Index
Kirsty Liddiard
(University of Sheffield, UK)
Sally Whitney-Mitchell
(University of Sheffield, UK)
Katy Evans
(University of Sheffield, UK)
Lucy Watts MBE
(University of Sheffield, UK)
Ruth Spurr
(University of Sheffield, UK)
Emma Vogelmann
(University of Sheffield, UK)
Katherine Runswick-Cole
(University of Sheffield, UK)
Dan Goodley
(University of Sheffield, UK)
Living Life to the Fullest: Disability, Youth and Voice
ISBN: 978-1-83909-445-3, eISBN: 978-1-83909-444-6
Publication date: 9 May 2022
This content is currently only available as a PDF
Citation
Liddiard, K., Whitney-Mitchell, S., Evans, K., Watts, L., Spurr, R., Vogelmann, E., Runswick-Cole, K. and Goodley, D. (2022), "Index", Living Life to the Fullest: Disability, Youth and Voice, Emerald Publishing Limited, Leeds, pp. 165-170. https://doi.org/10.1108/978-1-83909-444-620221010
Publisher
:Emerald Publishing Limited
Copyright © 2022 Kirsty Liddiard, Sally Whitney-Mitchell, Katy Evans, Lucy Watts, Ruth Spurr, Emma Vogelmann, Katherine Runswick-Cole and Dan Goodley
INDEX
Ableism
, 3, 126
legacies
, 144
Absence of ability
, 15
‘Access intimacy’
, 7
Accessibility
, 29, 35, 98
Activism
, 11, 12, 34, 39, 143
Activist legacies
, 142–143
Advocate
, 60, 105
‘Agents of psychoemotional disablism’
, 95
Analysis Workshop
, 120
Animal–human relationships
, 44–45
Arts-informed approaches
, 32
Assessment
, 123
Assistance dog
Ethan, co-researcher Sally and
, 49–53, 56–58
experiences of disabled young people
, 44
Folly, co-researcher Katy and
, 53–55
importance in disabled young people
, 46–47
Living Life to the Fullest Project
, 44
Assistance dogs
, 48
Autobiographical legacies
, 143–144
Barriers
disabled young people
, 86–87
disabled young people identifying
, 127
experience
, 7
external
, 17, 107, 127
internalized
, 17
material
, 13
physical
, 83
psycho-emotional
, 17
in social world
, 26
societal
, 16
structural
, 62
Big Question approach
, 117–118
Body
disabled
, 91
image
, 82–83
life beyond
, 21
material
, 80
Canine Care Project
, 9, 44, 48
Care
, 56–58, 90–93
Career
, 5, 137
Caring
, 56–58
Childhood
, 14, 26
sociology of
, 27
Western
, 128
Children in research
, 26–28
Co-production
, 16, 26, 122
Co-production Toolkit
, 8, 117, 119, 122–123
Co-Researcher Collective
, 5–8, 11, 26, 115, 126, 129
contesting power imbalances
, 31–32
Collaborative analysis
, 34–36
Connection
, 75–77
posthuman
, 43–60
Covid-19 pandemic
, 38, 47, 67
Crip
accessible cultures
, 114
accessible spaces
, 111
accessible systems
, 112–114
accessible technology
, 112
accessible times
, 111–112
alternative workplaces
, 114
crip-solidarity legacies
, 144
time
, 26, 40, 101
Cripspiration
, 86
Critical disability studies
, 12–17, 26, 100
children and young people in research
, 26–28
Co-Researcher Collective
, 31–32
collaborative analysis
, 34–36
disability research
, 37–41
disabled young people
, 28–30
embodied knowledge
, 36–37
virtual spaces
, 37–41
young people
, 37–41
Critical posthumanities
, 20–22
Cultures accessible in workplace
, 114
Data
analysing
, 36
artistic
, 35
collection
, 117
from disabled young people
, 48–49
gathering
, 38
narrative
, 35
Dating
, 80
online
, 80, 86–90
Death
, 125
illness, threat and progression
, 131–133
leaving legacies
, 139–144
life and
, 127–129
life and living with
, 129
life expectancies
, 133–137
living with grief
, 137–139
surviving and thriving
, 129–131
Department for Work and Pensions (DWP)
, 113
Desires
, 2, 14, 81
Digital legacies
, 140–141
Digital lives
, 85–90
Disability
, 11, 82, 101
critical disability studies
, 12–17
critical posthumanities
, 20–22
disabled young people
, 61
DisHuman perspective
, 12, 22–23
and faith
, 61
faith at centre
, 64
hope and suffering
, 65–67
humanism
, 17–19
interdependency and vulnerability
, 67–70
love, ‘otherness’ and marginalized
, 70–71
in online dating
, 86–90
research
, 37–41
