities for most secondary aged GRT young people and this historical attitude is likely to continue through future generations.

This study indicates the need for further research in several areas; alternative educational provision for GRT young people, the need for a more flexible approach to education by schools, the inclusion of GRT parents in their children's education and the involvement of more agencies to offer support to the GRT community.

Research ethics and integrity stipulates that research must be conducted with responsibility towards the research community and should benefit the intended population. This chapter will share insights from an ongoing research programme to reduce family conflict in the context of dementia care while discussing the accompanying ethical considerations. Research into dementia care has primarily focused on improving outcomes for the care dyad, leaving the influence and input of the wider family unit under investigated. Family conflict can detrimentally impact the quality of care provided and leave caregivers vulnerable to psychosocial difficulties. Family conflict occurs in the context of dementia care but there is little research on how to reduce, or prevent, such conflict occurring. In this research programme, a systematic review investigated the effectiveness of interventions that include the wider family unit to reduce family conflict; only one study was included which evidenced the lack of interventions in this area. A qualitative scoping review was then conducted to explore the lived experiences of caregiving families with experience of family conflict and reported solutions. It was found that conflict occurred due to factors including care decisions and role transitions which impacted relationships and affected care provision. Solutions to conflict were less often reported, indicating an important gap in the literature. Interviews with Alzheimer's Society staff and volunteers revealed that stigma and denial surrounding dementia were prevalent, and families were often reluctant to seek external help. This research programme is currently establishing public patient involvement (PPI) to develop the research methodology and interview questions for people with dementia (PWD) and their family caregivers to explore their lived experiences and potential solutions to family conflict. To conclude, this research programme will propose a family-focused intervention aimed at systemic family conflict for those caring for someone with dementia.