Index

Susan J. Sample (University of Utah, USA)

Voices of Teenage Transplant Survivors

ISBN: 978-1-80043-519-3, eISBN: 978-1-80043-518-6

Publication date: 3 March 2021

This content is currently only available as a PDF

Citation

Sample, S.J. (2021), "Index", Voices of Teenage Transplant Survivors, Emerald Publishing Limited, Leeds, pp. 125-127. https://doi.org/10.1108/978-1-80043-518-620211028

Publisher

:

Emerald Publishing Limited

Copyright © 2021 Susan J. Sample. Published under exclusive licence by Emerald Publishing Limited


INDEX

A Table in the Wilderness (Young-Lee)
, 59

Adolescents and Young Adults (AYA)
, 1–2

Alice Walker
, 68

Anti-narrative
, 53

Arthur W. Frank
, 4–5, 7–8, 53, 64

Arts and Public Health
, 41

Biopsies
, 43–45

Bodies
, 3, 4, 5, 7, 10, 14, 23, 69, 81–84, 116

Bolton, Gillie
, 6

Brewer, Ken
, 89

Buried Self
, 31–32

Camp Kostopulos
, x, 4, 29, 108, 115

Capture the Flag (game)
, 17

Challenge America Project
, 2–4

Chaos narrative
, 53

Childhood nicknames
, 13–15

Clifton, Lucille
, 89

Co-morbidity
, 64–65

Color Purple, The (Alice Walker)
, 68

Confidence
, 52, 75, 118

Courage
, 37, 75, 88, 109, 113, 119

Creative writing
, 4–5, 56

Creativity
, 4, 7, 17

Death
, 2, 39–40, 47, 90, 99–101, 108

Depression
, 7, 68

Dialysis
, 10, 35, 47–49, 64, 65, 70, 83–84, 94, 97, 115, 118–119

Dieticians
, 93

Diets
, 35, 71

Disability studies
, 1, 91

Donald J. Hall
, 53

Dreams
, 26, 93–97, 99–101

Driving
, 25–27

Emotion
, 2, 7, 11, 30, 32, 40, 48, 52–53, 64, 68, 84, 90, 96, 101, 110

Erving Goffman
, 89–90

Expressive writing
, 52–53

Fear
, 36, 90, 94, 96, 99, 101, 108

Generosity
, 107–108

Gratitude
, 3, 96–97

Gregory Orr
, 5, 29, 32, 68, 89

Healing
, 1, 3, 26, 53, 62, 75, 107–108, 119

Healing Art: A Doctor’s Black Bag of Poetry, The (Campo)
, 1, 7, 44, 49, 62, 100

Hirsh, Edward
, 52

Hospital administrators
, 93

I’m in Charge of Celebrations (Baylor)
, 55

Identity
, 1–2, 8, 11, 75, 118

Illness
, 1–2, 10, 14–16, 44, 49, 53, 61, 64, 93, 117–118, 119

Independence
, 26, 64

Intermountain Donor Services (IDS)
, 109–110

Jack Collom
, 4

James Pennebaker
, 7, 52–53

Joan Gardner
, 18

Language
, 4, 54, 57, 84, 109, 119

Lerita M. Coleman Brown
, 90–91

Li Young-Lee
, 59

Library Square
, 111

Life expectancy
, 100, 113–114

Local anesthesia
, 44–45

Locker rooms
, 81–82, 89

Lockers
, 81

Louise DeSalvo
, 7, 19, 56–57, 68, 75, 100–101

Marilyn Chandler McEntyre
, 1

Measuring pain
, 47

Medical experiences
, 69–70

Medical students
, x, 3–4, 41, 44, 93

Medical trainees
, 2–3

“Medically complex” pediatric patients
, 11

Metaphors
, 5–6, 23–24, 49

Miracle-like
, 118

definition
, 3, 18

chapbook
, 18, 103, 110

Mortality
, 4, 8, 27, 64–65, 90, 118

Mothers
