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1 – 10 of 750Neurodiverse conditions, or developmental disorders, are neither well-known nor understood by the general population in Trinidad and Tobago. Awareness of, or sensitivity toward…
Abstract
Neurodiverse conditions, or developmental disorders, are neither well-known nor understood by the general population in Trinidad and Tobago. Awareness of, or sensitivity toward, children with autism spectrum disorder (ASD), in particular, is lacking in Trinidad and Tobago. Generation A is those persons who will reach adulthood in the next decade or so and be seeking employment opportunities. Given the current challenges faced by persons with ASD in securing and maintaining employment and the fact that this is a generally underexplored area of research, focusing on Generation A provides an opportunity to explore what provisions are in place for individuals with ASD to assist with future transitions into the workplace in Trinidad and Tobago. This chapter focuses on the existing policy, legal, and institutional framework in Trinidad and Tobago for ASD in the workplace, with particular reference to Generation A, to determine how it is currently addressed and what accommodations are being made to facilitate this demographic. A review of ASD-related data and select, relevant policy, law and institutions in Trinidad and Tobago has revealed that very few preparations, if any, are being made to facilitate Generation A individuals' entry into the workplace. The most relevant sector for addressing ASD needs falls to the NGO movement, but these organizations do not focus on employment preparation. Several recommendations for the key stakeholders in this process have been made that can assist in this regard.
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Angela Genova, Alice Scavarda and Maria Świątkiewicz-Mośny
Welfare policies for persons with disabilities have been strongly affected by the COVID-19 pandemic, and this introductory chapter provides the theoretical background to the book…
Abstract
Welfare policies for persons with disabilities have been strongly affected by the COVID-19 pandemic, and this introductory chapter provides the theoretical background to the book. Definition, data and main European policies about disabilities are outlined. The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) is the key pillar of disability policies in European countries. In line with a Disability Studies perspective, COVID-19 health surveillance regime has been a challenge in the implementation process of the UNCRPD, highlighting the role of lay knowledge and community of practices in managing everyday challenges for persons with disabilities and their families, and therefore their potential role in becoming part of epistemic communities to support the policy making and implementation process of the UNCRPD.
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This study frames the international disability movement – NGOs, foreign donors, and transnational networks focused on promoting the 2006 UN Convention on the Rights of Persons…
Abstract
Purpose
This study frames the international disability movement – NGOs, foreign donors, and transnational networks focused on promoting the 2006 UN Convention on the Rights of Persons with Disabilities – as an organizational environment. As the movement expands into the Global South, it actively pressures local grassroots associations to adopt a new organizational model in order to become membership-based advocacy organizations. Many groups, however, are embedded in local civic environments that expect them to act as self-help and social support organizations. As such, grassroots associations are caught between two organizational environments, each promoting different models and practices.
Design/methodology/approach
This analysis draws upon 18 months of participant observation and 69 interviews gathered from a local coalition of seven grassroots disability associations in Nicaragua. This ethnographic approach is combined with sociological institutionalism, an analysis that emphasizes the way organizations conform to organizational models that spread across a field.
Findings
The local associations responded in a variety of ways to the advocacy model promoted by the international movement. Organizations either conformed, resisted, or developed hybrid organizational models on the basis of internal characteristics that determined how they straddled the two organizational environments.
Originality/value
This paper highlights the way international models may be ineffective in local environments that have civic traditions and lower levels of governmental capacity than found in the West. Some disability associations, however, will creatively combine local and international models to create new initiatives that make a positive impact in the lives of persons with disabilities at the grassroots.
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Angela Genova, Alice Scavarda and Maria Świątkiewicz-Mośny
The introduction presents the pandemic context as the new sanitary surveillance regime that has even more affected persons with disabilities. This book focuses on welfare…
Abstract
The introduction presents the pandemic context as the new sanitary surveillance regime that has even more affected persons with disabilities. This book focuses on welfare disability policy, services and practices for and with people with disabilities during the COVID-19 pandemic time, examining the period between Winter 2020 and Spring 2022. A pandemic is a time when changes are accelerated, forcing the emergence of new solutions. The pandemic has called for innovation and reform in all disability welfare policies to overcome increasing and changing social needs. Despite the UN Convention of the Rights of Persons with Disabilities and the European Strategy 2021–2030, the impact of the pandemic has been different in each country according to the features of each national policy framework and local responses. Nevertheless, the European policy framework is the context and the benchmarking reference for the analysis carried out in this work. This book develops a sociological analysis of the impact of the COVID-19 pandemic on policies, services and practices in several European contexts adopting a public sociology perspective. Moreover, the book looks at supportive and self-help activities implemented during the pandemic to answer the needs of the persons with disabilities. By collecting these data, the book outlines and develops the concept of a community of practices as a group of people that share a concern for something they do and learn how to do it better by interacting with each other on a regular basis. Then the structure and the methodological choices of the book are presented.
