Index
Bob Gates
(The University of West London, England, UK)
Colin Griffiths
(School of Nursing & Midwifery, Trinity College Dublin, Ireland)
Paul Keenan
(School of Nursing & Midwifery, Trinity College Dublin, Ireland)
Sandra Fleming
(The University of West London, England, UK)
Carmel Doyle
(The University of West London, England, UK)
Helen L. Atherton
(The University of Leeds, England, UK)
Su McAnelly
(Northumbria University, England, UK)
Michelle Cleary
(Muiriosa Foundation, Ireland)
Paul Sutton
(The University of West London, England, UK)
Intellectual Disability Nursing: An Oral History Project
ISBN: 978-1-83982-155-4, eISBN: 978-1-83982-152-3
Publication date: 21 September 2020
This content is currently only available as a PDF
Citation
Gates, B., Griffiths, C., Keenan, P., Fleming, S., Doyle, C., Atherton, H.L., McAnelly, S., Cleary, M. and Sutton, P. (2020), "Index", Intellectual Disability Nursing: An Oral History Project, Emerald Publishing Limited, Leeds, pp. 207-213. https://doi.org/10.1108/978-1-83982-152-320201001
Publisher
:Emerald Publishing Limited
Copyright © 2020 Emerald Publishing Limited
INDEX
Note: Page numbers followed by “n” indicate notes.
‘Achilles heel’
, 25
Adult(s)
, 2
field of nursing
, 30
Altruism
, 36, 117, 121
America
, 9, 12
Assertiveness
, 126
Association of Hospital Management Committees
, 20
Athlone Committee’s Report
, 20
Audit trail diagram
, 61
Australia
, 9, 10
Better Services for the Mentally Handicapped
, 26
Briggs Report (1972)
, 29–30
Brothers of Charity, St John of God, Drumcar, County Louth
, 24
Care in institutions
, 24
Celtic Tiger (see Irish Economic Boom)
Certificate in Social Services
, 27
Children
, 2
CINAHL electronic searcher
, 13
Close team working
, 124
Clustering process
, 52
Commission of Inquiry on Mental Handicap
, 25–26
Community nursing
, 72
Compensation
, 154, 170
Confidentiality
, 154, 170
Confirmability
, 60–61
Congregated settings
, 109–110
Consent for Royal College of Nursing, United Kingdom
, 159–160
Contexts
, 83–86
Coping mechanisms and strategies
, 73
Copyright agreement and deposit instructions
, 165–166
Council of Deans
, 31–32
Credibility
, 57–58
Data Protection Act (1998)
, 53
Data Protection Amendment Act (2003)
, 53
Daughters of Charity at St Joseph’s, Clonsilla, Dublin
, 24
Declaration of Helsinki
, 53
Dependability
, 59–60
‘Deviant’ social group
, 30
Digging deep
, 72–74
Disclosure protocol
, 177–179
Early interest in intellectual disabilities
, 69
Early promotions
, 76–77
Electronic searchers
, 13
Emotional labour in nursing
, 118
English interviews and transcriptions
, 63, 66
English Care Quality Commission (2012)
, 128
English National Health Service
, 14
English nurses
, 129
English participants
, 63–66
Enjoyment
, 71
Ethical approval
, 154
Ethno-sociological approach
, 51
Eugenics
, 23
Exclusion
criteria
, 46–47
from participation
, 153–154, 170
External support
, 79–83
Family/essential support from others
, 80–81
Fighting system
, 71–72
Free rider phenomenon
, 38
Gantt Chart of ‘Untold Stories’ Project
, 150
Gatekeeper
, 49
General nursing theory
, 33
Grouping
, 52
Health Information and Quality Authority
, 127
Health Service Executive
, 145
Health Social Care Policy
, 25–29
Home-management
, 27
Hong Kong
, 2, 12n2
House-keeping
, 27
In-depth coverage
, 60
Inclusion criteria
, 46
Informed and written consent
, 54–55
Informed consent form
, 161–163
‘Intellectual and developmental disability nursing’
, 12n3
Intellectual disability nursing
, 1–2, 6, 8, 13, 69–70
changing service philosophies and nature of care and support
, 22–25
developing and upholding values
, 103–104
in England
, 2
Health Social Care Policy
, 25–29
individual
, 35–36
learning
, 122–131
objectives
, 11
past and contemporary context of
, 14–21
perspectives on
, 95–98
predicting future
, 4
prevailing discourse
, 115
profession
, 29–34
relearning
, 116–122
retention
, 28
specialist nature
, 3
Intellectual disability services
changing nature
, 92–94
current culture
, 94–95
historical conditions
, 91–92
nature of
, 90
Internal support
, 79–83
Interview schedule
, 49–51
Interviews
, 66
Irish Economic Boom
, 3
Irish Health Information and Quality Authority framework (2013)
, 128
Irish interviews and transcriptions
, 88–90
Isolation
, 74
Jay Report (1979)
, 26–27
Jurisdictions
, 140
Lancet Report
, 19–20
Learning disability
, 12n1
Learning Disability Practice
, 47
Legacy issues
