Search results

1 – 10 of over 4000
Article
Publication date: 17 March 2020

Watchara Tabootwong and Frank Kiwannuka

Elderly patients requiring prolonged mechanical ventilation are treated with a tracheostomy. Oftentimes, the family caregivers need to participate in the care for elderly patients…

189

Abstract

Purpose

Elderly patients requiring prolonged mechanical ventilation are treated with a tracheostomy. Oftentimes, the family caregivers need to participate in the care for elderly patients with a tracheostomy during hospitalization. Therefore, this paper was conducted to acknowledge what family caregivers experience while caregiving for hospitalized elderly patients with a tracheostomy.

Design/methodology/approach

This literature review identifies family caregiver participation in caregiving for the elderly patient, the impact of caregiving, and the needs of family caregivers.

Findings

Family caregivers participate in the planning and provision of care to elderly patients. Furthermore, they also collaborate in the therapeutic process for elderly patients as well. Albeit the former sentiments, they experience physical, psychological, social and financial consequences of caregiving. It has been revealed that during the process of caring for their loved ones, family caregivers often experience poor sleep quality, strain, reduction in social interaction and insufficient income. Thus, health-care professionals should support and provide care for the needs of family caregivers. This can be achieved through providing information on prognosis, the care plan, emotional support and collaboration during the therapeutic process to provide better care for elderly patients with a tracheostomy. In addition, family caregivers’ relatives can also provide financial support and rotation of caregiving schedules to avoid burnout.

Originality/value

The paper indicates that family caregivers experience the impacts of caregiving. They should be supported by health-care professionals and their relatives.

Details

Working with Older People, vol. 24 no. 2
Type: Research Article
ISSN: 1366-3666

Keywords

Article
Publication date: 9 April 2024

M A Shariful Amin, Vess L. Johnson, Victor Prybutok and Chang E. Koh

The purpose of this research is to propose and empirically validate a theoretical framework to investigate the willingness of the elderly to disclose personal health information…

Abstract

Purpose

The purpose of this research is to propose and empirically validate a theoretical framework to investigate the willingness of the elderly to disclose personal health information (PHI) to improve the operational efficiency of AI-integrated caregiver robots.

Design/methodology/approach

Drawing upon Privacy Calculus Theory (PCT) and the Technology Acceptance Model (TAM), 274 usable responses were collected through an online survey.

Findings

Empirical results reveal that trust, privacy concerns, and social isolation have a direct impact on the willingness to disclose PHI. Perceived ease of use (PEOU), perceived usefulness (PU), social isolation, and recognized benefits significantly influence user trust. Conversely, elderly individuals with pronounced privacy concerns are less inclined to disclose PHI when using AI-enabled caregiver robots.

Practical implications

Given the pressing need for AI-enabled caregiver robots due to the aging population and a decrease in professional human caregivers, understanding factors that influence the elderly's disclosure of PHI can guide design considerations and policymaking.

Originality/value

Considering the increased demand for accurate and comprehensive elder services, this is the first time that information disclosure and AI-enabled caregiver robot technologies have been combined in the field of healthcare management. This study bridges the gap between the necessity for technological improvement in caregiver robots and the importance of transparent operational information by disclosing the elderly's willingness to share PHI.

Article
Publication date: 22 May 2023

Neha Gupta, Manya Khanna, Rashi Garg, Vedantika Sethi, Shivangi Khattar, Purva Tekkar, Shwetha Maria, Muskan Gupta, Akash Saxena, Parul Gupta and Sara Ann Schuchert

This study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are…

123

Abstract

Purpose

This study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences.

Design/methodology/approach

In this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I© intervention model and its contributions to the parent/caregiver experience.

Findings

Findings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues.

Originality/value

This exploration reveals insights about the roles of societal structures and the caregiving journey.

Details

Advances in Autism, vol. 9 no. 3
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 12 May 2023

Daniel James Acton, Sujeet Jaydeokar and Steven Jones

Education and training is vital in improving age-related care provisions. However, a lack of awareness and understanding of dementia could be a factor in meeting the age-related…

Abstract

Purpose

Education and training is vital in improving age-related care provisions. However, a lack of awareness and understanding of dementia could be a factor in meeting the age-related needs of people. This paper aims to examine the impact dementia education has on caregivers’ confidence to provide person-centred care for people with intellectual disability and identifies additional training needs.

Design/methodology/approach

A systematic scoping review was completed using preferred reporting items for systematic reviews and meta-analyses to guide the process of mapping existing evidence of dementia education and training programmes available to caregivers of people with intellectual disability.

Findings

A search of five electronic databases identified 11 articles that reported on the role of dementia education in improving the knowledge of caregivers in effectively delivering the age-related care. Findings suggest that improved training provision is needed to support early diagnosis and increase caregivers’ confidence in meeting the physical and psychological needs of older adults with intellectual disability.

