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Book part
Publication date: 19 October 2020

Sharon Huebner, Azure Hermes and Simon Easteal

The Australian Government recognises an obligation to ensure that Aboriginal and Torres Strait Islanders (Australia’s First Peoples) are included in the integration of genomics…

Abstract

The Australian Government recognises an obligation to ensure that Aboriginal and Torres Strait Islanders (Australia’s First Peoples) are included in the integration of genomics into the healthcare system. First Peoples inclusion in this area requires going beyond general principles for First Peoples health research. This extra need exists for historical reasons as well as the need to maintain connections between patients, participants and communities and between the bio-specimens and data contributing to the resources underpinning genomics. The National Centre for Indigenous Genomics (NCIG) at the Australian National University in Canberra, Australia, has developed a framework that addresses these requirements through its dedicated First Peoples governance and enduring community engagement processes relating to stored heritage materials, data management and culturally agreed terms for collection preservation and potential use into the future. This chapter incorporates a First Peoples perspective on the NCIG by describing the practical application of ‘doing the right thing’, proceeding at ‘the pace of trust’, obtaining informed consent as part of enduring relationships, acknowledging cultural perspectives, understanding diversity of views and cultural practices within and between communities and respecting the need for community ownership and self-determined mobilisation of First Peoples involvement with research. This culturally appropriate methodology has been developed in partnership with individuals, family groups and community leaders, who are directly involved in genomic research. It provides a model for First Peoples to play an invested and sustaining role in the future development of genome science and precision medicine.

Book part
Publication date: 1 March 2021

Bella L. Galperin, Meena Chavan and Salahudin Muhidin

In the last decade, Indigenous enterprises and entrepreneurs have played an increasingly important role in Australia. This has not always been the case. Historically, Indigenous…

Abstract

In the last decade, Indigenous enterprises and entrepreneurs have played an increasingly important role in Australia. This has not always been the case. Historically, Indigenous Australians have been excluded from the broader economy. However, more recently, the number of Indigenous businesses has significantly increased despite the limited access to capital and lower level of education. This chapter provides a historical perspective of Indigenous entrepreneurs in Australia and argues that entrepreneurial leadership development can play a critical role in developing Indigenous entrepreneurship. The historical context of Indigenous Australians is first discussed, and the current status of Indigenous entrepreneurs in Australia is then examined. In particular, we focus on entrepreneurship among the Aboriginal and Torres Strait Islander people. Finally, the importance of entrepreneurial leadership development in the future landscape of Indigenous entrepreneurship in Australia is highlighted.

Details

Clan and Tribal Perspectives on Social, Economic and Environmental Sustainability
Type: Book
ISBN: 978-1-78973-366-2

Keywords

Abstract

Purpose

Aboriginal people across Australia have diverse practices, beliefs and knowledges based on thousands of generations of managing and protecting their lands (Country). The intimate relationship Aboriginal people have with their Country is explored in this chapter because such knowledge is important for building insight into the relationship between social and ecological systems. Often in research Aboriginal views have been marginalised from discussions focused on their lands to the detriment of ecosystems and human health. This chapter aims to understand if such marginalisation is evident in Western human–nature relationship discourses.

Approach

This chapter provides a critical literature review which examines whether Aboriginal people’s diverse understanding of their ecosystems have been incorporated into human–nature theories using the biophilia hypothesis as a starting point. Other concepts explored include solastalgia, topophilia and place.

Findings

Critiques of these terminologies in the context of Aboriginal people’s connection to Country are limited but such incorporation is viewed in the chapter as a possible mechanism for better understanding human’s connection to nature. The review identified that Aboriginal people’s relationship to Country seems to be underrepresented in the human–nature theory literature.

Value

This chapter emphasises that the integration of Aboriginal perspectives into research, ecological management and policy can provide better insight into the interrelationships between social and ecological systems.

