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Article
Publication date: 11 July 2023

Patricia J. Goldsmith

HR leaders and corporate benefits managers must balance organizational costs with decisions about which new tools and treatments will be covered by their employee health insurance…

Abstract

Purpose

HR leaders and corporate benefits managers must balance organizational costs with decisions about which new tools and treatments will be covered by their employee health insurance plans. Getting it right can mean the difference between life and death for cancer patients. Most HR leaders, however, are not experts in cancer treatment and do not know how to make sure their plan benefits do not create roadblocks to treatment.

Design/methodology/approach

A total of 295 people who were diagnosed with cancer from 2019 to 2022 participated in the 2023 CancerCare Biomarker Survey, which was conducted in January 2023.

Findings

CancerCare’s 2023 survey of cancer patients found that biomarker testing helped doctors tailor therapy for nearly all the patients (93%) whose cancers were tested over the past three years. Two in 10 cancer patients (20%) avoided unnecessary chemotherapy and/or radiation and one in 10 (10%) became eligible for a clinical trial because of biomarker testing.

Research limitations/implications

Biomarker testing is a necessary tool in the advancing world of precision cancer treatment. Despite the significant and demonstrable benefits to surveyed patients, three out of 10 respondents (29%) who received biomarker testing did not have the test covered by their insurance. Some survey respondents reported that biomarker test coverage was originally denied and they had to fight to get it covered. Others had to find ways to pay out-of-pocket or seek financial assistance to cover the cost of the testing.

Practical implications

Unfortunately, health insurance plans often limit cancer patients’ access to recommended biomarker testing, impose burdensome prior authorization (PA) protocols or require unaffordable cost-sharing, which can prevent or delay cancer patients’ access to optimal treatments. PA, a significant source of roadblocks to timely testing and treatment, was required by a quarter (25%) of the cancer patients surveyed.

Originality/value

Biomarker testing is increasingly a health care equity issue and there are significant gaps in the rate of biomarker testing between black and white lung and colorectal cancer patients, which can lead to disparities in clinical trial participation and hinder access to the most effective treatments. A key way to address these barriers is to broaden insurance coverage of biomarker testing, as recommended by medical experts.

Details

Strategic HR Review, vol. 22 no. 4
Type: Research Article
ISSN: 1475-4398

Keywords

Book part
Publication date: 6 August 2018

Yuchen Ren and Xiaojing An

Purpose: The issue of whether participation in online peer-support communities has positive or negative impacts on the psychological adjustment of cancer patients warrants further

Abstract

Purpose: The issue of whether participation in online peer-support communities has positive or negative impacts on the psychological adjustment of cancer patients warrants further explorations from new perspectives. This research investigates the role of personality traits in moderating the impact of online participation on the psychological adjustment of cancer patients in terms of their general psychological well-being and cancer-specific well-being.

Methodology: Study participants consisted of adults diagnosed with leukemia. Questionnaires were collected from 111 participants in two leukemia-related forums in China, Baidu Leukemia Community and Bloodbbs. Information regarding the personality traits, online participation, and psychological adjustment were collected using an online questionnaire. A linear regression model was used to test the moderation effect of personality traits on the relationship between online participation and psychological adjustment.

Findings: The main effect of participation in online support communities on psychological adjustment was not statistically significant. Importantly, two personality traits (i.e., emotional stability and openness to experience) moderated the relationship between online participation and psychological adjustment to cancer. Leukemia patients with high emotional stability and high openness to experience reported better psychological adjustment as they participated more in the online community. However, this was not the case for patients with low stability and low openness, who reported worse psychological adjustment as their participation in the online support community increased.

Value: This study introduces two personality moderators into the discussion of how participation in online support communities influences the lives of cancer patients. The moderation effects help to explain why there have been contradictions in the findings of previous studies. In addition, this study adds to the current literature on online support communities as little research on this topic has been conducted outside of the US and Europe. Practically, this study not only highlights the need to evaluate the personality traits of patients who are recommended to participate in online communities, but also underlines the necessity of intervention in these communities.

Details

eHealth: Current Evidence, Promises, Perils and Future Directions
Type: Book
ISBN: 978-1-78754-322-5

Keywords

Article
Publication date: 20 July 2010

Muayyad M. Ahmad, Jafar A. Alasad and Hani Nawafleh

The aim of this study is to evaluate the quality of life of patients with different types of cancer in Jordan and its relationship with nursing care.

