Human genomic research (HGR) demands very large pools of data to generate meaningful inference. Yet, the sharing of one’s genetic data for research is a voluntary act. The…
Human genomic research (HGR) demands very large pools of data to generate meaningful inference. Yet, the sharing of one’s genetic data for research is a voluntary act. The collection of data sufficient to fuel rapid advancement is contingent on individuals’ willingness to share. Privacy risks associated with sharing this unique and intensely personal data are significant. Genetic data are an unambiguous identifier. Public linkage of donor to their genetic data could reveal predisposition to diseases, behaviors, paternity, heredity, intelligence, etc. The purpose of this paper is to understand individuals’ willingness to volunteer their private information in this high-risk/high-reward context.
The authors collect survey data from 273 respondents and use structural equation modeling techniques to analyze responses.
The authors find statistical support for our theorization. They find that while heightened awareness of the benefits and risks of sharing correlates with increased privacy concerns, the net impact is an increase in intention to share.
The findings suggest that prescriptive awareness might be an effective tool with which policy-makers can gain the sufficient voluntary participation from individuals necessary to drive large-scale medical research.
This study contributes a theoretically and empirically informed model which demonstrates the impact of awareness and privacy concern on individuals’ willingness to share their genetic data for large-scale HGR. It helps inform a rising class of data sufficiency problems related to large-scale medical research.
Discusses ICANN (Internet Corporation for Assigned Names and Numbers), which is a new private corporation for managing Internet domain names and IP addresses, which was…
Discusses ICANN (Internet Corporation for Assigned Names and Numbers), which is a new private corporation for managing Internet domain names and IP addresses, which was created in the USA and produces a historical and conceptual assessment of the policy involved.
Whether there's been too much or too little hype about the much‐reported Y2K computer glitch remains to be seen. Some people are already preparing their shelters, stocking their larders, and arming their weapons; others are worried that their investments and bank accounts will disappear into the bowels of their bank's computers, never to be seen again; and still others regard the entire issue as nothing more than media hype.
THE European campaign to catch up with the United States and Japan in the provision of information technology took a major step forward at the end of February when the Council of Ministers of the European Communities adopted the ESPRIT programme. ESPRIT equates to the ‘European Strategic Programme of Information Technology’ and the main areas of research cover micro electronics, software technology, advanced information processing, office systems, and computer integrated manufacturing. The programme will span the years 1984–88 and will cost 1,500,000,000 European Units of Account (£900,000,000), half of which will be contributed by the European Communities Commission, and half by industry. Although the European Community represents over thirty per cent of the world IT market, European industry provides only ten per cent of this market. For further details of the programme, contact Mr W Colin, IT Task Force, 200 Rue de la Loi, B 1049 Brussels, Belgium, tel 235 4477 or 235 2348, telecopier 230 1203, tx 25946.
Further research on sexual harassment at work is necessary to persuade management to implement policies and grievance procedures covering this area in the workplace. Superior/subordinate harassment is the most serious problem for women in “feminine” occupations, the real problem being posed by middle‐class men with higher occupational status. Co‐worker harassment is more of a problem for middle‐class women in management and professions, these women being in direct competition with middle‐class men who cannot use occupational power over them. Harassment of women in factories (or other non‐traditional women's work) is a problem when women
Expanding the Internet domain. Few would have thought that controversy surrounds proposals to enhance the Internet Domain Name System, but apparently it does and the Internet Society has formed an international ad hoc committee (IAHC) to deal with it.
With 16 years of top management experience matched by an equally impressive physical stature, the man who succeeds Sir Raymond Brookes at GKN — Barrie Heath — aims to put Britain's biggest engineering company on an international footing. From now on, GKN's main purpose will be one of “hard sell” on world markets, the new chairman tells Ken Gooding.
Globalisation is generally defined as the “denationalisation of clusters of political, economic, and social activities” that destabilize the ability of the sovereign State to control activities on its territory, due to the rising need to find solutions for universal problems, like the pollution of the environment, on an international level. Globalisation is a complex, forceful legal and social process that take place within an integrated whole with out regard to geographical boundaries. Globalisation thus differs from international activities, which arise between and among States, and it differs from multinational activities that occur in more than one nation‐State. This does not mean that countries are not involved in the sociolegal dynamics that those transboundary process trigger. In a sense, the movements triggered by global processes promote greater economic interdependence among countries. Globalisation can be traced back to the depression preceding World War II and globalisation at that time included spreading of the capitalist economic system as a means of getting access to extended markets. The first step was to create sufficient export surplus to maintain full employment in the capitalist world and secondly establishing a globalized economy where the planet would be united in peace and wealth. The idea of interdependence among quite separate and distinct countries is a very important part of talks on globalisation and a significant side of today’s global political economy.