Broadening Family Perspectives: The Experiences of Fathers and Siblings When a Child Has Chronic Illness or Disability

Abstract

Effective collaboration with families when a child has chronic illness or disability involves the participation of all family members. Through a review of recent literature, this chapter provides a snapshot into the unique experiences and perspectives of fathers and siblings, exploring roles, and responsibilities often assumed by each, such as protector, advocate, teacher, and caretaker. Professionals are invited to build greater awareness of the unique insights fathers and siblings can contribute to program planning. Strategies to build partnerships that benefit all family members are suggested.

Citation

Scorgie, K. (2017), "Broadening Family Perspectives: The Experiences of Fathers and Siblings When a Child Has Chronic Illness or Disability", Working with Families for Inclusive Education (International Perspectives on Inclusive Education, Vol. 10), Emerald Publishing Limited, Leeds, pp. 97-113. https://doi.org/10.1108/S1479-363620170000010012