Search results
1 – 10 of over 5000THE FIRST NATIONAL STRATEGY for carers promises a new direction and new emphasis in policy, with measures which will enhance the quality of life for all carers. The strategy does…
Abstract
THE FIRST NATIONAL STRATEGY for carers promises a new direction and new emphasis in policy, with measures which will enhance the quality of life for all carers. The strategy does attempt to address the current gap between policy and carers' experience, but many questions remain about its coherence with other policies and implementation locally. Criteria are suggested for evaluating the success of the strategy and its impact on carers.
Bhathika D. Perera and Penny J. Standen
Carers play a vital role in looking after people with intellectual disabilities (ID). Caring role can be stressful and challenging in nature. Carers use various coping strategies…
Abstract
Purpose
Carers play a vital role in looking after people with intellectual disabilities (ID). Caring role can be stressful and challenging in nature. Carers use various coping strategies to deal with stressors. The purpose of this paper is to explore coping strategies of carers looking after people with ID and dementia.
Design/methodology/approach
Qualitative methodology was used to explore coping strategies. Focus groups and face-to-face interviews were carried out. These interviews were transcribed and analysed using thematic analysis.
Findings
Nine interviews with carers (six paid carers and three family carers) and two focus groups with nursing staff looking after people with ID were carried out. Three key themes of “Narrative”, “Strategy toolbox” and “Compartmentalisation” emerged from analysis. Narrative and strategy took box were further subthemed. Carers had narratives about them and the person they look after. These “narratives” helped them to deal with day to day stressors. They also carried a “strategy toolbox”, which they used when they were in stressful situations. Compartmentalisation helped them to separate their personal life from work life as a carer.
Originality/value
Understanding carers’ coping strategies is important when planning services to help carers who play an important role in our society. Professionals can support carers to understand and improve their existing coping skills and help them to thrive in their role as carers.
Details
Keywords
Catriona George and Nuno Ferreira
Behavioural and psychological symptoms of dementia (BPSD) have been well established as factors involved in the development of carer burden. However, it is not clear which…
Abstract
Purpose
Behavioural and psychological symptoms of dementia (BPSD) have been well established as factors involved in the development of carer burden. However, it is not clear which symptoms are most burdensome for carers and which caregiver factors may be involved. This study aims to explore symptoms associated with executive functioning deficits and their impact on three dimensions of carer burden and positive gain. It also aims to discover whether behaviour management strategies used by carers, and their level of experiential avoidance, had an independent impact on these factors.
Design/methodology/approach
A total of 110 dementia caregivers completed five self-report measures as part of a cross-sectional design: the Dysexecutive Questionnaire (DEX), Zarit Burden Interview, Positive Aspects of Caregiving Questionnaire, Dementia Management Strategies Scale and Experiential Avoidance in Caregiving Questionnaire (EACQ).
Findings
Executive functioning deficits (DEX) were found to account for most variance in burden, with DEX subscales impacting differentially on the three dimensions of burden and positive gain. The use of negative management strategies was associated with higher levels of burden, as was Active Avoidant Behaviour (a subscale of the EACQ), whereas positive management strategies were associated with positive gain.
Originality/value
In line with previous findings, symptoms associated with executive functioning deficits were the most significant factor in the development of carer burden. The findings relating to behaviour management strategies and experiential avoidance suggest that these could be potential mediating mechanisms in this relationship. Further research is required to explore this in detail, and to consider implications for targeted carer interventions.
Details
Keywords
Awareness about the role of carers in society and their contribution to the UK economy has been catapulted to the top of the political agenda in recent months following the launch…
Abstract
Awareness about the role of carers in society and their contribution to the UK economy has been catapulted to the top of the political agenda in recent months following the launch of the first ever Carers' Strategy. Writing at the time of the document's publication, Imelda Redmond looks in more detail at the make up of this six‐millionstrong group and explains what her organisation is doing to further promote its rights.
The development of a national strategy for carers underlines the importance of making the connections between all the different policies which impinge on carers. This needs to be…
Abstract
The development of a national strategy for carers underlines the importance of making the connections between all the different policies which impinge on carers. This needs to be mirrored at a local level, where there are some moves to embed support to carers within mainstream health and social services. However, achieving positive change for carers' needs not only more coherence about carers' relationship with the whole system of care, but also better ways of monitoring services.
Diane Seddon, Catherine Robinson, Shirley Bowen and Mari Boyle
This paper presents some of the key findings from a study about supporting carers in employment. It describes the qualitative experiences of family carers for older people who are…
Abstract
This paper presents some of the key findings from a study about supporting carers in employment. It describes the qualitative experiences of family carers for older people who are in paid employment, paying particular attention to their views on assessment and service provision. The perspectives of other key stakeholders, including staff from statutory and independent sector agencies, are also considered. Support for carers in employment is one of the five priority action areas underpinning the National Strategy for Carers (DoH, 1999). However, the findings from this study reveal that carers in employment have a limited profile at strategic level and their specific needs are rarely addressed in mainstream health and social care planning processes. The findings also suggest that assessment and care management practices are failing to support carers in relation to their employment aspirations. The effectiveness of health and social care assessments in identifying and exploring the needs of carers in employment is limited and very few separate carer assessments are completed. Carers' first‐hand experiences of service provision are described. Deficits in current services are identified and examples of good practice are highlighted. The paper concludes by outlining the implications for policy and practice. It is suggested that flexible support, underpinned by partnerships between employers and staff from statutory and independent sector agencies, is the key to supporting carers in employment.
Details
Keywords
Joy Watkins, Lorely Stanton, Barry Saunders, Gillian Lasocki, Pat Chung and Penny Hibberd
This paper aims to discuss professionals working in partnership with family carers and the importance of learning from their experiences in designing and delivering support to…
Abstract
Purpose
This paper aims to discuss professionals working in partnership with family carers and the importance of learning from their experiences in designing and delivering support to themselves and people with dementia.
Design/methodology/approach
Working in partnership with carers is a key goal of policy and practice. This paper demonstrates how this can work in practice.
Findings
Key issues are synthesized, drawing on the stories of three carers who shared their stories as part of the original conference workshop on which the paper is based.
Originality/value
Lessons for professionals about the nature of the dementia caring journey and dimensions of good practice are highlighted.
Details