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Article
Publication date: 1 January 2000

Abstract

Details

Working with Older People, vol. 4 no. 1
Type: Research Article
ISSN: 1366-3666

Article
Publication date: 1 June 2008

Traci Cascioli, Hasan Al‐Madfai, Paul Oborne and Sue Phelps

This study investigated, by way of interview (n=45), the needs of those caring for a person with dementia and their satisfaction with current services in the Caerphilly County…

Abstract

This study investigated, by way of interview (n=45), the needs of those caring for a person with dementia and their satisfaction with current services in the Caerphilly County Borough of South Wales. Carers reported having the most difficulty coping with the demands on their time and the emotional strain associated with caring. Carers requested more information regarding available services, the diagnosis of dementia and the legal and financial aspects of caring. They also mentioned the need for a night‐sitter service, a 24‐hour helpline, more support groups and more visits from social workers and community psychiatric nurses (CPNs). On the whole, the carers were satisfied with the services provided, although their use of these services was not extensive. However, issues around lack of support, quality and availability of homes and hospitals and poor communications were identified as areas of concern. The findings were welcomed by strategic planners and the information is being used as a basis for developing and improving specific carer support services.

Details

Quality in Ageing and Older Adults, vol. 9 no. 2
Type: Research Article
ISSN: 1471-7794

Keywords

Article
Publication date: 1 December 1998

Penny Banks

The development of a national strategy for carers underlines the importance of making the connections between all the different policies which impinge on carers. This needs to be…

Abstract

The development of a national strategy for carers underlines the importance of making the connections between all the different policies which impinge on carers. This needs to be mirrored at a local level, where there are some moves to embed support to carers within mainstream health and social services. However, achieving positive change for carers' needs not only more coherence about carers' relationship with the whole system of care, but also better ways of monitoring services.

Details

Journal of Integrated Care, vol. 6 no. 6
Type: Research Article
ISSN: 1476-9018

Article
Publication date: 19 April 2022

Lyn Phillipson, Danika Valerie Hall, Keryn Marie Johnson, Elizabeth Cridland, Elaine Fielding, Christine Neville and Helen Hasan

This study aims to describe the development and approach of a theory-informed social marketing intervention that aimed to promote respite for carers of people with dementia…

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Abstract

Purpose

This study aims to describe the development and approach of a theory-informed social marketing intervention that aimed to promote respite for carers of people with dementia. Despite a high need for respite, carers of people with dementia are often low users of available respite services. The reasons for this are complex, including knowledge, attitudinal, behavioural and systemic barriers. In the context of an aging population, effective strategies to support respite use by carers of people with dementia are needed.

Design/methodology/approach

Via formative research, the authors gained an in-depth understanding of a hard-to-reach and vulnerable group (carers of people with dementia). The resulting intervention informed, persuaded and supported carers to rethink the use of respite addressing specific barriers to service use. The intervention was evaluated using a naturalistic effects model.

Findings

Carers of people with dementia who were exposed to community-level campaign activities and also self-selected to take part in tailored coaching showed improvements to their respite knowledge, attitudes and self-efficacy. Intention to use respite and levels of personal gain from caring also increased. In contrast, carers only exposed to informational activities experienced negative changes to their respite beliefs and their sense of role captivity.

Practical implications

Social marketing can be used to support carer respite knowledge, attitudes and service-use behaviours in carers of people with dementia. The case study highlights an untapped role for social marketers to work in partnership with health professionals to support improvements in aged care services.

Originality/value

To the best of the authors’ knowledge, this is the first known social marketing intervention promoting the use of respite to carers of people with dementia. Findings demonstrate that tailored support services are most effective in helping carers navigate and use respite services.

Details

Journal of Social Marketing, vol. 12 no. 4
Type: Research Article
ISSN: 2042-6763

Keywords

Article
Publication date: 1 January 2000

Abstract

Details

Working with Older People, vol. 4 no. 1
Type: Research Article
ISSN: 1366-3666

Article
Publication date: 16 June 2014

Abenet Tsegai and Rebecca Gamiz

The purpose of this paper is to explore the role of carers as coordinators of care in their own right. It outlines how statutory and voluntary agencies can work together to…

1685

Abstract

Purpose

The purpose of this paper is to explore the role of carers as coordinators of care in their own right. It outlines how statutory and voluntary agencies can work together to support carers in this role, yet also help them work towards personal outcomes to sustain their own quality of life. It also proposes that approaches to working with carers can reveal lessons for integration.

Design/methodology/approach

The research analysed data from focus groups and document analysis to examine how carers and professionals experienced two different approaches to engaging with carers: the Midlothian carer ' s assessment and VOCAL ' s outcomes focused approach. From this, several themes emerged which are relevant to the current debate on integration.

Findings

Carers were found to be key co-ordinators of care who play a role in the integration of services. Approaches to working with carers can better enable personal outcomes, and integrate carers as equal partners. In addition, improved integration between services can also improve outcomes for carers.

Research limitations/implications

Approaches to working with carers should be carer and outcome focused, and partnership working can mean that carers feel more empowered and included. This helps to achieve personal outcomes, as well as enhance integrated working between other services. However, differentiation between services might, in places, contribute to better outcomes for people.