793

Abstract

Purpose

The aim of this study is to evaluate the quality of life of patients with different types of cancer in Jordan and its relationship with nursing care.

Design/methodology/approach

An exploratory approach utilizing cross‐sectional design with a structured questionnaire, administered to patients face‐to‐face, with specific questions about demographic and health status and two standardized scales: Patients Satisfaction with Nursing Scale (NSNS), and Function of Living Index‐Cancer (FLIC) were used. The study sample comprised 156 patients with cancer who were hospitalized in two governmental hospitals in Amman and Karak and two university‐based hospitals in Amman and Irbid cities.

Findings

The sample of the study showed that the types of cancer distribution were close to the cancer distribution among the Jordanian population. The median age of the sample was 47 years with a range between 18 years and 80 years. Nearly two‐thirds of the participants perceived their current health as good. All variables in the regression equation (satisfaction with nursing care, health perception now, health in comparison with one year ago, and gender) have significantly explained a considerable amount of variance in the cancer patients' quality of life.

Research limitations/implications

Using a quantitative approach alone to measure QoL is not sufficient to reflect all dimensions of a subjective phenomenon such as QoL. The study did not differentiate between patients according to severity of cancer and type of treatment.

Practical implications

Providing proper nursing care improves cancer patients' quality of life.

Originality/value

This study stemmed from: the assessing and identifying predictors of quality of life (QoL) as perceived by patients with cancer and not by the care‐providers; and highlighting the positive effect of nursing care on QoL for cancer patients.

Details

Leadership in Health Services, vol. 23 no. 3
Type: Research Article
ISSN: 1751-1879

Keywords

Article
Publication date: 14 November 2008

Jan Marco Leimeister, Karin Schweizer, Stefanie Leimeister and Helmut Krcmar

The purpose of this paper is to explore whether online communities meet their potential of providing environments in which social relationships can be readily established to help…

2780

Abstract

Purpose

The purpose of this paper is to explore whether online communities meet their potential of providing environments in which social relationships can be readily established to help patients cope with their disease through social support. The paper aims to develop and test a model to examine antecedents of the formation of virtual relationships of cancer patients within virtual communities (VCs) as well as their effects in the form of social assistance.

Design/methodology/research

Data were collected from members of virtual patient communities in the German‐speaking internet through an online survey to which 301 cancer patients responded. The data were analyzed with partial least square (PLS) structural equation modeling.

Findings

Virtual relationships for patients are established in VCs and play an important role in meeting patients' social needs. Important determinants for the formation of virtual relationships within virtual communities for patients are general internet usage intensity (active posting vs lurking) and the perceived disadvantages of CMC. The paper also found that virtual relationships have a strong effect on virtual support of patients; more than 61 per cent of the variance of perceived social assistance of cancer patients was explained by cancer‐related VCs. Emotional support and information exchange delivered through these virtual relationships may help patients to better cope with their illness.

Research limitations/implications

In contrast to prior research, known determinants for the formation of virtual relationships (i.e. marital status, educational status, gender, and disease‐related factors such as the type of cancer as control variables, as well as general internet usage motives, and perceived advantages of CMC as direct determinants) played a weak role in this study of German cancer patients. Studies on other patient populations (i.e. patients with other acute illnesses in other cultures) are needed to see if results remain consistent.

Practical implications

Participants and administrators of patient VCs have different design criteria for the improvement of VCs for patients (e.g. concerning community management, personal behaviour and the usage of information in online communities). Once the social mechanisms taking place in online communities are better understood, the systematic redesign of online communities according to the needs of their users should be given priority.

Originality/value

Little research has been conducted examining the role of VCs for social relationships and social networks in general and for patients in particular. Antecedents and effects of virtual social relationships of patients have not been sufficiently theoretically or empirically researched to be better understood. This research combines various determinants and effects of virtual relationships from prior related research. These are integrated into a conceptual model and applied empirically to a new target group, i.e. VCs for patients.