, 55–56
Letter to participants
, 157–158
Life–story interviews
, 51
Lifetime’s journey
, 100
Male nurses
, 131
Marginalisation
, 120
MEDLINE electronic searcher
, 13
Mental Deficiency Act (1913)
, 23
Mental deficiency nurse
, 29
Mental Handicap Nurse
, 28
Mental health
, 2
nurses
, 26–27
Mental Health Act (1959)
, 25
Methodological issues
, 41
data analysis
, 51–53
data collection
, 47–51
exclusion criteria
, 46–47
inclusion criteria
, 46
procedure
, 47–49
research governance and ethical considerations
, 53–56
research participants
, 45–46
semi-structured interviews and interview schedule
, 49–51
validity and reliability
, 56–61
Monograph
, 135
limitations and weaknesses
, 140–142
strengths of monograph and project
, 138–140
National Health Service
, 144
in England
, 14, 16
Non-intellectual disability services
, 34
Normalisation
, 26
Nurse
educators
, 145
researchers
, 144–145
training
, 102
Nurse’s Registration Act (1919)
, 19, 22
Nursing
, 81–83, 130
practice
, 2
Nursing and Midwifery Board of Ireland (NMBI)
, 3
Nursing and Midwifery Council, UK (NMC). 81–83
Nursing Times
, 47
Opportunities
, 75–79
Optimism
, 18
Oral history
, 42–45, 117, 120
method
, 135–136, 140, 142
oral historical account of sustainability of health care workforce
, 173
questions for semi-structured interview
, 173–176
Ordinary health services
, 9
Parallel stigma
, 30
Participant diary
, 167
benefits
, 169–170
compensation
, 170
confidentiality
, 170
exclusion from participation
, 170
permission
, 171
procedures
, 169
risks
, 170
untold stories
, 168
voluntary participation
, 171
withdrawal from study
, 171
Participant information sheet for ‘Untold Stories’
, 151
benefits
, 153
compensation
, 154
confidentiality
, 154
exclusion from participation
, 153–154
permission
, 154
procedures
, 152–153
risks
, 153
voluntary participation
, 154
withdrawal from study
, 154
Passion
, 71
People with intellectual disabilities
, 2
Permission
, 154, 171
Personal coping mechanism
, 72
Personal resilience
, 72–74
Personal/professional distance
, 86–88
Phenomenological
approaches
, 52
epistemology
, 42
Positionality
, 139
Pressure
, 105
Professional
boundaries
, 124
coping mechanism
, 72
nurse regulatory bodies
, 118
Psychiatric institutions
, 23
Qualitative researchers
, 138
Random sampling
, 142
Reflexivity
, 138–139
Registered Fever Nurses
, 5
Registered Infectious Disease Nurses
, 5
Registered Nurse for Intellectual Disability (RNID)
, 95
assertive
, 99–100
building connections
, 98–99
nature of
, 95
perspectives on intellectual disability nursing
, 95–98
Reliability
, 56–61
Religious congregations
, 121
Republic of Ireland
, 2, 17
community living in
, 4–5
intellectual disability nurses in
, 5
intellectual disability nursing in
, 19
themes and categories for
, 90
Republic of Ireland
, 88
Research method
, 41
Restrictions
, 75–79
Retirement
, 107
Rhymes
, 43
Royal College of Nursing (RCN), UK
, 81–83, 142, 152–153
copyright agreement and deposit instructions
, 165–166
oral history project
, 165
Royal Medico-Psychological Association
, 23
Satisfaction
, 71
Scottish National Review
, 10
Self-fulfilment
, 106
Self-satisfaction
, 106
Self/professional/intellectual development
, 75–76
‘Self’
, 139
Semi-structured interviews
, 49–51
Sense of justice
, 66–68
Sense of knowing right people
, 77–78
Service
, 118
providers
, 145
provision
, 128
Shared agency
, 66–75
Shared visions
, 66–75
Snowball sampling
, 45
Social Care workers
, 4
Social coping mechanism
, 72
Social historical interpretation
, 116
Social justice
, 117
Societal change
, 109
changing perspectives
, 110–113
congregated settings
, 109–110
Songs
, 43
Specialist workforce
, 5–6
Staff(ing)
awareness of professional boundary setting
, 125
crisis
, 20–21
State Enrolled Nurses (SENs)
, 46, 62n1
Stigmatisation
, 121
Stories
, 43
‘Stories of importance’
, 136
Storytelling
, 42
Strengthening the Commitment
, 18
Stress
, 106
‘Subjectivity’
, 139
Team working
, 79–80
Thematic data analysis
, 51
Themes and categories
for England
, 67
for Republic of Ireland
, 90
Transcriptions
, 66
Transferability
, 58–59
Treatment
, 25
Trinity College Dublin (TCD)
, 154
Turf-wars
, 34
United Kingdom
, 2, 81–83
United Nations Universal Declaration of Human Rights (1948)
, 24
University of West London (UWL)
, 154
Untold stories
, 168
Validity
, 56–61
Voluntary participation
, 154, 171
Withdrawal from study
, 154, 171
Work houses
, 23