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Listening to action: community involvement in strategy development

Lonan A. Oldam (Scholl Academic Centre, Hospice Isle of Man, Douglas, Isle of Man)
Giovanna I. Cruz (Scholl Academic Centre, Hospice Isle of Man, Douglas, Isle of Man)
Sarah M. McGhee (Scholl Academic Centre, Hospice Isle of Man, Douglas, Isle of Man)
Lottie Morris (Scholl Academic Centre, Hospice Isle of Man, Douglas, Isle of Man)
Judi Watson (Scholl Academic Centre, Hospice Isle of Man, Douglas, Isle of Man)
Anne Mills (Scholl Academic Centre, Hospice Isle of Man, Douglas, Isle of Man)

Journal of Integrated Care

ISSN: 1476-9018

Article publication date: 13 August 2020

Issue publication date: 19 September 2020

221

Abstract

Purpose

Palliative care requires integration between services, organisations and the community. A series of community engagement programmes, named “Listening Events”, were conducted across the Isle of Man. The aim was to involve the community in the development of Hospice strategy by sharing their views on the future of palliative and end of life care.

Design/methodology/approach

Three Listening Event programmes were conducted in community settings, secondary schools and the Isle of Man’s University College. The investigators facilitated discussions on current knowledge of Hospice services, what would matter to people should they need to use these, and how Hospice could best serve the community in the future. Participants and investigators noted thoughts and comments. Data were analysed using thematic analysis.

Findings

In total, 899 people participated from across the community. Main themes surrounded effective care, person-centred care and integrated care. Most themes agreed across the three programmes, despite some nuances.

Originality/value

The results were used as an evidence base from which Hospice Isle of Man’s new strategy was derived in order to ensure that it aligned with the community’s needs. By initiating conversations and discussions in the community, the Listening Events may have also increased understanding about hospice care.

Keywords

Acknowledgements

We would like to offer our thanks to all the members of the public who engaged in the Listening Events and offered their input. Our thanks extend to the supermarkets, churches and schools for their assistance with the Listening Events. This project was supported and funded by the Manx Lottery Trust (as delegated partner of Big Lottery Fund UK), the Gough Ritchie Charitable Trust, the Masonic Charitable Foundation, and the Elizabeth Clucas Charitable Trust, all of whom we express our appreciation. We would also like to acknowledge our colleagues from Hospice Isle of Man for their contribution to the facilitation and organisation of the Listening Events: Dr Hollie Quaye, Lynsey Christian, and Gillian Street.

Citation

Oldam, L.A., Cruz, G.I., McGhee, S.M., Morris, L., Watson, J. and Mills, A. (2020), "Listening to action: community involvement in strategy development", Journal of Integrated Care, Vol. 28 No. 4, pp. 365-378. https://doi.org/10.1108/JICA-02-2020-0008

Publisher

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Emerald Publishing Limited

Copyright © 2020, Emerald Publishing Limited

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