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Consumer involvement in health research: fact or fiction?

R. Telford (R. Telford is an Honorary Research Fellow and a Consultant Clinical Psychologist, Community Health Sheffield NHS Trust, University of Sheffield, School of Health and Related Research, Sheffield, UK.)
C.A. Beverley (C.A. Beverley is a Systematic Reviews Information Officer at University of Sheffield, School of Health and Related Research, Sheffield, UK.)
C.L. Cooper (C.L. Cooper is a Senior Research Fellow at University of Sheffield, School of Health and Related Research, Sheffield, UK.)
J.D. Boote (J.D. Boote is an Honorary Research Fellow at the University of Sheffield, School of Health and Related Research and Senior Research Assistant, Community Health Sheffield, NHS Trust, Sheffield, UK.)

British Journal of Clinical Governance

ISSN: 1466-4100

Article publication date: 1 June 2002

1604

Abstract

Consumer involvement is now firmly established as National Health Service (NHS) R&D policy. This study identified the range and diversity of current NHS research projects involving consumers within an NHS region, to investigate the extent to which the policy is being implemented. Trust R&D directors and managers were surveyed and the National Research Register scrutinized. Researchers were found to be involving consumers in research in less than a third of trusts in the region. Difficulties were encountered in categorising research activities and the level of consumer involvement, suggesting that more precision in describing consumer involvement in the research process is necessary. Researchers had concerns about the practicalities of involving consumers and expressed a need for more direction and resources. Makes recommendations for trust management to facilitate more active involvement of consumers in research.

Keywords

Citation

Telford, R., Beverley, C.A., Cooper, C.L. and Boote, J.D. (2002), "Consumer involvement in health research: fact or fiction?", British Journal of Clinical Governance, Vol. 7 No. 2, pp. 92-103. https://doi.org/10.1108/14664100210427606

Publisher

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MCB UP Ltd

Copyright © 2002, MCB UP Limited

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