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1 – 10 of 20Catriona George, Mandy Boyce, Rosalind Evans and Nuno Ferreira
This study aims to investigate the feasibility and acceptability of a new group intervention, using an acceptance and commitment therapy (ACT) approach, developed for dementia…
Abstract
Purpose
This study aims to investigate the feasibility and acceptability of a new group intervention, using an acceptance and commitment therapy (ACT) approach, developed for dementia caregivers. Preliminary data regarding the effectiveness of the intervention was also collected.
Design/methodology/approach
A quasi-experimental design is used involving pre- and post-intervention data from four different intervention sites, along with three-month follow-up data. Data on attendance, attrition and qualitative feedback was also collected as an indication of acceptability. A total of 23 people currently caring for a family member with dementia attended the ACT group intervention for five sessions. Detailed evaluation forms were collected at the end of each group, along with four self-report questionnaires: Zarit Burden Interview, Positive Aspects of Caregiving Scale, Dementia Management Strategies Scale and Experiential Avoidance in Caregiving Questionnaire.
Findings
Findings indicate that the group intervention was feasible and acceptable to caregivers, with subjective change reported in understanding of behavioural changes in the care-recipient, ability to handle negative emotions and valued living. These changes were not reflected in the outcome measures, with only one change reaching statistical significance (reduction in “intolerance of negative thoughts and emotions towards the relative”). Suggestions are made regarding possible alternative outcome measures for future studies to capture participants’ experience more fully, along with potential adaptations and future directions for the intervention.
Originality/value
This study provides preliminary evidence of the acceptability and feasibility of a group therapeutic intervention based on ACT for informal caregivers of dementia.
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Catriona George, Nuno Ferreira, Rosalind Evans and Victoria Honeyman
The purpose of this paper was to systematically review the association between behavioural and psychological symptoms of dementia (BPSD) and the development of carer burden…
Abstract
Purpose
The purpose of this paper was to systematically review the association between behavioural and psychological symptoms of dementia (BPSD) and the development of carer burden. Although this association has been well established in the literature, it is not clear whether there are individual symptoms or clusters of symptoms that are particularly burdensome for carers.
Design/methodology/approach
A systematic review of the available literature was carried out to determine whether any specific symptom or cluster of symptoms was most closely associated with carer burden. In addition, the categorisation of behavioural symptoms, conceptualisations of burden and methods of measurement used were examined and quality of the studies appraised.
Findings
A total of 21 studies measured the association between at least one individual symptom or symptom cluster and carer burden, with all studies finding at least one symptom to be significantly associated with burden. The majority of studies were of fair to good quality. However, there was considerable heterogeneity in focus, analysis, recruitment and measurement of behaviour and burden.
Originality/value
Symptoms, which were found to be significantly associated with carer burden, were aggression/agitation, frontal systems behaviour, disinhibition, disrupted eating and sleeping behaviour, unusual motor behaviour, anxiety and psychotic symptoms. However, because of the heterogeneity of studies, there was insufficient evidence to establish whether any symptoms are more important than others in the development of carer burden. Future focus on clarifying the dimensions of carer burden and the mechanisms by which BPSD impact negatively on carers could inform the development of effective interventions.
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Catriona George and Nuno Ferreira
Behavioural and psychological symptoms of dementia (BPSD) have been well established as factors involved in the development of carer burden. However, it is not clear which…
Abstract
Purpose
Behavioural and psychological symptoms of dementia (BPSD) have been well established as factors involved in the development of carer burden. However, it is not clear which symptoms are most burdensome for carers and which caregiver factors may be involved. This study aims to explore symptoms associated with executive functioning deficits and their impact on three dimensions of carer burden and positive gain. It also aims to discover whether behaviour management strategies used by carers, and their level of experiential avoidance, had an independent impact on these factors.
Design/methodology/approach
A total of 110 dementia caregivers completed five self-report measures as part of a cross-sectional design: the Dysexecutive Questionnaire (DEX), Zarit Burden Interview, Positive Aspects of Caregiving Questionnaire, Dementia Management Strategies Scale and Experiential Avoidance in Caregiving Questionnaire (EACQ).
Findings
Executive functioning deficits (DEX) were found to account for most variance in burden, with DEX subscales impacting differentially on the three dimensions of burden and positive gain. The use of negative management strategies was associated with higher levels of burden, as was Active Avoidant Behaviour (a subscale of the EACQ), whereas positive management strategies were associated with positive gain.
Originality/value
In line with previous findings, symptoms associated with executive functioning deficits were the most significant factor in the development of carer burden. The findings relating to behaviour management strategies and experiential avoidance suggest that these could be potential mediating mechanisms in this relationship. Further research is required to explore this in detail, and to consider implications for targeted carer interventions.