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Work participation and work facilitation represent basic human rights for everyone. Work represents an important platform for welfare and well-being, but compared to the general…
Abstract
Work participation and work facilitation represent basic human rights for everyone. Work represents an important platform for welfare and well-being, but compared to the general workforce in Norway, persons with cognitive disabilities are severely under-represented. When workplaces locked down under the first COVID-19 outbreak spring 2020, some people were made redundant whilst many continued their work from home. The lockdown affected persons with cognitive disabilities through lockdown of workplaces, vocational training centres and even day activity centres. The scheme of working from home was not as obvious or facilitated for this group, as for other employees. When also visits were banned and common areas for socialisation were locked down, the consequences of these lockdowns were exacerbated. In this chapter we have examined and discussed the COVID-19 restrictions in Norway and how they affected the basic human rights of persons with cognitive disabilities, and also how such rights can be promoted through legislation, governance and service provision.
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Purpose: Researchers and advocates alike have noted that persons with disabilities and older persons are the two groups most marginalized by neoliberal economic policies and…
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Purpose: Researchers and advocates alike have noted that persons with disabilities and older persons are the two groups most marginalized by neoliberal economic policies and therefore could come together as a broad-based movement against the roll back of their rights. Yet, these two groups fail to collaborate, and instead compete against one another for an ever-shrinking pool of benefits. This chapter explores the barriers to their collaboration within the context of structural adjustment in Jamaica.
Methods/Approach: The author engages in a critical analysis of neoliberalism's effect on the advocacy strategies of the disability and older persons' movements in Jamaica based on 32 semi-directed depth interviews, participant observation of numerous events, and a survey of media written by local advocates.
Findings: The disability movement makes claims on behalf of their members by focusing on the potential returns that society will gain by providing the opportunities that will make young persons with disabilities productive employees over their lifetime. The older persons' movement advocates by portraying themselves as “vibrant” and worthy of social investment because of the contributions they make. Both of these arguments for inclusion are also exclusionary. The disability movement excludes older persons as potential contributors and the older persons' movement similarly excludes persons with disabilities.
Implications: The only way neoliberalism will successfully be rolled back and universal rights returned is if the disability movement and older persons' movements build an alliance that is more inclusive, including of one another, by rejecting the language of investment and productivity, and instead focus on rights and inherent dignity.
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In 2014, Japan ratified the CRPD, which spurred to the development of domestic laws; however, the education section of the Convention does not clarify how to educate children with…
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In 2014, Japan ratified the CRPD, which spurred to the development of domestic laws; however, the education section of the Convention does not clarify how to educate children with disabilities in inclusive education. Thus, while the global inclusive education goal advocated by UNESCO and other bodies concerns education for all, inclusive education in Japan is seen as education for children with disabilities, and the philosophies and practices are very different. Therefore, this chapter introduces the policies and current practices of inclusive education in Japan and discusses the possibilities for school education reform from the perspective of real inclusive education.
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This chapter explores the relationship between disability identity, civil rights, and the law. Twenty-five years after the passage of the Americans with Disabilities Act, the…
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This chapter explores the relationship between disability identity, civil rights, and the law. Twenty-five years after the passage of the Americans with Disabilities Act, the question remains why disability rights legislation does not go far enough toward addressing access, stigma, and discrimination issues. People with disabilities have found empowerment from disability rights laws, but these laws are also restrictive because they define people in relation to medical aspects of their disabilities and narrowly define society’s obligation for inclusion. The successes and failures of disability rights laws are an important contribution to the study of conceptions of difference.
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Elena Jenkin, Erin Wilson, Matthew Clarke and Robert Campain
This chapter presents a research method for operationalizing a human rights approach with children with disability in developing countries that confronts the tension between a…
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This chapter presents a research method for operationalizing a human rights approach with children with disability in developing countries that confronts the tension between a universal human rights discourse and local knowledge and customs. This research was undertaken in Papua New Guinea and Vanuatu. Through methods of data collection, analysis of data and the dissemination of findings, the focus was on utilizing human rights concepts and ideas in a way that enabled the local meanings and experiences of children to be re-interpreted against the Articles of the Convention on the Rights of Persons with Disabilities (CRPD). Findings could then be presented in a manner that communicated effectively with governments and local and global organizations, while also honouring the particular experiences of children with disability. Such an approach is, of course, subject to critique and ongoing adaptation.
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Angela Genova, Alice Scavarda and Maria Świątkiewicz-Mośny
The chapter presents the similarities and the differences between the different case studies reported in the book and suggests some conclusion on the impact of COVID-19 on…
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The chapter presents the similarities and the differences between the different case studies reported in the book and suggests some conclusion on the impact of COVID-19 on policies and practices devoted to persons with cognitive disabilities from a macro, meso and micro point of view. The COVID-19 surveillance regime has made people with disabilities, and particularly with intellectual ones, even more invisible, since their rights have been consistently under-represented in the different national contexts. Persons with intellectual disabilities have been considered objects of protection and this overprotective stance turns into an increasing process of institutionalisation, segregation and familiarisation of care. The COVID-19 surveillance regime has brought into light the limits of the implementation of the UN Convention and of the EU Strategy, but the book and the emerging epistemic community, in the framework of public sociology, contribute to support the rights of all persons, with or without disabilities, in public welfare policies in Europe.
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