Details

Information Technology & People, vol. 21 no. 4
Type: Research Article
ISSN: 0959-3845

Keywords

Article
Publication date: 3 November 2020

Yasemın Özyer and Safiye Yanmış

This review, which was created specifically for cancer care by reviewing the literature, was prepared to provide suggestions for determining the current difficulties in cancer

Abstract

Purpose

This review, which was created specifically for cancer care by reviewing the literature, was prepared to provide suggestions for determining the current difficulties in cancer care during COVID-19 outbreak and managing these difficulties. It is thought that this review can contribute to the identification of deficiencies related to the subject, to create interest in this issue in our country and in the world and to guide patients in the care during the COVID-19 pandemic process.

Design/methodology/approach

The literature search was carried out using the following electronic seven databases. Search terms used included: “COVID-19”, “management of cancer care” and “cancer care”. Articles meeting the following criteria were included in the current review: articles published in English, articles published in peer-reviewed journals and articles and guidelines published in 2020, articles suggesting management of cancer care during the COVID-19 outbreak.

Findings

The findings suggest that new guidelines need to be created to assess the level of problems in cancer treatment and in hospital, to respond appropriately with the best available resources during COVID-19 outbreak.

Originality/value

This paper seeks to provide suggestions for determining the current difficulties in cancer care during COVID-19 outbreak and managing these difficulties. By doing so, it is believed the suggestions presented will contribute significantly to the quality of cancer care during COVID-19 outbreak.

Details

International Journal of Emergency Services, vol. 10 no. 1
Type: Research Article
ISSN: 2047-0894

Keywords

Article
Publication date: 11 November 2014

Shih-chuan Chen

– The purpose of this paper is to analyse the information needs of family caregivers of cancer patients. Information sources used by the caregivers were also examined.

1990

Abstract

Purpose

The purpose of this paper is to analyse the information needs of family caregivers of cancer patients. Information sources used by the caregivers were also examined.

Design/methodology/approach

We interviewed 15 family caregivers (nine females, six males) in Taiwan for this study. The participants were aged from 23 to 67 years, and all except two had attained college or higher degrees. Their relationships with patients included spousal, parental, and that of son or daughter.

Findings

Family caregivers’ information needs varied along the cancer journey, and they used various information sources to satisfy these needs. Demographic variables affected the information-seeking behaviour of the family caregivers.

Originality/value

The majority of studies on this topic have been based in western countries. This paper reveals the importance of considering cultural factors. The findings can assist researchers in gaining a greater understanding of the information-seeking behaviour of family caregivers of cancer patients worldwide.

Details

Aslib Journal of Information Management, vol. 66 no. 6
Type: Research Article
ISSN: 2050-3806

Keywords

Book part
Publication date: 4 October 2012

Marit Kristine Ådland and Marianne Lykke

Purpose – The purpose of this chapter is to explore whether and how social tagging can be useful in an information web site for cancer patients and their…

Abstract

Purpose – The purpose of this chapter is to explore whether and how social tagging can be useful in an information web site for cancer patients and their relatives.

Methodology/approach – Three studies have been carried out in order to investigate the research questions. First, we reviewed and analyzed literature about cancer patients’ information needs and seeking behavior, and about social tagging and patient terminology. Second, we analyzed tags applied to blog postings at Blogomkraeft.dk, a blog site at the Danish information web site Cancer.dk. The tags were compared with the formal browsing structure of Cancer.dk. Results from the two studies were used to develop a prototype for social tagging at Cancer.dk. Thus third, we evaluated the prototype in a usability study.

Findings – We found that tags have the potential to describe and provide access to web site content from the users’ perspective and language use. Social tags may be a means to bridge between scientific viewpoints and terminology and everyday problems and vocabulary. Tags at Blogomkraeft.dk are mainly factual, often detailed, and do not cover as many functions as tags in more general bookmarking systems. An important finding is that some tags seemed to add to and supplement the content instead of factually describing the content of a blog posting. The usability test showed that our test persons liked the tagging feature.

Social implications – Tagging features give the public an opportunity to apply their own terms to documents, reflecting their own model of the current topic. Tags may furthermore function as colloquial lead-in terms from users’ search formulations at search engines such as Google to the domain-specific, tailored cancer web site.

Originality/value – Unlike most research on social tagging so far, we investigate tagging in a domain-specific setting, how tags can improve the interaction and communication between layman users and domain experts in an information web site within health care.

