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Social barriers affecting participation in chosen instrumental activities of daily living among community-dwelling persons with schizophrenia in Rwanda

Pierre Damien Turikumana (Department of Occupational Therapy, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda)
Lizahn G. Cloete (Department of Occupational Therapy, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa)
Jerome Peter Fredericks (Department of Occupational Therapy, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa)

Mental Health and Social Inclusion

ISSN: 2042-8308

Article publication date: 1 June 2022

Issue publication date: 29 June 2022

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Abstract

Purpose

The purpose of this study is to explore social barriers affecting participation in chosen instrumental activities of daily living (IADL) among community-dwelling persons with schizophrenia in Rwanda.

Design/methodology/approach

A qualitative study used an embedded single case study design and constructivist epistemology paradigm. Purposive sampling and semistructured interviews of 10 persons with schizophrenia and their 10 caregivers were conducted. Data analysis was done thematically using an inductive analysis approach, following within-case and cross-case analysis.

Findings

The hindrances to participation and community negative attitudes were explored as the two themes. This study focuses on the community negative attitudes including family exclusion and stigmatization, which hinder the participation of persons with schizophrenia in their chosen IADLs.

Practical implications

This study highlights the need for psychoeducation about mental illness for the caregivers of the persons with schizophrenia, community outreach activities for sensitizing about mental illness to address stigma toward persons with mental illness and strengthening the activities which promote the social interaction and sense of belonging of persons with mental illness.

Originality/value

Persons with schizophrenia are facing maltreatment and stigma from the community members while participating in their chosen IADLs. Awareness raising of the support needs of persons living with schizophrenia will contribute to relevant stakeholders advocating for inclusion into families and communities.

Keywords

Acknowledgements

The OPROMMAMER association and participants are acknowledged for their willingness to participate and share their experiences, Humanity and Inclusion for financial support (Funder had no involvement in study design, data collection, analysis and decision to publish), the study supervisors, Dr Melissa Toporek, Mr Celestin Bigirimana and Mrs Marike Cloete are also acknowledged for their support.Author contributions: Turikumana Pierre Damien identified the research topic, formulated the research aim and objectives, contributed to the conception and design of the work, collected the data, involved in transcription, translation and analysis of the data and contributed to the writing of the manuscript.Prof. Lizahn G Cloete and Mr Jerome Fredericks provided academic guidance, mentorship, supervision and editing contributions throughout the research including the formulation of the objectives, design of the work and data analysis; contributed to the writing and editing of the manuscript.

Citation

Turikumana, P.D., Cloete, L.G. and Fredericks, J.P. (2022), "Social barriers affecting participation in chosen instrumental activities of daily living among community-dwelling persons with schizophrenia in Rwanda", Mental Health and Social Inclusion, Vol. 26 No. 3, pp. 299-311. https://doi.org/10.1108/MHSI-04-2022-0028

Publisher

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Emerald Publishing Limited

Copyright © 2022, Emerald Publishing Limited

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