Journal of Integrated Care: Volume 28 Issue 4

Practical evidence for service improvement


Table of contents - Special Issue: Integrated Palliative and End of Life Care for People with Advanced Dementia or Frailty

Guest Editors: Anne Hendry, Debbie Tolson, Áine Carroll, Anne Mills

An autoethnography of death and dying in Northern Ireland

Áine Carroll

In Northern Ireland, access to good quality palliative care is an accepted and expected part of modern cancer care. The “Transforming Your Palliative and End of Life Care”…

Understanding family carer experiences of advanced dementia caregiving in India: towards a vision for integrated practice

Louise Ritchie, Anna Jack-Waugh, Elsa Sanatombi Devi, Binil V, Anice George, Joyce Henry, Clarita Shynal Martis, Debjani Gangopadhyay, Debbie Tolson

Many individual and family hardships are associated with poorly understood palliative care needs arising from advanced dementia within India. The purpose of this paper is to…

Components of a community model of dementia palliative care

Siobhan Fox, Niamh O'Connor, Johnathan Drennan, Suzanne Guerin, W. George Kernohan, Aileen Murphy, Suzanne Timmons

The Model for Dementia Palliative Care Project will develop a service-delivery model for community-based dementia palliative care. Many countries provide dementia palliative care…

Listening to action: community involvement in strategy development

Lonan A. Oldam, Giovanna I. Cruz, Sarah M. McGhee, Lottie Morris, Judi Watson, Anne Mills

Palliative care requires integration between services, organisations and the community. A series of community engagement programmes, named “Listening Events”, were conducted…

Respecting the autonomy of the living and dying

Jill Stavert

The purpose of this study is to inform those who are supporting persons who are dying and are responsible for planning, commissioning or delivering palliative care about the need…


Integrating the voluntary sector in personalised care: mixed methods study of the outcomes from wellbeing co-ordination for adults with complex needs

Felix Gradinger, Julian Elston, Sheena Asthana, Chloe Myers, Sue Wroe, Richard Byng

This integrated care study seeks to highlight how voluntary sector “wellbeing co-ordinators” co-located in a horizontally and vertically integrated, multidisciplinary community…


Complementary therapy for advanced dementia palliation in nursing homes

Bryan Mitchell, Graham A. Jackson, Barbara Sharp, Debbie Tolson

This paper reports on an action research study that aimed to collaboratively develop a complementary therapy care intervention to augment palliative care choices available to…

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Emerald Publishing Limited

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  • Professor Axel Kaehne