Doing research together: bringing down barriers through the ‘coproduction’ of personality disorder research

Abstract

Background: historical assumptions and knowledge about personality disorders (PDs) have inhibited efforts to improve PD services. Public and patient involvement in research has become a requirement of UK health services research. The potential for people with personal experiences of PD to ‘coproduce’ research knowledge as a means to transform PD services is largely unexplored.Objectives: to consider the extent to which research teams on two recent projects have ‘coproduced’ knowledge about PD, and the potential impact of coproduction on research findings and service delivery.Setting: two qualitative research projects were conducted by teams comprising conventional academic, clinical, service user and carer researchers. Reflective writing by researchers was analysed thematically to explore research objectives.Findings: researchers reported that their high expectations of research coproduction were mostly met, that findings would have been different without involvement of service user and carer researchers, and that the research would have wider credibility because of their involvement.Conclusions: coproduction is characterised by enabling perspectives from outside the conventional clinical‐academic health research team to inform the research decision‐making process, and by self‐conscious reflection to make explicit how findings are shaped as a result. The potential to improve PD services by coproducing knowledge was demonstrated.

Citation

Gillard, S., Turner, K., Neffgen, M., Griggs, I. and Demetriou, A. (2010), "Doing research together: bringing down barriers through the ‘coproduction’ of personality disorder research", Mental Health Review Journal, Vol. 15 No. 4, pp. 29-35. https://doi.org/10.5042/mhrj.2010.0736