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Gordon Dunsire and George Macgregor
The role, potential and interaction of networked catalogues and collection‐level description have recently been given emphasis in order that efficient resource discovery…
Abstract
The role, potential and interaction of networked catalogues and collection‐level description have recently been given emphasis in order that efficient resource discovery mechanisms, and the effective organisation of such resources, be facilitated within the UK's developing JISC information environment (IE). This article describes the work of CC‐interop, a JISC project, and related projects that inform the development of the IE and its ability to instantiate the functional model of online resource discovery to which JISC aspires. The article reviews the evolution of Z39.50 virtual union catalogue services and collection description services that preceded CC‐interop. The paper also discusses how such work is informing regional information environments, with particular reference to Scotland, and reveals how such local arrangements will benefit the wider JISC IE.
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Kate L. Reid, Annabel L.M. Ahuriri-Driscoll, Catriona R. Mackay, Pauline Barnett and Ann K. Richardson
to provide a bicultural perspective on the views of people who have completed cancer treatment and, of health providers.
Abstract
Purpose
to provide a bicultural perspective on the views of people who have completed cancer treatment and, of health providers.
Design/methodology/approach
Qualitative study using semi-structured interviews with 29 individuals (people who had recently completed cancer treatment and health providers). General inductive analysis was undertaken with all interview data, and a Kaupapa Māori approach was employed with the data from Māori participants.
Findings
Themes for Māori participants are as follows: (1) understanding health information is enhanced by connection and relationship; (2) the “professional” is personal and (3) enduring beyond cancer is “our” responsibility. Themes for non-Māori participants are as follows: (1) from survivorship to living with and beyond cancer; (2) from the hospital to primary care and (3) support for living with and beyond cancer.
Practical implications
Positive relationships, communication and self-determination are important for Māori making the transition from hospital to the community after cancer treatment. Well-coordinated processes and services are vital for supporting transitions from hospital to community for non-Māori living with and beyond cancer.
Originality/value
This research presents the diversity of Māori and non-Māori experiences of living with and beyond cancer, adding to the limited New Zealand literature regarding post-treatment supportive care. This paper is among the first to undertake separate interviews and thematic analyses of Māori and non-Māori experiences, and to report these separately. Determinants of positive survivorship experiences are identified, specifying a central and expanded role for cancer care services.
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MANY and sundry are the worries which fall to the lot of the librarian, and the matter of book‐repair is not the least among them. The very limited book‐fund at the disposal of…
Abstract
MANY and sundry are the worries which fall to the lot of the librarian, and the matter of book‐repair is not the least among them. The very limited book‐fund at the disposal of most public library authorities makes it imperative on the part of the librarian to keep the books in his charge in circulation as long as possible, and to do this at a comparatively small cost, in spite of poor paper, poor binding, careless repairing, and unqualified assistants. This presents a problem which to some extent can be solved by the establishment of a small bindery or repairing department, under the control of an assistant who understands the technique of bookbinding.
A PILGRIMAGE to West Cornwall can be heartily recommended to any librarian in search of rest, fresh air, and complete change from the monotony of town life. Here he will find…
Abstract
A PILGRIMAGE to West Cornwall can be heartily recommended to any librarian in search of rest, fresh air, and complete change from the monotony of town life. Here he will find abundance of interest and novelty in connection with the habits and customs of the ancient Britons still extant, and derive many impressions of pleasure from the magnificent rock scenery with which the coast abounds. Dairy‐farming, tin‐mining, pilchard fishing, druidical monuments, and wild flowers can also be studied with profit; and even Public Libraries, in a condition of arrested development not uncommon in other districts of England. Cornwall is pre‐eminently the county for Public Libraries. Geographically it is remote from the populous parts of England, and the Great‐Western Railway Company, with commendable forethought, have taken enormous pains to maintain this seclusion by a most pitiful and inadequate service of trains. I was once assured by the Public Librarian of Penzance that no thief would ever raid his institution, for the simple reason that it was impossible to get away quick enough to avoid detection ! A place thus difficult to get away from, is manifestly one which requires strong home interests to make it attractive, and, as theatres, music halls, and other light diversions, find little favour in Cornish towns, the Public Library, with its wealth of varied reading, is practically the only after‐dark resource left. But there are other circumstances which make Cornwall an ideal county for a liberal provision of Public Libraries. The decline of the mining industry has driven many of the men away to other centres, such as South Africa, and it is well‐known that, at the present time, more money is coming into the county from exiled sons abroad than is being made locally. There is thus an enormous surplus of that great natural reader— woman—and to her should be offered in profusion plenty of romantic and other reading as a solace and compensation for the loss of her natural companion—man.