Originality/value

This review contributes to the literature by identifying the value of and need for continued development in dementia education and training to improve person-centred dementia care.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 17 no. 3
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 20 March 2023

Chisom Joy Mbadugha, Ngozi Phoebe Ogbonnaya, Peace Njideka Iheanacho, Ngozi Joy Omotola, Pleasure Nwakaego Ogbonna and Chinenye Juliet Anetekhai

Schizophrenia, a chronic mental disorder, poses enormous threat to the individual, family and society. The advent of deinstitutionalization of the mentally ill transferred the…

Abstract

Purpose

Schizophrenia, a chronic mental disorder, poses enormous threat to the individual, family and society. The advent of deinstitutionalization of the mentally ill transferred the burden of care to families especially close relatives. Few studies have described the families' subjective views in this context. Hence, this study aimed to explore impacts of caregiving and coping strategies for family caregivers of patients with schizophrenia in Enugu, South East Nigeria.

Design/methodology/approach

A descriptive qualitative design was employed, and 14 family caregivers of individuals with schizophrenia attending federal neuropsychiatric hospital Enugu were purposively selected. A semi-structured interview guide was used to generate information, and the transcribed data were content analyzed using a thematic approach.

Findings

Three major themes and 16 subthemes were derived to reflect the perceived impact of caregiving and coping strategies of family caregivers, which include burden of care (physical-self neglect, ill health, sleep deprivation; psychological-gross irritability, ruminations; social-stigmatization, social restrictions, diminished connections, reduced productivity); positive aspects (heightened understanding; empathetic attitude, strengthened ties) and adaptive resources (acceptance, optimism, social support, spiritual devotion).

Originality/value

Family caregivers of individuals with schizophrenia experience bio-psychosocial burden as a result of caregiving. Coping with challenges of caregiving can prevent distress and burnout. Hence, there is need for mental health professionals to recognize caregivers as person in need of emotional and practical support and care for the mentally ill in the context of a family-centered approach.

Details

Qualitative Research Journal, vol. 23 no. 3
Type: Research Article
ISSN: 1443-9883

Keywords

Open Access
Article
Publication date: 16 November 2022

Elsie Yan, Haze K.L. Ng, Rongwei Sun, Daniel W.L. Lai, Sheung-Tak Cheng, Vivian W.Q. Lou, Daniel Y.T. Fong and Timothy Kwok

This study aims to explore the risk and protective factors of abuse on older adults by family caregivers, with a special focus on the protective role of caregiver resilience in…

1727

Abstract

Purpose

This study aims to explore the risk and protective factors of abuse on older adults by family caregivers, with a special focus on the protective role of caregiver resilience in elder abuse.

Design/methodology/approach

This cross-sectional survey was conducted on a purposive sample of 600 family caregivers of community-dwelling older adults in Hong Kong (mean age = 71.04 and female = 67.2%). Caregivers reported in a guided interview about elder abuse behaviours, caregiver burden, care recipients’ agitated behaviours, caregiver resilience, self-efficacy, social support and basic demographic characteristics. Hierarchical linear regression analyses were conducted to examine the predictors of different forms of elder abuse.

Findings

Caregiver resilience was predictive of lower levels of verbal abuse, physical abuse, injury and financial exploitation but not potentially harmful behaviour (PHB). Social support was independent with all forms of elder abuse, while self-efficacy predicted greater physical abuse after the adjustment of confounding variables. Caregiver burden and agitated behaviours by care recipients remained as significant risk factors in the final models when protective factors were considered.

Research limitations/implications

This study extends current knowledge on the protecting role of resilience in elder abuse in family caregiving. Mixed findings revealed on social support and self-efficacy also highlight the complexity of the prediction of caregiver abuse. Further research should address this area.

Practical implications

The findings of this study warrant the inclusion of caregiver resilience as a key component in developing interventions to prevent elder abuse. Addressing caregiver burden and agitated behaviours have the potential in preventing elder abuse.

Social implications

The findings raise awareness of the importance of supporting caregivers in the community to prevent elder abuse.

Originality/value

Research concerning the protective factors of elder abuse is in a preliminary stage. To the best of the authors’ knowledge, this study is among the first which successfully demonstrates the protective role of resilience in caregiver abuse on older adults. The findings shed invaluable light on the design of effective interventions.

Details

The Journal of Adult Protection, vol. 24 no. 5/6
Type: Research Article
ISSN: 1466-8203

Keywords

Article
Publication date: 15 September 2022

Sirinthip Nimitphuwadon, Pornchai Jullamate, Naiyana Piphatvanitcha, Sivasankari Nadarajan and Watchara Tabootwong

This study aims to examine the factors predicting burden among the male caregivers of older adults with stroke.

Abstract

Purpose

This study aims to examine the factors predicting burden among the male caregivers of older adults with stroke.