Sally’s journey with illness, disability and faith
, 64–65
self-worth and identity through faith
, 72–74
studies
, 62–64
Disabled
parenting
, 97
people
, 55, 67, 79
young people
, 28–30, 140–144
young person
, 48
Disabled Children’s Childhood Studies
, 4, 14, 26, 124
Disabled feminists
, 97, 127
Disablism
, 126
Disclosure in online dating
, 86–90
Discrimination
, 109
DisHuman approach
, 44
DisHuman perspective
, 12, 22–23
Distress protocol
, 128
Dogs, assistance
, 49–58
Dying
, 35, 72, 126, 138
Economic and Social Research Council (ESRC)
, 116
Emancipatory disability research
, 25, 27
Emotional labour
, 100–102
and advocacy
, 105–108
and body work
, 102–103
cripping workplace
, 108–114
in medicalised spaces
, 103–104
social care
, 105–108
Emotional support
, 51–52
Emotional wellbeing
, 53–55
Employment
, 64, 113
Employment and support allowance (ESA)
, 113
Equality Act
, 110
ESRC Festival of Social Science
, 121
Ethics
, 119, 120
Exclusion
, 3, 20, 62
Faith
Faith, disability and
, 61–74
Feminists
, 15, 20, 97, 127
Future
, 127–137
Greenacre School
, 116
Grief
, 137–139
Grounding
, 54–55
Happiness
, 137
Health
, 29, 56
‘Higher order thinking skills’
, 123
Hope
, 65–67
Hospitalisation
, 40
Human
animal–human relationships
, 43–60
diversity
, 18
human–animal interrelations
, 21
life
, 12, 21
life beyond human species
, 21
predicaments
, 20
productivity
, 16
right
, 12, 19
value
, 101, 110
value of disability
, 1
Humanism
, 12, 17–19, 45
Humanist concept
, 46
Identity
, 35–36, 38, 44, 49–53
Illness
, 131–133
Impairment
, 13, 30, 85
in digital intimacies
, 80
internal experience of
, 127
life-threatening impairment
, 98
negative impacts of
, 40
progression
, 92, 95, 132, 134
Inclusion
, 28, 29
Independence
, 50–51
‘Inspiration porn’
, 86
Institute for the Study of Human (iHuman)
, 37
Interdependencies
, 46–49
Interdependency
, 67–70
Internet
, 38
Intersectionality
, 23
Interspecies relationships
, 51–52
Intimacy
, 35, 39, 85
disability and
, 84–85
for disabled young people
, 80, 98
forced
, 108
posthuman
, 51
rights and access to
, 81
sexuality and
, 94
trans-species
, 57
Intimate legacies
, 140
Joy
, 34, 130
Justice
, 38
Labour
, 99 (see also Emotional labour)
Lasting power of attorney (LPA)
, 141
Learning
, 123
Legacy
, 2, 8, 127, 131
crip-solidarity legacies
, 144
digital
, 142
for disabled young people
, 140–144
leaving
, 139
physical
, 144
‘Lethal binaries’
, 67
LGBT+ disabled young person
, 93
Liberal humanism
, 18
Life expectancies
, 127, 133–137
Life limiting and life-threatening impairments (LL/LTIs)
, 2, 13, 94, 99, 125
Life-threatening condition
, 49, 80, 96, 137
Living Life to the Fullest Project
, 1, 2, 11–12, 26, 29, 31–32, 34–35, 37, 39–40, 43–45, 47, 51, 56, 111, 140
Canine Care Project
, 9
Co-Researcher Collective
, 5–8
collaborative analysis
, 8
context of LL/LTIs
, 3
crip alternatives
, 100
disabled children’s childhood studies
, 4
explored lives of disabled young people living with LL/LTIs
, 127
focus on meaning of ethics
, 119
legacy from
, 122, 144
impact of living with knowledge
, 73
voices of disabled young people in
, 59–60
Loneliness Project
, 116
Love
, 17, 70–71, 90–93
Marginalisation
, 3, 41, 45, 64, 69, 70–71, 106
‘Me Before You’ (film)
, 84–85
‘Medical model perspective’
, 17
Medicalisation
, 18
Mental health
, 53–55
Methodology
co-production
, 5
rethinking
, 32–34
revolutionary
, 9
‘Missing People’s Humanities’
, 20
National Audit Office
, 110
Non-disabled people
, 107
Non-governmental organisations (NGOs)
, 4
Normalisation
, 137
Online dating
disability in
, 86–90
disclosure in
, 86–90
‘Otherness’
, 70–71
Oppression
, 38, 62, 63
Parents
, 4, 5, 30, 34, 110
Participants
, 3, 6, 32, 35, 37, 40, 82
‘Permitted work’ scheme
, 113
Personal assistants (PAs)
, 55
Personal independence payment (PIP)
, 113
Physical wellbeing
, 57–58
Posthuman connections
Canine Care Project
, 44
