AAA. See American Anthropological Association (AAA)
AAUP. See American Association of University Professors (AAUP)
Academy of Social Sciences (AcSS)
, xxiv, 3, 5, 80, 104, 112, 126, 136–137, 159, 172
cross-disciplinary discussions
, 113
implications for research governance and ethics review
, 118
model clauses for ethics codes
, 122–123
principles
, 114
privacy, autonomy, diversity and dignity of individuals
, 114–116
research integrity in social sciences
, 120–121
social science researchers should acknowledge social responsibilities
, 116–117
virtuous researcher
, 119–120
work collectively towards common code
, 119
work towards common modules
, 119
Adoption by research organizations
, 90–91
All European Academies (ALLEA)
, 201, 204
American Anthropological Association (AAA)
, 66
American Association of University Professors (AAUP)
, 45n1, 46n6
Annual Meeting of Global Research Council
, 207
Anthropological reflections on collaborative process
absence of philosophers
, 133–136
code of ethics
, 136–137
ethical governance
, 126–127
medicine
, 131–133
reflecting on remaking of research ethics
, 128–130
REG principles
, 138
socio-historical differences
, 139–140
Anthropological sensibility
, 33
Anticipatory controls
, 115
Aristotelian analysis
, 12
Articulating social science research ethics
, 130
Association of Research Ethics Committees (AREC). See UK Association of Research Ethics (AfRE)
Autonomy of individuals
, 114–116
Canada’s research ethics policies
, 70
Canadian experience
develop standards for research practice
, 104
governance of responsible conduct of research
, 108
indigenous community
, 106
questionable research practices
, 107
TCPS
, 2, 105
Canadian Institute of Health Research (CIHR)
, 66
Canadian research ethics boards
, 106
Canadian Tri-Council Policy Statements (TCPS)
, xvi, xviii
Carpenter, David
, xliii, liv, 20, 51–52
CECs. See Clinical Ethics Committees (CECs)
CFRS recommended the establishment
, 206
CIHR. See Canadian Institute of Health Research (CIHR)
Civil society organisations (CSOs)
, 192
Clinical Ethics Committees (CECs)
, 140
Codification
, 31
consequences of
, 137
CoIME Issues. See Committee on Conflict of Interests, Scientific Misconduct and Ethical Issues (CoIME Issues)
Collaborative process
, 134
Colonizer and the Colonized, The (1965)
, 69
Committee on Conflict of Interests, Scientific Misconduct and Ethical Issues (CoIME Issues)
, 203
Committee on Freedom and Responsibility in Conduct of Science of International Council for Science
, 205
Committee on Publication Ethics (COPE)
, xvi, 216–217
Common principles
, 113, 186, 207, 213
Communitarian principles
deontology
, 21–22
ESRC
, 24–25
principlism
, 20–21
research ethics principles
, 20
social acceptability
, 22–23
Comprehensive literature reviews
, xii, xiii, 79
Concordat to Support Research Integrity (2012)
, 79, 85, 97
Conference
, xli
group’s priorities after
, xli–xliii
Confidentiality, conceptions of
, 67
Contemporary societies
, 113
Corporate Social Responsibility standards (CSR standards)
, 193
Council for International Organizations of Medical Sciences (CIOMS)
, xv, 191, 192
Council of EU Research Ministers
, 203
Council of the European Union, the
, 203
CRID. See Research Centre on IT and Law–University of Namur (CRID)
Cross-cultural research
, xlii, 119
Cross-disciplinary principles
, 5–6
CSOs. See Civil society organisations (CSOs)
CSR standards. See Corporate Social Responsibility standards (CSR standards)
Cultural difference/pluralism, respect for
, 52
Economic and Social Research Council (ESRC)
, xvii–xviii, xxxvii, 24–25, 38, 127, 138, 159, 160
Framework for Research Ethics
, 43, 144n4
Editorial advisory group
, xxxi–xxxii
EGE. See European Group on Ethics in Science and New Technologies (EGE)
EHRC. See Equality and Human Rights Commission (EHRC)
Embedded ethics
, 31
ethical project
, 30
ethics principles
, 33–34
respect