Originality/value

This paper shifts the focus of integration to look the role of carers as equal partners, and also illustrates how statutory and voluntary services can work better together, while preserving their distinct identities.

Details

Journal of Integrated Care, vol. 22 no. 3
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 1 June 2004

Diane Seddon, Catherine Robinson, Shirley Bowen and Mari Boyle

This paper presents some of the key findings from a study about supporting carers in employment. It describes the qualitative experiences of family carers for older people who are…

Abstract

This paper presents some of the key findings from a study about supporting carers in employment. It describes the qualitative experiences of family carers for older people who are in paid employment, paying particular attention to their views on assessment and service provision. The perspectives of other key stakeholders, including staff from statutory and independent sector agencies, are also considered. Support for carers in employment is one of the five priority action areas underpinning the National Strategy for Carers (DoH, 1999). However, the findings from this study reveal that carers in employment have a limited profile at strategic level and their specific needs are rarely addressed in mainstream health and social care planning processes. The findings also suggest that assessment and care management practices are failing to support carers in relation to their employment aspirations. The effectiveness of health and social care assessments in identifying and exploring the needs of carers in employment is limited and very few separate carer assessments are completed. Carers' first‐hand experiences of service provision are described. Deficits in current services are identified and examples of good practice are highlighted. The paper concludes by outlining the implications for policy and practice. It is suggested that flexible support, underpinned by partnerships between employers and staff from statutory and independent sector agencies, is the key to supporting carers in employment.

Details

Quality in Ageing and Older Adults, vol. 5 no. 1
Type: Research Article
ISSN: 1471-7794

Keywords

Article
Publication date: 1 April 2008

Emma Miller, Margaret Whoriskey and Ailsa Cook

There is currently much policy emphasis on both partnership working between health and social services in the UK and on the outcomes delivered by services. This article provides…

Abstract

There is currently much policy emphasis on both partnership working between health and social services in the UK and on the outcomes delivered by services. This article provides an account of two consecutive projects centred on these two themes. The first project, at the University of Glasgow, sought to address the lack of evidence about the outcomes delivered to service users by partnerships. Following from this project, the Joint Improvement Team of the Scottish Government commissioned the researchers to develop a toolkit to involve users and unpaid carers in performance management in community care in Scotland. The remit of this second project expanded during 2007 as it became linked with the development of the emerging National Outcomes Framework for community care in Scotland. This article outlines the outcomes‐based piloting work currently under way in Scotland.

Details

Journal of Integrated Care, vol. 16 no. 2
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 10 December 2009

Joy Wales and Steven Pryjmachuk

In the UK, there are around 1.5 million carers of people with mental health problems providing substantial amounts of free care. Despite having a legal right to a ‘carer's…

Abstract

In the UK, there are around 1.5 million carers of people with mental health problems providing substantial amounts of free care. Despite having a legal right to a ‘carer's assessment’, only a minority of mental health carers have had such an assessment. To try and understand why the uptake is so low, we undertook a small (n = 8) qualitative study exploring what mental health staff acting as ‘care co‐ordinators’ thought the barriers to, and facilitators of, carers' assessments might be, and how subsequent practice might be improved.We found that there was some confusion over the definition of ‘carer’ and over who should take responsibility for carer assessments. The main barriers to carers' assessments were the documentation used, the attitudes of staff (especially managers) and the fact that the needs of mental health carers often differed from those caring for people with a physical disability. Practice could be improved through: clarifying the definition of ‘carer’; education and training; redesigning the documentation; dovetailing service user and carer needs assessments; and through offering a wider choice of evidence‐based services as assessment outcomes. Improvements are unlikely to be successful, however, without the active support, expertise and engagement of carers.

Details

Mental Health Review Journal, vol. 14 no. 4
Type: Research Article
ISSN: 1361-9322

Keywords

Article
Publication date: 11 December 2009

Karan Jutlla and Neil Moreland

While personalisation and service choice remains a central plank of the Labour Government's policies in health and social care, there is a growing evidence base confirming that…

Abstract

While personalisation and service choice remains a central plank of the Labour Government's policies in health and social care, there is a growing evidence base confirming that ethnic minority groups, are disadvantaged as service users in the UK. Building on some baseline data collected in 2000 and 2003/04, our recent research (Jutlla & Moreland, 2007) has reaffirmed the difficulties that Asian carers have in accessing services when caring for a relative with dementia.While such access data is important, we wish to move beyond the demographic aspects to consider the existential realities (the ontology) of the lives and cultures of those in minority ethnic groups. This paper consequently discusses the diversity and complexity of migration patterns among the Sikh community living in Wolverhampton. The paper conceptualises some of the ways in which different migration experiences and the realities of daily life influence the perceptions, experiences and patterns of care among migrant Sikh carers in Wolverhampton caring for an older person with dementia. The paper thus explores the thesis that the Sikh community is not a homogeneous group; and that the diversity and differences within the Sikh community can have important implications for care. Taking a biographical narrative approach to fieldwork, the relevant factors to be considered include: the carer's country of origin; their migration route and reasons for migration; their age at migration and the cultural experiences of the carers and their communities both in the UK and India.

Details

Ethnicity and Inequalities in Health and Social Care, vol. 2 no. 4
Type: Research Article
ISSN: 1757-0980

Keywords

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