Co-researcher Katy and assistance dog Folly
, 53–55
Co-researcher Sally and assistance dog Ethan
, 49–53, 56–58
connections with assistance animals
, 45–46
interdependencies
, 46–49
motivation, confidence and challenges
, 58–60
posthuman disability studies
, 43
Power
, 68
contesting power imbalances
, 31–32
of gaze
, 38
of God’s love
, 70
of others’ Ableist perceptions
, 81–83
Privacy
, 39, 90, 93
Professionals
, 30, 104, 106
Progression
, 131–133
Pruning process
, 72
Purple Patch Arts
, 32
Real life (RL)
, 38
Reciprocity
, 55
Relationships
, 5, 35, 48, 94, 116
Religion
, 61, 62–64, 75
Remote
, 111
Reproductive futures
, 94–98
Resus and Intensive Care
, 56
Rethinking method
, 32–34
Rights
, 19, 27, 80
Romantic relationship
, 96, 135–136
Schools
, 115
co-production toolkit
, 122
ESRC Festival of Social Science
, 121
Greenacre School
, 116
learning and assessment
, 123
SEND Teacher
, 118
working in
, 117–120
working in and with university
, 120–121
Seldom
, 29
Self-esteem
, 17, 34, 59, 80
Self-worth and identity through faith
, 72–74
Sex
, 80, 90–93
Sexuality
, 79
digital lives
, 85–90
feeling
, 83–85
intimate and reproductive futures
, 94–98
intimate selves
, 85–90
loneliness, difficulties in socialising
, 83–85
mediating love, sex and care
, 90–93
power of others’ Ableist perceptions
, 81–83
Social care
, 105–108
Social inclusion
, 52–53
Social media
, 85–86
Social model
, 108
Solidarity
, 7, 8
Space
, 101
accessible in workplaces
, 111
Special educational need and disability (SEND)
, 116
Suffering
, 65–67
Support, emotional
, 51–53
Surviving
, 129–131
Systems accessible in workplaces
, 112–114
Technology accessible in workplaces
, 112
Temporalities
of ‘work’
, 46
of qualitative methods
, 40
of research
, 26, 40–41
Theory
, 12, 44
Thriving
, 129–131
Times accessible in workplaces
, 111–112
Toolkit, co-production
, 8, 117, 119, 122–123
United Nations Convention on Rights of Persons with Disabilities
, 19
‘Unobtrusive observation approaches’
, 38
Utopian scenario
, 16
Virtual spaces
, 37–41
Virtual technologies
, 38
Vulnerability
, 57, 67–70, 75, 87, 126–127
What Matters? project
, 116–117, 123
Why Can’t We Dream?
, 8, 117, 119, 122
Work
, 9, 90, 99–100
advocacy
, 105, 106
conventional world of
, 107
disabled people
, 104, 109, 114
emotional
, 126, 132
emotional labour and body work
, 102–103
face-to-face
, 7
forms of
, 36
from home
, 110
level of
, 104
paid
, 100–101, 108–109
permitted
, 113
temporalities of
, 40
Workplace
accessible cultures
, 114
accessible spaces
, 111
accessible systems
, 112–114
accessible technology
, 112
accessible times
, 111–112
crip alternatives
, 109–111
cripping
, 108
social model
, 108
Young people
and assistance dogs
, 45
capacity of
, 27
care and support for disabled
, 60
democratisation of researching with
, 27
disability and disclosure in online dating
, 86–90
disabled
, 4–9, 34–35, 46–47, 58–59
expectation role
, 94–98
faith and
, 73
formation of identity
, 81
living with LL/LTIs
, 2–3, 12–13, 17, 30, 33–35
mediating love, sex and care in disabled
, 90–93
in research
, 26–28
social media and
, 85–86
studies of
, 14
in The Living Life to the Fullest Project
, 59
used interview space
, 80
virtual spaces, disability research and
, 37–41, 80
Young People as Researchers
, 28–29
Youth
disability studies in
, 14, 128
and friendship
, 137
social media and
, 86
- Prelims
- 1. Living Life to the Fullest: Our Project
- 2. Theorising Disability: Towards a DisHuman Perspective
- 3. Co-production, Participatory and Emancipatory Disability Research
- 4. Posthuman Connections: Rethinking Animal–Human Relationships
- 5. Disability and Faith
- 6. Rethinking Sexuality, Our Intimate Selves and Our Relationships with Others
- 7. Labour in the Lives of Disabled Young People
- 8. Making Meaningful Impact in and with Schools
- 9. Desiring Life and Living with Death
- References
- Index