, 32–33
social science research
, 31
up-front ethics
, 31–32
Embracing codification
, 140
Emmerich, Nathan
, xlvi, liv–lv
Equality and Human Rights Commission (EHRC)
, 218
ERC. See European Research Council (ERC)
ERC Executive Agency (ERCEA)
, 202–203
ERC Scientific Council
, 203
ERCEA. See ERC Executive Agency (ERCEA)
ESF. See European Science Foundation (ESF)
Ethical
analysis
, 6–7
assessment
, 187–188, 213
boundaries
, 200
decision-making
, 49–51
guidance
, 187–188, 213
guidelines
, 159, 164–165, 169
implications
, 53
issues
, 129–130
principles
, 49, 118, 216
regulation
, 20, 24, 38
review
, 5, 49–51, 152–153
Ethical Guidelines for International Comparative Social Science Research
, 160
Ethical protocols and standards
aims of workshop
, 179–180
‘Declaration of Helsinki’
, 178–179
follow-up activities
, 183–184
issues
, 180–181
recommendations
, 181–183
and social sciences research
, 178
Ethics
assessors
, 188
across disciplines
, xvi
of ethics governance
, 126
governance
, 127
on ground and ethics templates
, 68
of medical practice
, 56
policies
, 66
principles in social science research
, 51
regimes
, 62, 69
review
, 118
Ethics assessment
, 187–188
in scientific fields
, 188–190
in types of organisations
, 192–193
Ethics codes
, 62
for ‘trust’ and ‘trustworthiness’
, 71
of academic and professional societies
, 73
Ethics rupture
, 152, 212–213
ethics guidelines
, 155
professional codes of ethical practice
, 154
SRA ethics guidelines
, 153
Ethics Rupture Summit
, 172
Ethnography
, 4, 31
sensibility
, 33
EU. See European Union (EU)
Europe, safeguarding research integrity in
initiatives at EU level
, 201–205
international organizations, research integrity and
, 205–207
Singapore Statement on Research Integrity
, 200
European Anti-Fraud Office
, 203
European Charter for Researchers
, 202
European Code of Conduct for Research Integrity
, 201–202, 204
European Commission (EC)
, xxix, 186, 191, 210n18, 213
Framework Programme
, 159
European Federation of Academies of Sciences and of Humanities
, 204
European Group on Ethics in Science and New Technologies (EGE)
, 191, 203
European Research Area (ERA)
, xix, 162
European Research Council (ERC)
, 179, 202
European Research Funding Organisations (RFO)
, 184n8
European Research Integrity Initiative
, 204
European Research Performing Organisations (RPO)
, 184n8
European Research Values post-FP7
, xx
European Science Foundation (ESF)
, 201–202, 204, 205
European Standards of Social Science Research
, 161–162
European Union (EU)
, 201
countries
, 193–195
and global ethics assessment and guidance
, 188–189, 190–192
IES. See Institute for Employment Studies (IES)
Individual autonomy and dignity
, 52
Information Society Technologies (IST)
, xvi
Institute for Employment Studies (IES)
, 164
Institute for Information, Telecommunications and Media Law (ITM)
, 164
Institutional approach
, 130
Institutional legitimacy
, 112
Institutional Review Boards (IRBs)
, xviii–xix, xxii, 45n1, 152
Institutionalised approach
, 130
Institutionalised medical research
, 114
Interagency Advisory Panel on Research Ethics
, 106–107
Interdisciplinary ethics
, xlvi–xlix
Interdisciplinary research
, 162
International organizations, research integrity and
, 205–207
International research
, 159, 162
International Sociological Association (ISA)
, 160
Internet-mediated research
, xxvi
Inverted totalitarianism
, 65
Iphofen, Ron
, xxxviii, xlvii, xlix, lvi
ISA. See International Sociological Association (ISA)
ITM. See Institute for Information, Telecommunications and Media Law (ITM)
National ethics committees (NECs)
, 192
National Ethics Councils Forum (NEC Forum)
, 191
National Institutes of Health (NIH)
, 138–139
National Research Ethics Service (NRES)
, 131
National Science Foundation (NSF)
, xxx
National Statement on Ethical Conduct in Human Research (2007)
, xviii
National Union of Journalists (NUJ)
, 160–161
