A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines.
PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners’ experience within another project.
The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation.
The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.
The authors are grateful to the colleagues Dr John Neugebauer and Patricia Voaden from the Bristol Business School for their collaboration in the leadership programme evaluation and to all participants for their contribution to both projects. Funding sources: Higher Education Innovation Fund monies secured from the West of England University, Bristol.
Pollard, K., Donskoy, A.-L., Moule, P., Donald, C., Lima, M. and Rice, C. (2015), "Developing and evaluating guidelines for patient and public involvement (PPI) in research", International Journal of Health Care Quality Assurance, Vol. 28 No. 2, pp. 141-155. https://doi.org/10.1108/IJHCQA-01-2014-0001
Emerald Group Publishing Limited
Copyright © 2015, Emerald Group Publishing Limited