The purpose of this paper is to outline the development of a training package for service users and carers with an interest in NHS health and social care research. It demonstrates how the developers used their unique experience and expertise as service users and carers to inform their work.
Service users and carers, NHS Research and Development Forum working group members, supported by health professionals, identified a need for research training that was tailored to other service user and carer needs. After reviewing existing provision and drawing on their training and support experience, they developed a training package. Sessions from the training package were piloted, which evaluated positively. In trying to achieve programme accreditation and training roll-out beyond the pilots, the group encountered several challenges.
The training package development group formed good working relationships and a co-production model that proved sustainable. However, challenges were difficult to overcome owing to external factors and financial constraints.
Lessons learnt by the team are useful for other service users and carer groups working with health service professionals. Training for service users and carers should be designed to meet their needs; quality and consistency are also important. The relationships between service user and carer groups, and professionals are important to understanding joint working. Recognising and addressing challenges at the outset can help develop strategies to overcome challenges and ensure project success.
The training package was developed by service users and carers for other service users and carers. Their unique health research experience underpinned the group’s values and training development.
Minogue, V. and Donskoy, A.-L. (2017), "Developing a training package: Lessons in partnership-working between health professionals, service users and carers", International Journal of Health Care Quality Assurance, Vol. 30 No. 5, pp. 458-466. https://doi.org/10.1108/IJHCQA-06-2016-0084Download as .RIS
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