Natural sciences
, 132, 134
NEC Forum. See National Ethics Councils Forum (NEC Forum)
NECs. See National ethics committees (NECs)
New Brunswick Declaration
, 153, 154–155
NIH. See National Institutes of Health (NIH)
Non-EU countries
, 193–195
Non-restrictive principles and standards
, 87–88
Normative ethical theory
, 5
Normative social structure
, 134
NRES. See National Research Ethics Service (NRES)
NUJ. See National Union of Journalists (NUJ)
Nuremburg Code (1947)
, xv, 43
PAR. See Participatory action research (PAR)
Paradigmatic closure
, xii
Participant protection model (PPM)
, xl, xliv, 38–40, 48, 49–51, 114–115, 131
Participatory action research (PAR)
, 21
Patient protection model. See Participant protection model (PPM)
Performance management
, 112
Philosophical approach
, 136
Philosophical project
, 133
Pluralistic approach
, 213
Preference satisfactions
, 9
Prescriptive principles and standards
, 87–88
primum non nocere (oldest rule in medical ethics)
, 56
Principle-based ethics for social sciences
, 58
Principle-based medical ethics
, 58
Principles of justice
, 46n4
Principles of research integrity
, 200
Principlism
, 5, 6, 7–8, 20–21, 113
Principlism approach
, 190
Privacy of individuals
, 114–116
Professional researchers
, 139–140
Professional standards
, 164, 168, 170
Promoting Integrity as Integral Dimension of Excellence in Research project (PRINTEGER project)
, xx, 172–173
R&I. See Research and innovation (R&I)
Rawlins, Sir Michael
, xxxviii
RCR Framework. See Responsible Conduct of Research Framework (RCR Framework)
REB. See Research Ethics Board (REB)
REF. See Research Ethics Framework (REF); Research Excellence Framework (REF)
REG. See Research Ethics Group (REG)
Research
, 7
assessment
, 215–216
community
, xxvi
governance
, 112, 118
misconduct
, 200–201
organizations
, 204
participants
, 39, 48, 122
standards
, 94–95
Research and innovation (R&I)
, 186, 187, 201
Research as social practice
ethical decision-making
, 49–51
ethical review
, 49–51
PPM
, 49–51
values
, 51–53
Research Centre on IT and Law–University of Namur (CRID)
, 164
Research Councils UK (RCUK)
, xxxviii
Research ethics
, xvi, xxxii, 6, 25, 48, 80, 97–98, 112–113, 114, 127, 164, 168, 170, 173, 179, 182–183, 211–212
approach and treatment
, xxv–xxvi
COPE
, 216–217
developments in ethics
, 214
ethics rupture
, 212–213
fourth key principle of ESRC’s Framework for
, 43–44
impact agenda
, 214–215
integrity in
, 218
mass media
, 217–218
principle of
, 42
professionals
, 138
recommendations
, 218–221
research assessment
, 215–216
SATORI Project
, 213–214
and social sciences
, xliii–xlvi
Research Ethics Board (REB)
, 65
Research Ethics Committees (RECs)
, xxxii, 57, 128, 152, 192, 212
Research Ethics Framework (REF)
, 131
Research Ethics Group (REG)
, 126–128, 130
activities of
, 136
principles
, 138
purpose of
, 134
Research ethics review process
biomedical research
, 74
colonised societies
, 69
conceptions of confidentiality
, 67
critique or affirmation of status quo
, 65–66
differences between social and biomedical research
, 63
discrepancy of virtues
, 70–72
ethics committees
, 72
ethics on ground and ethics templates
, 68
policy makers
, 73
principle of autonomy flies
, 64
REBs
, 66
social science paradigm
, 62
Research Excellence Framework (REF)
, 215
Research Institute for Work and Society–University of Leuven (HIVA)
, 164
Research integrity
, xvi, 32, 77–78, 97–98, 104, 120–121
ethical project
, 30
ethics principles
, 33–34
initiatives at EU level
, 201–205
international organizations, research integrity and
, 205–207
respect
, 32–33
Singapore Statement on Research Integrity
, 200
social science research
, 31
United Kingdom issues of
, 78
up-front ethics
, 31–32
Research practice, developing standards for
consensus
, 80–82
generic ethics principles
, 83–88
mandatory principles and standards
, 88–91
relevance of standards for research