Details

Ecological Health: Society, Ecology and Health
Type: Book
ISBN: 978-1-78190-323-0

Keywords

Content available
Book part
Publication date: 19 October 2020

Abstract

Details

Indigenous Research Ethics: Claiming Research Sovereignty Beyond Deficit and the Colonial Legacy
Type: Book
ISBN: 978-1-78769-390-6

Book part
Publication date: 19 October 2020

Lily George, Lindsey Te Ata o Tu Macdonald and Juan Tauri

This chapter provides an overview of the volume, beginning with anecdotes from the editors. These anecdotes demonstrate the range of issues facing Indigenous scholars and

Abstract

This chapter provides an overview of the volume, beginning with anecdotes from the editors. These anecdotes demonstrate the range of issues facing Indigenous scholars and researchers who choose to work with Indigenous participants and/or communities. Reference is made to Indigenous research sovereignty, honouring the immense work undertaken by previous Indigenous scholars, enabling many today to work effectively with their own people as well as other Indigenous groups. This is considered a courageous act, given the vulnerability this opens Indigenous peoples up to in terms of the change that is engendered and the criticism from external non-Indigenous researchers that has often arisen. The organisation of the volume into three parts is discussed, and this chapter ends with synopses of the following 16 chapters.

Details

Indigenous Research Ethics: Claiming Research Sovereignty Beyond Deficit and the Colonial Legacy
Type: Book
ISBN: 978-1-78769-390-6

Keywords

Content available
Book part
Publication date: 19 October 2020

Abstract

Details

Indigenous Research Ethics: Claiming Research Sovereignty Beyond Deficit and the Colonial Legacy
Type: Book
ISBN: 978-1-78769-390-6

Book part
Publication date: 31 January 2024

Anna Leditschke, Julie Nichols, Karl Farrow and Quenten Agius

The increased use of, and reliance upon, technology and digitalisation, especially in the galleries, libraries, archives and museums [GLAM] sector, has motivated innovative…

Abstract

The increased use of, and reliance upon, technology and digitalisation, especially in the galleries, libraries, archives and museums [GLAM] sector, has motivated innovative approaches to the curation of cultural material. These changes are especially evident when collaborating with Indigenous partners. Indigenous Data Governance [IDG] and Indigenous Data Sovereignty [IDS], with an emphasis on self-determination of Indigenous peoples, have called for an emerging focus on ethical and culturally sensitive approaches to data collection and management across a range of disciplines and sectors.

This chapter reports on broader discussions, specifically with mid-North South Australia, Indigenous community members around the appropriate and ethical collection, representation and curation of cultural material on Country applying digital formats. It investigates ways to create a ‘future identity’ through built form as well as providing a ‘safe’ place for preservation of their oral histories.

It highlights the many questions raised around the ethically and culturally sensitive aspects of the collection, curation and archiving of Indigenous cultural material. It documents the preliminary outcomes of these conversations in the context of current research on IDS best practices in the field. The non-Aboriginal authors acknowledge our supporting position in the realisation of effective IDS and self-determination of our Aboriginal partners.

Details

Data Curation and Information Systems Design from Australasia: Implications for Cataloguing of Vernacular Knowledge in Galleries, Libraries, Archives, and Museums
Type: Book
ISBN: 978-1-80455-615-3

Keywords

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

Currently, most research about the autism spectrum has examined Caucasian autistics. Consequently, African American autistics have not received much attention from scholars. This…

Abstract

Currently, most research about the autism spectrum has examined Caucasian autistics. Consequently, African American autistics have not received much attention from scholars. This chapter begins with an overview of statistics from the Centres for Disease Control and Prevention (CDC) about the population of Black and Latino autistics in the United States from 2000 to 2016. Plausible reasons for why there is a lack of research about African American autistics are then presented along with a section about the underrepresentation of ethnic minorities in autism spectrum research. Four strategies that can improve the production of research about African American autistics are then presented. The purpose of presenting these strategies is to help stimulate the production of research about African American autistics.

The original contribution that this chapter makes to the field of autism spectrum research is to inform the reader about the lack of research about African American autistics in comparison to other ethnicities.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

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