Details

Social Information Research
Type: Book
ISBN: 978-1-78052-833-5

Keywords

Book part
Publication date: 23 October 2003

Erica S Breslau

The sequence of stress, distress and somatization has occupied much of the late twentieth-century psychological research. The anatomy of stress can be viewed from interactional…

Abstract

The sequence of stress, distress and somatization has occupied much of the late twentieth-century psychological research. The anatomy of stress can be viewed from interactional and hybrid theories that suggest that the individual relates with the surroundings by buffering the harmful effects of stressors. These acts or reactions are called coping strategies and are designed as protection from the stressors and adaptation to them. Failure to successfully adapt to stressors results in psychological distress. In some individuals, elevated levels of distress and failed coping are expressed in physical symptoms, rather than through feelings, words, or actions. Such “somatization” defends against the awareness of the psychological distress, as demonstrated in the psychosocial literature. The progression of behavior resulting from somatic distress moves from a private domain into the public arena, involving an elaborate medicalization process, is however less clear in sociological discourse. The invocation of a medical diagnosis to communicate physical discomfort by way of repeated use of health care services poses a major medical, social and economic problem. The goal of this paper is to clarify this connection by investigating the relevant literature in the area of women with breast cancer. This manuscript focuses on the relationship of psychological stress, the stress response of distress, and the preoccupation with one’s body, and proposes a new theoretical construct.

Details

Gender Perspectives on Health and Medicine
Type: Book
ISBN: 978-1-84950-239-9

Article
Publication date: 23 June 2022

Happyness Amani Kisighii, Jofrey Raymond and Musa Chacha

The lack of food-based dietary guidelines for managing cancer among hospitalized patients has led to an increasing economic burden on the government and families in low- and…

Abstract

Purpose

The lack of food-based dietary guidelines for managing cancer among hospitalized patients has led to an increasing economic burden on the government and families in low- and middle-economy countries. There have been increasing medical costs due to delayed recovery, readmission and mortality. The purpose of this study is to contribute in reducing these effects by developing context-specific food-based dietary guidelines to assist health-care professionals and caregivers in planning diets for cancer patients.

Design/methodology/approach

For seven days, the dietary intakes of 100 cancer patients in the hospital were recorded using weighed food records. Data on the costs of commonly consumed foods during hospitalization were obtained from hospital requisition books as well as nearby markets and shops. The information gathered was used to create optimal food-based dietary guidelines for cancer patients.

Findings

Most patients did not meet the recommended food group and micronutrient intake according to their weighed food records. Sugar intake from processed foods was (51 ± 19.8 g), (13% ± 2%), and calories (2585 ± 544 g) exceeded recommendations. Optimized models generated three menus that met the World Cancer Research Fund 2018 cancer prevention recommendation at a minimum cost of 2,700 Tanzanian Shillings (TSH), 3500TSH, and 4550TSH per day. The optimal dietary pattern includes nutrient-dense foods from all food groups in recommended portions and within calorie limits.

Originality/value

Findings show that optimal dietary guidelines that are context-specific for managing cancer in hospitalized patients can be formulated using culturally acceptable food ingredients at minimum cost.

Details

Nutrition & Food Science, vol. 53 no. 2
Type: Research Article
ISSN: 0034-6659

Keywords

Article
Publication date: 5 June 2017

Shih-Chuan Chen

This paper aims to investigate the effect of cancer patients’ information behaviour on their decision-making at the diagnosis and treatment stages of their cancer journey. Patients

Abstract

Purpose

This paper aims to investigate the effect of cancer patients’ information behaviour on their decision-making at the diagnosis and treatment stages of their cancer journey. Patients’ information sources and their decision-making approaches were analyzed.

Design/methodology/approach

Semi-structured interviews were conducted with 15 participants.

Findings

The cancer patients sought information from various sources in choosing a hospital, physician, treatment method, diet and alternative therapy. Physicians were the primary information source. The patients’ approaches to treatment decision-making were diverse. An informed approach was adopted by nine patients, a paternalistic approach by four and a shared decision-making approach by only two.

Practical implications

In practice, the findings may assist hospitals and medical professionals in fostering pertinent interactions with patients.

Originality/value

The findings can enhance researcher understanding regarding the effect of cancer patients’ information behaviour on their decision-making.

Details

The Electronic Library, vol. 35 no. 3
Type: Research Article
ISSN: 0264-0473

Keywords

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