, 94–97
research ethics
, 97–98
research integrity
, 78
research integrity
, 97–98
self-evident
, 80
standards for research
, 91–94
UKRIO
, 79–80
voluntary principles and standards
, 88–91
Researcher/participant relationship conceptualisation
, 42–44
Researchers
, 48, 200
‘jobbing’
, xiii–xiv
‘ordinary’
, xiv
virtues
, 13
RESPECT project
, xvi, xvii, xix, xx, xxvii, xlvii, 158
balancing conflicting requirements
, 165–167
DG Information Society
, 159
dissemination and impact of project
, 167
DG Information Society
, 169
Europe-wide code
, 168
Internet search in
, 168–169
embarking on project
, 162
European Standards of Social Science Research
, 161–162
harmonising heterogeneous team
, 164–165
idea surfaces
, 160–161
professional standards guidelines
, 171
publications in
, 176
recent initiatives
, 171–173
social scientists
, 170
SRA
, 160
‘tick box’ approach
, 170
See also SATORI project
Responsible conduct of research
, 200
global guide to
, 2063
Responsible Conduct of Research Framework (RCR Framework)
, 105
Responsible research, principles for
, 206
Responsible Research and Innovation (RRI)
, xx, 187
RFO. See European Research Funding Organisations (RFO)
RPO. See European Research Performing Organisations (RPO)
Scientific community
, 201
Scientific integrity
, 77–78
Second World Conference on Research Integrity
, 201–202
Seduction of Ethics, The
, 151
Self-evident standards
, 80
Seventh Framework Programme (FP7)
, xx, 186
Singapore Statement on Research Integrity
, 200, 206
Sixth framework programme (FP6)
, xix
Sleat, Matt
, xliv, lix–lx, 48, 56, 62, 131–132
argument
, 50
SLSA. See Socio-Legal Studies Association (SLSA)
Social ‘impact agenda’
, 32
Social acceptability
, 9, 22, 51–52
Social and political philosophy
, 5
Social anthropological research
, 30
Social Care Research Ethics Committee (SCREC)
, xl
Social Research Association (SRA)
, xxxvii–xxxviii, xlii, 159, 160, 164
Social responsibility
, 52
Social science research
, 82, 83, 158, 168, 170, 178
conceptualisation harm
, 40–42
conceptualisation researcher/participant relationship
, 42–44
ethics
, 51, 127
European Standards of
, 161–162
PPM
, 38–40
in United Kingdom
, 172
See also Biomedical research ethics
Social science researcher
, 122, 127
acknowledge their social responsibilities
, 116–117
Social sciences
, 32, 38, 62, 63, 65, 106, 116, 132, 215, 216
based on plurality of interests, funding, methods and perspectives
, 114
carried out to highest degree of scientific integrity
, 116
events history involvement in research ethics work, l-li
maximise benefit and minimise harm
, 117
principle-based ethics for
, 58
research ethics and
, xliii–xlvi
research integrity in
, 120–121
Social Sciences and Humanities Research Council of Canada (SSHRCC)
, 152
Social scientific methodology
, 62
Social scientific research
, 136
Social scientists
, 71, 80–81, 92, 112, 116, 117, 127–128, 129, 134, 139–140
Societal treatment of journalism
, 114
Socio-Legal Studies Association (SLSA)
, 48, 128–129
Statement
, 49, 53
Socio-political concepts
, 5
Socioeconomic research
, 161
Sociology
, 129–130, 134–135
SSHRCC. See Social Sciences and Humanities Research Council of Canada (SSHRCC)
Stakeholders
, 90
relationship with standards
, 94
of UK’s Concordat to Support Research Integrity
, 97
Stakeholders Acting Together On ethical impact assessment of Research and Innovation Project (SATORI Project)
, xxi–xxii, xlvii, 172, 186, 213–214
ethics assessment
, 187–188, 193–195
in scientific fields
, 189–190
in types of organisations
, 192–193
ethics assessors
, 188
EU and global ethics assessment and guidance
, 190–192
phases
, 186–187
SATORI D1.
, 1, 190–194
See also RESPECT project
Standards for research practice
, 91–94, 104
relevance of
, 94–97
Statements of principle
, 112, 113, 207
Surveillance methods, application of
, xxv
Symposium on Generic Ethics Principles in London (2013)
, 62