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Article
Publication date: 28 May 2020

Louise Ritchie, Anna Jack-Waugh, Elsa Sanatombi Devi, Binil V, Anice George, Joyce Henry, Clarita Shynal Martis, Debjani Gangopadhyay and Debbie Tolson

Many individual and family hardships are associated with poorly understood palliative care needs arising from advanced dementia within India. The purpose of this paper is to…

Abstract

Purpose

Many individual and family hardships are associated with poorly understood palliative care needs arising from advanced dementia within India. The purpose of this paper is to explore the experiences of people in India affected by advanced dementia and to shape educational approaches for practitioners and the local community.

Design/methodology/approach

Three focus groups with family carers of people (n = 27) with advanced dementia were undertaken with local communities in South India. One focus group was carried out in English and two in the local language (Kannada) and translated to English.

Findings

The findings of the focus groups are presented in four themes, conditions of caring, intersecting vulnerabilities, desperate acts of care and awareness of education and training needs. These themes highlight the challenges faced by family carers of people with advanced dementia and describe the potential harm, abuse and poor mental well-being facing both the person with dementia and the family carer as a result of their situation.

Research limitations/implications

There is a need to explore ways to ensure inclusivity and sensitivity in the research process and enable equal participation from all participants.

Practical implications

The findings highlight a lack of support for family carers of people with advanced dementia and demonstrate the need for dementia-specific integrated and palliative care approaches in India.

Originality/value

This paper provides insight into the experiences and challenges facing family caregivers of people living with advanced dementia in India to shape practitioner education in a way that will underpin effective dementia-specific palliation and integrated services.

Details

Journal of Integrated Care, vol. 28 no. 4
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 21 June 2011

Gerald D. Curry

Communities around the world continued to be pummelled by devastating natural disasters with little to no relenting to the amount of loss of life, and property damage suffered by…

430

Abstract

Purpose

Communities around the world continued to be pummelled by devastating natural disasters with little to no relenting to the amount of loss of life, and property damage suffered by businesses and individuals. The United Nation reports huge financial commitments in 2010 to the tune of $109 billion in recovery in an effort of securing some semblance of normalcy. This paper aims to highlight the tremendous accomplishments created by the passing of the Post‐Katrina Emergency Management Reform Act within the US Federal Emergency Management Agency and to introduce a new concept titled Synergistic Protection that encourages citizens and businesses with special skills, equipment, or unique talents to volunteer by enrolling their contact information into a database maintained by the local emergency manager.

Design/methodology/approach

The methodology that was used to construct this paper was traditional scholarly research and observations of the Washington, DC Homeland Security and Emergency Management Agency. A personal account of what was said and that occurred was used.

Findings

This is a concept paper and did not use qualitative or quantitative procedures to conclude findings, but after the data were reviewed professional assessments were made to recommend a new way of involving citizens and private industry in disaster preparedness training and planning.

Practical implications

The practical implications of the concept of Synergistic Protection being applied globally is tremendous and has relevance the world over. It is the author's goal for every country to start using aspects of Synergistic Protection in designing disaster and crisis management planning.

Social implications

The social implications of applying Synergistic Protection are huge. If and when applied people living in communities will start to form bonds out of necessity and need, and not shy away from one another because of petty differences. I believe that Synergistic Protection is needed around the world.

Originality/value

Synergistic Protection is completely original and both copyrighted and trademark by the author.

Details

Society and Business Review, vol. 6 no. 2
Type: Research Article
ISSN: 1746-5680

Keywords

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