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Abbas Riazi, Mei Ying Boon, Catherine Bridge and Stephen J. Dain
The purpose of this paper is to provide an evidence‐base for home modification guidelines for people with visual impairment due to age‐related macular degeneration (AMD), from the…
Abstract
Purpose
The purpose of this paper is to provide an evidence‐base for home modification guidelines for people with visual impairment due to age‐related macular degeneration (AMD), from the perspective of people with AMD, by exploring the home modifications they find useful and would recommend to other people with visual impairment due to AMD as being effective.
Design/methodology/approach
People with impairments may not be aware of their own coping with inability strategies until they are asked to express their strategies. A qualitative approach using semi‐structured individual interviews was used to elicit the perspectives of people with AMD with regards to their preferred home modification interventions. Interviews were recorded and then transcribed verbatim into text for thematical analysis using Nvivo 8.
Findings
In total, 31 individuals (aged 79.1±5.6 years) with AMD and no other ocular diseases were recruited from a low vision clinic or the Macular Degeneration Foundation database in a metropolitan city. Interviewees had not received any formal home modification assessment from a government provider. Nevertheless, 70 per cent of participants stated that they undertook home modifications themselves or with the assistance of family and friends. The most important functional modifications as perceived by the participants concerned the installation of hand rails, non‐slip matting, colour contrasting safety stair nosing, single lever taps, slip resistant flooring, lift chairs and motion sensors that activated pathway lighting. Kitchens, steps and bathrooms were perceived as hazardous locations. Most participants had difficulties with reading fine‐print material on kitchen appliances, washing machines, microwave ovens and remote controls for electronic devices in the home.
Originality/value
An evidence‐base for useful home modifications as suggested by people with visual impairment was perceived to be a valuable resource for other people with visual impairment who may not yet have developed adaptive strategies. Industrial and interior designers and low vision rehabilitation services who aim to improve functionality of the home environment will also find these suggestions useful.
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Yolan Parrott and Shaniff Esmail
This paper aims to investigate the unique issues childhood burn survivors experience in relation to sex education and sexual development.
Abstract
Purpose
This paper aims to investigate the unique issues childhood burn survivors experience in relation to sex education and sexual development.
Design/methodology/approach
Using a phenomenological approach, participants described their lived experiences with regards to sex education and the sexuality issues they encountered as child burn survivors. One‐to‐one semi‐structured interviews and a focus group were used to gather data, which were analyzed using a constant comparison method.
Findings
Results provide educators with better insight into the experiences of burn survivors as well as strategies for approaching sex education. Findings centered around five areas: exposure, sex education content, timing of sex education, characteristics of the educator and most appropriate methods of delivery.
Research limitations/implications
Sexuality is a value‐laden topic that has the potential to increase apprehension and decrease willingness to discuss. As a result, the sample may not be wholly representative across age groups, concerns or social attitudes regarding sexuality present within this population. Additional limitations are also noted. Future studies, which utilize a mixed method approach with a larger sample of both adolescent and adult burn survivors, would increase the value and generalizability of the findings.
Originality/value
Research findings confirm that persons living with childhood burn injuries experience similar feelings and concerns regarding their sexuality as their able‐bodied peers which contradict social views. However, mainstream sex education falls short of addressing their unique needs and as such this study's findings provide strategies to allow for appropriate knowledge acquisition to ease the transition from childhood to adulthood.
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Alastair Baker and Margaret Wright
With the three existing specialised paediatric liver centres working beyond bed capacity, this article aims to address the special problems arising from the tension between need…
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Purpose
With the three existing specialised paediatric liver centres working beyond bed capacity, this article aims to address the special problems arising from the tension between need for centralisation of skills, and advantages of decentralisation of care.
Design/methodology/approach
Three sessions using the appreciative inquiry method were conducted by the authors
Findings
This resulted in a new patient‐centred set of priorities in developing a MCN and gave impetus to two regional MCNs and a National MCN movement for Paediatric Gastroenterology.
Originality/value
The authors describe the changes and how the AI method offers a powerful tool for positive change within the NHS. This article will be of special interest to those working within the paediatric liver services.
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