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Article
Publication date: 1 June 2004

Clare Evans and Ruth Evans

Based on the experience of Wiltshire and Swindon Users' Network, this article presents findings from a small user‐controlled study of members' perceptions of their own…

Abstract

Based on the experience of Wiltshire and Swindon Users' Network, this article presents findings from a small user‐controlled study of members' perceptions of their own organisation. Peer support, information provision and speaking with a ‘collective voice’ emerged as key aspects of their involvement which members valued. Although WSUN provided a range of opportunities for involvement in social care and health services, members identified training and recruitment of professionals and presentations as areas for greater involvement. The study calls for greater recognition of the important role that usercontrolled organisations can play in empowering users on a personal level, as well as bringing about change in social care and health services through effective user involvement.

Details

Journal of Integrated Care, vol. 12 no. 3
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 1 December 2004

Clare Evans

Using her experience in working with a local authority and a large voluntary sector provider, the author describes a model which provides effective and challenging user…

Abstract

Using her experience in working with a local authority and a large voluntary sector provider, the author describes a model which provides effective and challenging user involvement which is also empowering for service users to participate in. Long‐term financial resources are seen as essential to develop user‐controlled organisations, and it is argued that they should be based on the social model of disability. Capacity‐building techniques such as information provision, training and meeting together are seen as enabling users to gain skill and confidence.

Details

Journal of Integrated Care, vol. 12 no. 6
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 1 April 1999

Clare Evans

The knowledge and experience users and professionals have gained in user involvement since the implementation of community care is leading to development of good practice…

Abstract

The knowledge and experience users and professionals have gained in user involvement since the implementation of community care is leading to development of good practice models, covering strong user‐controlled organisations and redefinition of the professional role in enabling and valuing user expertise. Such user organisations use community development approaches and have a role to play in community care as development agencies and service providers. This model reflects a new social policy agenda and should be part of any initiatives to implement these policies.

Details

Journal of Integrated Care, vol. 7 no. 2
Type: Research Article
ISSN: 1476-9018

Article
Publication date: 1 October 2002

Clare Evans

Service users in Wiltshire have had the opportunity of demonstrating how they could undertake a user‐controlled Best Value review including showing the variety of ways…

Abstract

Service users in Wiltshire have had the opportunity of demonstrating how they could undertake a user‐controlled Best Value review including showing the variety of ways they chose to evaluate the service ‐ in this case Direct Payments. Using the Best Value framework of the four Cs, they compared support services and costings with those in other local authority areas, designed consultation surveys and challenged care managers about their knowledge of the service. Learning from the project has implications for all those involved in social care Best Value reviews and the participation of users.

Details

Journal of Integrated Care, vol. 10 no. 5
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 1 December 2004

Janet Lewis

Abstract

Details

Journal of Integrated Care, vol. 12 no. 6
Type: Research Article
ISSN: 1476-9018

Article
Publication date: 1 October 2002

Peter Thistlethwaite

Abstract

Details

Journal of Integrated Care, vol. 10 no. 5
Type: Research Article
ISSN: 1476-9018

Article
Publication date: 1 August 2000

Don Brand

In the first of two articles forming this Overview of progress in user participation in strategic affairs, the author considers the issues to be addressed in enabling…

Abstract

In the first of two articles forming this Overview of progress in user participation in strategic affairs, the author considers the issues to be addressed in enabling users to be fully involved with the work of the General Social Care Council and the Care Standards Commission.

Details

Journal of Integrated Care, vol. 8 no. 4
Type: Research Article
ISSN: 1476-9018

Abstract

Details

Journal of Integrated Care, vol. 12 no. 6
Type: Research Article
ISSN: 1476-9018

Article
Publication date: 1 December 2000

Peter Beresford

This article considers the key role that service users' perspectives and knowledges now play in the development of community care. It explores their differences from the…

Abstract

This article considers the key role that service users' perspectives and knowledges now play in the development of community care. It explores their differences from the political and professional discourses which they challenge, and argues that their equal treatment is overdue.

Details

Journal of Integrated Care, vol. 8 no. 6
Type: Research Article
ISSN: 1476-9018

Article
Publication date: 13 November 2017

Laura Louise Hammond and Conrad Debney

The purpose of this paper is to provide a viewpoint about why people with dementia should be able to choose Recovery and how this approach might be experienced by them.

Abstract

Purpose

The purpose of this paper is to provide a viewpoint about why people with dementia should be able to choose Recovery and how this approach might be experienced by them.

Design/methodology/approach

This paper addresses some key challenges to accepting Recovery as an approach for people with dementia by making comparisons with people with mental health difficulties. It then discusses key concepts of Recovery using the connectedness, hope, identity, meaning and empowerment framework and how each one might be experienced by the person with dementia.

Findings

The challenges which cause concerns about the applicability of Recovery to people with dementia are shared by people with mental health difficulties, therefore Recovery should be perceived as an approach suitable for anyone regardless of their diagnosis. Recovery for people with dementia could mean: connecting to the self, others and the world to promote feelings of purposefulness; having hope for the here and now; preserving one’s identity; finding meaning in retaining skills and incorporating dementia into one’s life; and, feeling empowered by keeping one’s mind working, adopting a positive attitude, having control and making decisions.

Practical implications

People with dementia can choose to access Recovery, and commonly voiced concerns can be answered and supported with evidence.

Originality/value

This is one of the only papers written to provide an understanding of how Recovery might be experienced by people living with dementia, and directly answers some concerns.

Details

Mental Health and Social Inclusion, vol. 21 no. 5
Type: Research Article
ISSN: 2042-8308

Keywords

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