Design/methodology/approach

This was a descriptive cross-sectional study. A simple random sampling technique was used to recruit 98 male caregivers in the outpatient department’s neurological clinic, at Banphaeo General Hospital. Data was collected using six questionnaires: the demographic questionnaire, the center for epidemiologic studies depression scale, the perceived health status interview form, the caregiver and patient relationship interview form, the Barthel ADL index and the Zarit burden interview. Descriptive statistics and stepwise multiple regression analysis were used for data analysis.

Findings

The male caregivers of older adults with stroke had a mild to moderate level of burden. Factors such as depression of caregivers and activities of daily living of older adults predicted the burden among male caregivers, explaining 53.6% of the variance. The findings imply that nurses can plan new approaches and interventions to alleviate the burden of male caregivers by reducing their depression levels and encouraging activities of daily living in the older adults. In addition, effective programs can be developed to provide informational support to caregivers for reducing their burden level.

Originality/value

Male caregivers with depressive symptoms had an increased caregiving burden. Therefore, health-care professionals should support and formulate guidelines to reduce the burden of caregiving among the male caregivers by considering predictive factors.

Details

Working with Older People, vol. 27 no. 3
Type: Research Article
ISSN: 1366-3666

Keywords

Article
Publication date: 1 January 2006

Ami R. Moore, Mark Vosvick and Foster K. Amey

This study examined factors associated with depression in 125 informal caregivers to adults living with HIV/AIDS in Lomé, Togo.

1558

Abstract

Purpose

This study examined factors associated with depression in 125 informal caregivers to adults living with HIV/AIDS in Lomé, Togo.

Methodology

Each caregiver completed a questionnaire that assessed primary and secondary stressors, social support and depression. Most of the participants were women (78 per cent), married (53 per cent), and had been giving care to nuclear family members (63 per cent) for about 11 months. OLS regression was used to examine the association of primary and secondary stressors with self‐reported depression.

Findings

The analysis showed that caregiving demand, role captivity, and job conflict were positively associated with self‐reported depression. This suggests that work‐related strains and role strains were associated with depression levels among caregivers in our sample.

Research limitations/implications

The study is based on a small convenience sample of volunteers and this may limit the generalisability of the results.

Practical implications

This knowledge can benefit HIV/AIDS service providers in counselling caregivers who need to maintain a healthy quality of life and well‐being for their difficult and challenging task.

Originality/value

This paper contributes to knowledge on caregiving role to people with chronic illnesses by incorporating an understudied population into the knowledge base.

Details

International Journal of Sociology and Social Policy, vol. 26 no. 1/2
Type: Research Article
ISSN: 0144-333X

Keywords

Article
Publication date: 22 February 2021

Eman Al-Zyoud, Mahmoud Maharmeh and Muayyad Ahmad

This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver…

570

Abstract

Purpose

This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being.

Design/methodology/approach

The study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews.

Findings

Four themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of family caregivers was different from their experiences with other chronic illnesses.

Originality/value

The family caregivers experience new life when providing care to their patients with Alzheimer's. The impact of the process of caregiving on whole life appeared in both positive and negative aspects. The perception and awareness of family caregivers toward Alzheimer’s disease were poor.

Details

Working with Older People, vol. 25 no. 2
Type: Research Article
ISSN: 1366-3666

Keywords

Open Access
Article
Publication date: 15 November 2018

Decha Tamdee, Patrapan Tamdee, Chieko Greiner, Waraporn Boonchiang, Nahoko Okamoto and Tokiko Isowa

The family caregivers play an important role in the good quality of life for the elderly, but most of them can easily have an emotional and psychological effect on caregiving. The…

3671

Abstract

Purpose

The family caregivers play an important role in the good quality of life for the elderly, but most of them can easily have an emotional and psychological effect on caregiving. The purpose of this paper is to explore the correlation between conditions of caring for the elderly in the family and caregiver stress in a community setting, Chiang Mai Province, Thailand.

Design/methodology/approach

A cross-sectional exploratory descriptive research was conducted in Ban Klang Subdistrict, San Pa Tong District, Chiang Mai Province. Simple random sampling was used to collect data by using a structured interview via a questionnaire with 103 elderly caregivers. The χ2 test was used to explain the conditions related to stress as being a caregiver.

Findings

Most of the caregivers were female and still in good health, but at the same time, underwent little stress. However, they did not receive any training beforehand for taking care of the elderly but mainly done by experience, relationship and gratitude. The conditions correlated with stress as being a caregiver were health status of caregivers, confidence of care, the relationship between caregiver and elderly person, and economic burden of care.

Originality/value

A necessary resource such as body of knowledge in elderly caregiving, long-term care system at the community level and social support from family and intimate persons will encourage confidence in taking care of the elderly in the family and also relieve caregivers’ stress.

Details

Journal of Health Research, vol. 33 no. 2
Type: Research Article
ISSN: 2586-940X

Keywords

1 – 10 of over 4000