, 59–60

Music
, 24, 78

Names
, 13

Narrative
, 1

chaos narrative
, 53

illness narrative
, 1, 3, 6–7, 113

restitution narrative
, 63–64

Narrative ethics
, 7–8

Narrative Medicine: Honoring the Stories of Illness (Charon)
, 7–8, 45, 93

National Endowment for the Arts
, 3, 10, 51

National Kidney Foundation of Utah and Idaho
, 2–4, 9–10, 108

Normal
, 3–4, 14, 35, 64–66, 73, 95–96

Nouwen, Henri J. M.
, 75

Nurses
, 44, 93

Old Cardiology Dream, The (Ron Charach)
, 94–95

Organ transplant
, x, 2–4, 10, 64, 90, 111, 113–114

Pamela Grant
, 2–3, 35

Patient Voices: Illness from Inside Out (McEntyre)
, 1

Personal lyric
, 5, 7–8, 31–32

Physicians
, 1, 3, 4–5, 11, 35, 45, 64, 65, 68, 93

Poetry
, 1, 3, 4, 7, 9, 17, 18, 49, 54, 100, 107–108, 119

alliteration
, 55

concrete poem
, 74

definition
, 4

list poem
, 63–64

lyric poem
, 29, 52, 54

personal lyric
, 5, 7–8, 31–32, 68

revision
, 6, 84

sound
, 5–6, 18

transformative lyric
, 5

word choice
, 57

Poetry as Survival (Orr)
, 5, 29, 32, 68, 89

Poetry Everywhere (Collom and Noethe)
, 4

Posttransplant life
, x, 2–3, 10, 25, 40

Prednisone
, 10–11

Primary Children’s Hospital
, 39, 44, 61

Prison metaphor
, 48

Psychosocial needs
, 1–2

Rafael Campo
, 1, 7, 44, 49, 62, 100

Responsibility
, 27, 68, 96

social responsibility
, 8

Restitution narrative
, 63–64

Rita Charon
, 7, 45, 93

Robert Hass
, 5–6

Rosanna Warren
, 6

Rosemary Garland-Thomson
, 91

Runaway with Words (Gardner)
, 18

Salt Lake City
, 2–3, 61, 77, 103, 111–112, 114–115

Hilton Hotel
, 110

Scars
, 22, 66, 75, 85–90, 103, 108

Self-image
, 74

Sexuality
, 23–24

Social work
, 2, 6, 10–11, 19, 35, 39, 47, 93, 115, 117, 119

Song lyrics
, 78

Sports
, 83–84

Stigma
, 89–91

Stigmatization
, 90–91

Suffering
, 7, 45, 54, 75, 91, 93, 95, 116

Surgery
, 3, 9–11, 13–16, 40, 44, 45, 64–65, 90, 96, 110–111, 113, 114, 115

Survival
, 10, 29–30, 113, 116

Survivor guilt
, 19

Teaching moments
, 5–6

Teens
, 23–24, 26, 37

with chronic illnesses
, 2, 10, 44

That Intern Dream (Jack Coulehan)
, 94–95

Therapeutic value of poetry
, 6, 107–108

Time
, 53, 60, 65, 111, 114

Today Show, The
, 10

Transformative lyric
, 5

Transplants
, 3, 10–11, 14, 19, 26, 30, 35, 48, 61, 64, 85, 89, 100, 111, 113

Uintah Basin Standard
, 108

University of Utah Health
, 35

University of Utah Hospital
, 2–3

University of Utah student union
, 103

Utah Arts Council
, 2–4, 10, 51

Visual activism
, 91

Waiting room
, 63–64

Wounded Storyteller: Body, Illness, and Ethics, The (Frank)
, 4–5, 7–8, 53, 64

Writing as a Way of Healing: How Telling Our Stories Transforms Our Lives (DeSalvo)
, 7, 19, 56–57, 68, 75, 100

Youth Transplant Kamp (YTK)
, 2–4, 6, 10, 29–30, 35, 49, 57, 85, 89, 103, 108, 112

application to
, 35