Search results

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Article
Publication date: 1 September 2005

M.J. Taylor

The purpose of the research reported in this paper was to examine the type of adjustments to delivery appropriate for students with an autistic spectrum disorder in a UK higher…

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Abstract

Purpose

The purpose of the research reported in this paper was to examine the type of adjustments to delivery appropriate for students with an autistic spectrum disorder in a UK higher education setting.

Design/methodology/approach

A case study in a UK university was conducted over a two‐year period.

Findings

A variety of adjustments may be required for students with an autistic spectrum disorder in a UK higher education environment, including adjustments to teaching delivery, assessment and pastoral care.

Research limitations/implications

Although the case study reported in this paper focused on just three students with an autistic spectrum disorder, the number of students entering UK higher education with such disorders is likely to increase and institutions need to be aware of the adjustments that may potentially be required.

Originality/value

Previously very few students with an autistic spectrum disorder had attended university in the UK. However, growing numbers of such students are now attending university, but thus far little, if any, research has been conducted regarding the adjustments that may need to be made for such students.

Details

Education + Training, vol. 47 no. 7
Type: Research Article
ISSN: 0040-0912

Keywords

Content available
Book part
Publication date: 27 September 2022

Matthew Bennett and Emma Goodall

Abstract

Details

Autism and COVID-19
Type: Book
ISBN: 978-1-80455-033-5

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism…

Abstract

In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism diagnosis. If diagnostic services were made more congenial for autistics from these groups, then the prospect of them being diagnosed as autistic and being available to be research participants would increase. To help achieve this outcome, this chapter begins by presenting some typical barriers that autistics encounter when trying to access autism diagnostic services. This is followed by an explanation of some consequences of this exclusion for autistics, their families and the research community. In an attempt to mitigate these consequences, and to increase the pool of potential autistic candidates for research, this chapter concludes with a series of suggestions to improve the public's accessibility to autism diagnostic services as well as suggestions for improving the autism diagnostic process for both children and adults.

The contribution that this chapter makes to the field of autism spectrum research is to provide clinicians with some important concepts that will help autistics feel valued and accepted during the diagnostic process. A potential flow-on effect of this knowledge is that more autistics who have experienced feeling valued and accepted by clinicians will be more inclined to be involved in research.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Abstract

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Book part
Publication date: 9 November 2020

Kristen Gillespie-Lynch, Patrick Dwyer, Christopher Constantino, Steven K. Kapp, Emily Hotez, Ariana Riccio, Danielle DeNigris, Bella Kofner and Eric Endlich

Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights…

Abstract

Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights movement. We explore the neurodiversity movement's potential to support cross-disability alliances that can transform cultures.

Methods/Approach: A neurodiverse team reviewed literature about the history of the neurodiversity movement and associated participatory research methodologies and drew from our experiences guiding programs led, to varying degrees, by neurodivergent people. We highlight two programs for autistic university students, one started by and for autistics and one developed in collaboration with autistic and nonautistic students. These programs are contrasted with a national self-help group started by and for stutterers that is inclusive of “neurotypicals.”

Findings: Neurodiversity-aligned practices have emerged in diverse communities. Similar benefits and challenges of alliance building within versus across neurotypes were apparent in communities that had not been in close contact. Neurodiversity provides a framework that people with diverse conditions can use to identify and work together to challenge shared forms of oppression. However, people interpret the neurodiversity movement in diverse ways. By honing in on core aspects of the neurodiversity paradigm, we can foster alliances across diverse perspectives.

Implications/ Values: Becoming aware of power imbalances and working to rectify them is essential for building effective alliances across neurotypes. Sufficient space and time are needed to create healthy alliances. Participatory approaches, and approaches solely led by neurodivergent people, can begin to address concerns about power and representation within the neurodiversity movement while shifting public understanding.

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Keywords

Article
Publication date: 1 March 2010

Magda Mostafa

Autistic Spectrum Disorder is a developmental disorder estimated to inflict 1 in every 150 children, regardless of socio-cultural aspects, with a four to one prevalence in males…

Abstract

Autistic Spectrum Disorder is a developmental disorder estimated to inflict 1 in every 150 children, regardless of socio-cultural aspects, with a four to one prevalence in males over females, (ADDM, 2007). It involves a complex sensory perceptual model, variant from that of the typical individual. It manifests itself in the form of repetitive behaviour, lack of social skills and communication delays and challenges. Being a life-long infliction, individuals with autism require a comprehensive range of specialized support services, including residential, from childhood to adulthood.

Housing services for special needs, in general, conventionally deal with issues of physical access. The provisions required for developmentally challenged individuals, such as those with autism are rarely considered.

This paper aims to provide a precedent to help guide the adaptation process in the case of group residential accommodation for autistic adults in mass housing projects. After a brief examination of the available literature in the field, a case study will be presented, illustrating design criteria developed for adapting housing for autistic use.

