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Article
Publication date: 30 September 2022

Melike Şahinol

This paper examines the extent to which 3D printed children's prostheses function as enabling technology. The focus lies on the experiences of children with upper limb body…

Abstract

Purpose

This paper examines the extent to which 3D printed children's prostheses function as enabling technology. The focus lies on the experiences of children with upper limb body differences using 3D printed prostheses in the context of (posthuman) cyborg theories.

Design/methodology/approach

This article is based on several years of field research applying a grounded theory approach. (Health) technology and the body are examined with special regard to the vulnerability of the technology user who is, also, the technology designer. Taking these children's particular vulnerability and sensitivity into account, the method of “cultural probes” was further developed applying distributed socio-(bio-)technical probes, which conceive soma design as the matter of a socio-material world.

Findings

It was shown that the e-NABLE device is not only a socially enabling somatechnic but can itself be limiting, vulnerable and painful for children due to its materiality. The somatechnical construction of children's bodies and identities are presented as heroic figures, which, in part, produces and experiences a corporeal being that is based on and identifies with these heroes and heroines – but may not always be in the interests of children with disabilities. In order to meet these children's needs, the author argues in line with crip technoscience that 3D printed prostheses should be co-developed with (and specifically for) them.

Originality/value

This paper is the first of its kind to consider the daily lives of children with 3D printed prostheses and their experiences as knowers and makers of such. This paper adds to the body of knowledge in the field of crip technoscience and enabling technologies.

Peer review

The peer review history for this article is available at: https://publons.com/publon 10.1108/JET-02-2022-0017

Details

Journal of Enabling Technologies, vol. 16 no. 3
Type: Research Article
ISSN: 2398-6263

Keywords

Article
Publication date: 30 August 2022

Tom Bieling, Melike Şahinol, Robert Stock and Anna–Lena Wiechern

This contribution shows perspectives of experts from different disciplines and professional backgrounds in order to elaborate on maker approaches such as do-it-yourself…

Abstract

Purpose

This contribution shows perspectives of experts from different disciplines and professional backgrounds in order to elaborate on maker approaches such as do-it-yourself prosthetics and collaborative tools. As a result, aspects of open source practices related to medical and assistive technologies will be critically reflected upon. In addition, implications of heterogeneous interests, economic implications and everyday achievements of social material assemblages produced through participatory design research are discussed.

Design/methodology/approach

In order to address an interdisciplinary and transdisciplinary perspective on the relationships between body (differences) and technology, it is necessary to bring together studies from both Science and Technology Studies (STS) and crip technoscience as well as approaches from participatory design research and practice. This challenge was addressed by a roundtable organized as part of the third network meeting of the Dis/Ability and Digital Media Research Network on 16 September 2020.

Findings

Against the backdrop of “crip technoscience” DIY and collaborative open source practices are not only understood as valuable alternatives to standardized medical prosthetics and assistive devices. These bottom-up approaches which draw from the expert knowledge of disabled users (Hamraie and Fritsch, 2019) also facilitate devices that defy categories such as “prosthetic” or “medical aid” not only aesthetically but semantically, too.

Originality/value

The Network Dis/Abilities and Digital Media intends to integrate media and technology studies with disability studies on a theoretical level. This round table discussion delivers proof of how – on the practical level – technology and dis/ability need to be thought of as relational and co-constitutive (Mills and Sterne, 2017).

Details

Journal of Enabling Technologies, vol. 16 no. 3
Type: Research Article
ISSN: 2398-6263

Keywords

Abstract

Details

Living Life to the Fullest: Disability, Youth and Voice
Type: Book
ISBN: 978-1-83909-445-3

Article
Publication date: 28 February 2024

Emma May

The literature review explores how multidisciplinary approaches based on critical pedagogy and participatory research can provide frameworks for equitable partnerships and genuine…

Abstract

Purpose

The literature review explores how multidisciplinary approaches based on critical pedagogy and participatory research can provide frameworks for equitable partnerships and genuine participation in educational design and research practices. Additionally, the essay aims to expand understandings of equitable engagement within educational research and design based on principles from critical pedagogy.

Design/methodology/approach

The essay draws from diverse literature in the learning sciences, health informatics, industrial design, disability studies, ethnic studies, rehabilitation science, and to a lesser extent HCI research to understand how critical pedagogy and participatory research methods can provide useful frameworks for disabled peoples' equitable engagement and genuine participation in educational research and design. The literature reviewed in the paper concern topics such as participatory approaches to community development with disabled adults, the implementation of university-initiated community partnerships, participatory research with students and disabled people, and the importance of culturally-responsive research practices. The design literature in this review explores various arenas such as the co-design of assistive technologies with disabled children and adults and the design of curricula for students with and without disabilities. This review focuses on research practices that engender disabled peoples' participation in educational research and design, with focus on developing multidisciplinary frameworks for such research.

Findings

The literature review concludes that participatory research methods and critical pedagogy provide useful frameworks for disabled peoples’ participation in educational design and research practices. Critical pedagogy and participatory design allow for the genuine participation of disabled people in the research process.

Social implications

Emphases on collaboration and collective knowledge-building in social transformation are present in scholarship concerning critical pedagogy, participatory research, and disability studies. However, these connections have been routinely underexplored in the literature. This paper aims to underscore these integral connections as a means to build solidarity between disabled and other marginalized people.

Originality/value

The connections between participatory research methods, critical pedagogy, and disability studies have been previously underexplored. The literature review proposes a combined approach, which has the potential to radically transform multiple realms of research beyond the learning and information sciences.

Details

Information and Learning Sciences, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 2398-5348

Keywords

Content available
Article
Publication date: 16 November 2022

Marc Fabri and Nigel Newbutt

469

Abstract

Details

Journal of Enabling Technologies, vol. 16 no. 3
Type: Research Article
ISSN: 2398-6263

Book part
Publication date: 17 May 2012

Adele E. Clarke

My early life was punctuated by turning points and transformations that gradually led to a surprising and late-blooming academic career – my first “real” sociology position began…

Abstract

My early life was punctuated by turning points and transformations that gradually led to a surprising and late-blooming academic career – my first “real” sociology position began when I was 44. Here I trace six different trajectories of scholarly work which have compelled me: feminist women's health and technoscience studies; social worlds/arenas and the disciplinary emergence of reproductive sciences; the sociology of work and scientific practices; biomedicalization studies; grounded theory and situational analysis as qualitative research methods; and symbolic interaction-ists and -isms. I have circled back across them multiple times. Instead of seeing a beautifully folded origami of a life, it feels more like a crumpled wad of newspapers from various times. Upon opening and holding them up to the light in different ways, stories may be slowly discerned. I try to capture here some of the sweetness and fragility of these moments toward the end of an initially stuttering but later wondrously gratifying career.

Details

Blue-Ribbon Papers: Behind the Professional Mask: The Autobiographies of Leading Symbolic Interactionists
Type: Book
ISBN: 978-1-78052-747-5

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