To read the full version of this content please select one of the options below:

Developing and evaluating guidelines for patient and public involvement (PPI) in research

Katherine Pollard (Faculty of Health and Applied Sciences (HAS), University of the West of England, Bristol, UK)
Anne-Laure Donskoy (Independent Survivor Researcher, Bristol, UK)
Pamela Moule (Centre for Health and Clinical Research, University of the West of England, Bristol, UK)
Christine Donald (Faculty of Health and Applied Sciences (HAS), University of the West of England, Bristol, UK)
Michelle Lima (Faculty of Health and Applied Sciences (HAS), University of the West of England, Bristol, UK)
Cathy Rice (Faculty of Health and Applied Sciences (HAS), University of the West of England, Bristol, UK)

International Journal of Health Care Quality Assurance

ISSN: 0952-6862

Publication date: 9 March 2015

Abstract

Purpose

A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines.

Design/methodology/approach

PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners’ experience within another project.

Findings

The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation.

Originality/value

The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.

Keywords

Acknowledgements

The authors are grateful to the colleagues Dr John Neugebauer and Patricia Voaden from the Bristol Business School for their collaboration in the leadership programme evaluation and to all participants for their contribution to both projects. Funding sources: Higher Education Innovation Fund monies secured from the West of England University, Bristol.

Citation

Pollard, K., Donskoy, A.-L., Moule, P., Donald, C., Lima, M. and Rice, C. (2015), "Developing and evaluating guidelines for patient and public involvement (PPI) in research", International Journal of Health Care Quality Assurance, Vol. 28 No. 2, pp. 141-155. https://doi.org/10.1108/IJHCQA-01-2014-0001

Publisher

:

Emerald Group Publishing Limited

Copyright © 2015, Emerald Group Publishing Limited