Details

Open House International, vol. 35 no. 1
Type: Research Article
ISSN: 0168-2601

Keywords

Article
Publication date: 24 January 2011

Raja Mukherjee, Michael Layton, Evan Yacoub and Jeremy Turk

Associations between fetal alcohol syndrome (FAS) and other conditions have been reported, but the links between FAS and autistic spectrum disorders (ASD) remain unclear. This…

Abstract

Associations between fetal alcohol syndrome (FAS) and other conditions have been reported, but the links between FAS and autistic spectrum disorders (ASD) remain unclear. This study explored the relationship between FAS and ASD in individuals attending a specialist diagnostic clinic. Consecutive referrals over 24 months to a specialist neurodevelopmental clinic were evaluated using gold standard methods for FAS diagnosis and ASD. The first 18‐month cohort who met criteria for ASD were compared with controls attending the same clinic but who had not experienced prenatal alcohol exposure (nested data). Data for the whole group were also collected. Twenty‐one fetal alcohol spectrum disorder (FASD) individuals were assessed and 16 (72%) met ICD‐10 criteria for childhood autism. Further significant differences between the prenatally exposed and non‐exposed group with ASD were found in the nested study. The research shows an association between heavy prenatal alcohol exposure and ASD. As this is a small sample in a specialist clinic, the study suggests that a larger, more population‐based study of those exposed to heavy prenatal alcohol is warranted.

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013)

Abstract

This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013) study, which showed that there is not much research about fathers raising autistic children compared to mothers raising autistic children. Some of the key issues in research about these fathers, such as paternal experiences of raising an autistic child, are then presented. Several areas where more research can be conducted in the future are then outlined. These suggestions are based on the limitations in the examined studies and consequently what types of research could be conducted to address these limitations. Addressing such gaps can only occur if there are strategies that can be used to recruit fathers into autism research. To this end, some of the main recommendations in Davison et al.'s study about how to recruit fathers into studies are presented.

The original contribution that this chapter makes to the field of autism spectrum research is to explain areas where there is a lack of research about fathers raising autistic children as well as potential strategies that can be used to stimulate their interest in participating in such research.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Article
Publication date: 1 June 2004

Maurice Harker

Moving to a new home is a major step for anyone. People with autistic spectrum disorders face many difficulties with this transition, but help and information are limited. The…

Abstract

Moving to a new home is a major step for anyone. People with autistic spectrum disorders face many difficulties with this transition, but help and information are limited. The Shirley Foundation funded a project by Housing Options, an advisory service for learning disability, to promote the development of housing and support options for people with autism. It looked at existing services, what people say is needed and how to improve them. The challenge for the next five years appeared to be a better understanding of the range of existing need and provision, improvement in the choice available, information and help for people and their families seeking to plan for the future and strategies for services (in the light of Valuing People) to include autism. This article outlines the finding of a recent report, Tomorrow's Big Problem, and in particular looks at information available on the need for services.

Details

Housing, Care and Support, vol. 7 no. 2
Type: Research Article
ISSN: 1460-8790

Article
Publication date: 29 April 2021

Essam Mansour

The purpose of this study is to investigate the information-seeking behavior of Egyptian parents of autistic children.

Abstract

Purpose

The purpose of this study is to investigate the information-seeking behavior of Egyptian parents of autistic children.

Design/methodology/approach

The study sample consists of 61 parents across Egypt, divided into six focus groups, as equal as possible, to represent Northern, Middle and Southern Egypt.

Findings

Dmographically, of the 61 parents, 32 (52.5%) were fathers, and 29 (47.5%) were mothers. A large number of parents' ages ranged from 31 to 45 years old. The highest percentage of them was holding a BA, followed by a high school/diploma, and the highest percentage was found to be married. The parents of autistic children followed many methods and channels to obtain supportive information related to their children's disease. They used many types of information, which varied between formal and informal sources. While just over a quarter of Egyptian parents prefer to use formal sources (books, newspapers, magazines, health publications, pamphlets, as well as specialized libraries), more than three-quarters of them used informal sources, such as mobile/smartphones, the Web, social media and social networking sites. The information related to the search for institutions supporting autistic people came in the first place, then that information related to searching for specialized centers in treating autistic children, then information related to rehabilitation, integration and psychological support centers for these children and then information related to the search for financial aid provided by charitable or even government agencies. Some parents were found to have limited awareness of their children's treatment mechanism, as some of them do not consider the need to treat their children in a systematic, continuous, and systematic manner. Similarly, the lack of basic services and shortage of government centers specializing in the treatment of these children. Parents also emphasized the lack of government support, as well as the lack of curative research centers. Some also pointed out that there was a shortage of workshops for the rehabilitation of their children and themselves as well.

Originality/value

This research is considered to be the first research of its kind at the local and Arab levels, which is also one of the few studies at the regional level that is interested in this community of information seekers. The findings of this research can raise awareness about the information behavior of Egyptian parents of autistic children among those who are interested in the role of the information and its use by specific groups of the information society, as well as decision makers.

Peer review

The peer review history for this article is available at: https://publons.com/publon/10.1108/OIR-11-2020-0494

Details

Online Information Review, vol. 45 no. 7
Type: Research Article
ISSN: 1468-4527

Keywords

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