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Family experiences of caregiving to patients with Alzheimer

Eman Al-Zyoud (Department of Clinical Nursing, School of Nursing, The University of Jordan, Amman, Jordan)
Mahmoud Maharmeh (Department of Clinical Nursing, School of Nursing, The University of Jordan, Amman, Jordan)
Muayyad Ahmad (Department of Clinical Nursing, School of Nursing, The University of Jordan, Amman, Jordan)

Working with Older People

ISSN: 1366-3666

Article publication date: 22 February 2021

Issue publication date: 12 May 2021

292

Abstract

Purpose

This paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being.

Design/methodology/approach

The study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews.

Findings

Four themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of family caregivers was different from their experiences with other chronic illnesses.

Originality/value

The family caregivers experience new life when providing care to their patients with Alzheimer's. The impact of the process of caregiving on whole life appeared in both positive and negative aspects. The perception and awareness of family caregivers toward Alzheimer’s disease were poor.

Keywords

Acknowledgements

The authors would like to thank the University of Jordan for its support.Conflict of interest: The authors declare no conflict of interest.

Citation

Al-Zyoud, E., Maharmeh, M. and Ahmad, M. (2021), "Family experiences of caregiving to patients with Alzheimer", Working with Older People, Vol. 25 No. 2, pp. 115-122. https://doi.org/10.1108/WWOP-02-2020-0006

Publisher

:

Emerald Publishing Limited

Copyright © 2021, Emerald Publishing Limited

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